Dementia case ascertainment using aged care assessment data

Cations, Monica; Lang, Catherine; Ward, Stéphanie; Crotty, Maria; Inacio, Maria C.S.

doi:10.1111/1753-6405.13026

Cited by 12 publications

(12 citation statements)

References 12 publications

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“…Estimation of birthplace‐specific dementia prevalence via ACFI and ACAP administration data involves a number of approximations. Although we utilise ACFI and ACAP data to create weights of the migrant to Australian born dementia prevalence, it is important to recognise that these administrative data sources underestimate the total number of people living with dementia 48 . Nonetheless, as our results indicate, cohort flow, rather than reasonable shifts in prevalence are the key drivers of the growth of dementia cases among migrant Australians, and the shifting cultural composition of dementia in Australia.…”

Section: Discussionmentioning

confidence: 99%

The role of demographic change in explaining the growth of Australia's older migrant population living with dementia, 2016–2051

Temple

Wilson

Brijnath

et al. 2022

Australian and New Zealand Journal of Public Health

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Objective: To examine the demographic drivers contributing to the future growth in the population of older migrants in Australia living with dementia. Methods: Using birthplace‐specific cohort‐component projection models, we projected the number of older migrants living