Dementia and caregiver burden: A three‐year longitudinal study

Connors, Michael H.; Seeher, Katrin; Teixeira‐Pinto, Armando; Woodward, Mark; Ames, David; Brodaty, Henry

doi:10.1002/gps.5244

Cited by 156 publications

(151 citation statements)

References 57 publications

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“…Therefore, finding a balance between caring for people with dementia and taking care of the caregiver's own and competing needs is a dynamic process that sensitively and accurately reflects continuously changing caregiving needs. Furthermore, family caregivers of people with dementia, particularly female caregivers, had a higher caregiver burden over time if they lacked services (Connors et al., 2020). Depression in caregivers of people with dementia was predicted over time by greater caregiver self‐efficacy, more frequent leisure activities, and repeated cognitive reappraisal, even after controlling for gender and frequency of care receivers’ disruptive behaviours (Romero‐Moreno et al., 2012).…”

Section: Discussionmentioning

confidence: 99%

Finding a balance in family caregiving for people with dementia: A correlational longitudinal study

Liu

Hsu

Shyu

et al. 2021

Journal of Advanced Nursing

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Aims The “Finding a Balance Point” framework was used to explore the caregiving process over time for family caregivers of people with dementia in Taiwan. This study aimed to: (a) identify Taiwanese caregivers’ different balance trajectories; (b) explore predictors of trajectory group membership; and (c) examine associations of different balance trajectories with caregiving outcomes. Design A correlational longitudinal design was used. Methods Data were collected from 200 family caregivers’ self‐completed questionnaires and they were followed over 2 years (June 2015–May 2017). Discrete balance trajectories were identified by group‐based trajectory modelling. Predictors of trajectory group membership were identified from potential predictors of caregiving characteristics and caregiving factors using multivariate logistic regression. Associations of trajectory groups with caregiving outcomes (depressive symptoms and health‐related quality of life) were explored using the generalized estimating equation. Results Balance trajectories best fit a two‐group trajectory model (poor and good). Caregivers with a poor sense of balance between competing needs were more likely to have more depressive symptoms (b = 11.71, 95% CI [9.04, 14.38], p < .001), worse physical health (b = −6.22, 95% CI [−8.71, −3.74], p < .001), and worse mental health (b = −11.1, 95% CI [−13.58, −8.63], p < .001) than caregivers with a good sense of balance. Caregivers experiencing lower role strain (b = −1.45, SE = 0.48, p = .003) or higher predictability (b = 2.83, SE = 0.76, p < .001) were more likely to belong to the good‐balance group. Conclusions Caregivers with poor balance between competing needs are more likely to have worse caregiving outcomes. Role strain and predictability significantly predicted balance trajectory groups. Family caregivers with lower caregiving task difficulty and/or better knowledge of the care receiver were more likely to be in the good balance trajectory group. Impact Our findings support the framework, “Finding a Balance Point,” and clarify the family caregiving process for people with dementia. This framework could be used to tailor interventions for home care nurses to improve family caregivers’ caregiving outcomes.

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Section: Discussionmentioning

confidence: 99%

Finding a balance in family caregiving for people with dementia: A correlational longitudinal study

Liu

Hsu

Shyu

et al. 2021

Journal of Advanced Nursing

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“…The scale was translated into Chinese by Yue et al and passed the reliability and validity test. The inventory consists of 24 questions that refer to ve dimensions: time-dependence burden (questions 1-5), developmental burden (questions 6-10), physical burden (questions 11-14), social burden (questions 15-18), and emotional burden (questions [19][20][21][22][23][24]. Each item was graded on a 4-point Likert scale according to the degree of each situation.…”

Section: Measures and Data Collectionmentioning

confidence: 99%

Factors associated with caregiving status and caregiver burden for patients with Alzheimer's disease in China

Jin

Zhou

et al. 2021

Preprint

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Background The prevalence of Alzheimer's disease (AD) is rapidly in China, which puts a great deal of pressure on the patient’s family and society. The way of patient care deserves social attention. This study focused on the caregiving status and the relationship between caregivers’ burden and patient factors based on the Chinese pension system. Methods This is a large-scale, multicenter cross-sectional study aimed to investigate the two types of caregiving (family care and nursing care), and the caregiver burden of patients with AD. A total of 1675 patients with a definite diagnosis of probable AD from 30 provincial, municipal, and autonomous regions of mainland China were enrolled from August 2019 to December 2019. Caregivers of AD patients completed the questionnaire under the guidance of trained investigators. The characteristics of patients and caregivers were summarized by descriptive statistics. Results Among the 1675 AD patients, 1522 (90.87%) patients adopted family care. There was a significant correlation between the housing condition, annual income, self-care ability, and the choice of caregiving (P < 0.05). According to the caregiver burden inventory score, 28.90% of the caregivers had a low burden, 57.01% had a medium burden and 14.09% had a heavy burden, concerning the patient's age, caring style, self-care ability, etc. The burden of the caregivers in the nursing facilities is relatively high than that of family care (P < 0.05). Conclusion Family care is the main way of care for AD patients in China. Caregiving status is affected by living place, patient income and severity of the disease. The burden of family caregivers of AD is generally high, especially patients with disabilities.

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“…3 Dementia has been shown to cause significant burden to almost 50% of the caregivers and is even more concerning, as the burden tends to increase with time. 4 Family caregivers have been shown to be a vital resource for people living with dementia (PLwD). 5 The health of these caregivers and maintaining their quality of life (QoL) is not only important for the caregivers themselves, but is also intrinsically linked to the health and wellbeing of PLwD.…”

Section: Introductionmentioning

confidence: 99%

“…The physical, psychological, social and financial impact caused by dementia is further compounded, as the disease not only affects the individual, but also their caregivers and families 3 . Dementia has been shown to cause significant burden to almost 50% of the caregivers and is even more concerning, as the burden tends to increase with time 4 …”

Section: Introductionmentioning

confidence: 99%

Prevalence of dementia and quality of life of caregivers of people living with dementia in Malaysia

Ganapathy

Sooryanarayana

Ahmad

et al. 2020

Geriatrics Gerontology Int

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Aim Dementia is the major cause of disability among older persons and leading physical and psychological sequelae for both the person living with dementia (PLwD) and their caregivers. The aim of this study was to determine the prevalence of dementia in Malaysia and identify the factors influencing quality of life (QoL) of caregivers of PLwD. Methods A nationwide survey was conducted among individuals aged ≥60 years. Cognition was assessed with the Identification and Intervention for Dementia in Elderly Africans (IDEA) tool. QoL of older caregivers was assessed using the Control, Autonomy, Self‐Realization and Pleasure (CASP‐19) questionnaire. Results The prevalence of dementia among older adults aged ≥60 years in Malaysia was found to be 8.5%. The prevalence was found to be higher among females, those with no formal education and those in rural areas in Malaysia. The mean QoL of family caregivers of PLwD was significantly lower than the caregivers of older adults without dementia were (P < 0.001). Multivariable linear regression analysis on the subpopulation of PLwD showed that inability to carry out activities of daily living among PLwD (P = 0.014) and low to fair social support for the caregivers (P < 0.001) were negatively associated with QoL of caregivers of PLwD. Conclusions The high prevalence of dementia among older adults in Malaysia emphasizes the need for affirmative action in Malaysia. The functional capacity of the PLwD and social support determines the QoL of caregivers of PLwD in Malaysia. Thus, the community as a whole needs to provide support to PLwD and their caregivers. Geriatr Gerontol Int 2020; 20: 16–20.

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Dementia and caregiver burden: A three‐year longitudinal study

Cited by 156 publications

References 57 publications

Finding a balance in family caregiving for people with dementia: A correlational longitudinal study

Finding a balance in family caregiving for people with dementia: A correlational longitudinal study

Factors associated with caregiving status and caregiver burden for patients with Alzheimer's disease in China

Prevalence of dementia and quality of life of caregivers of people living with dementia in Malaysia

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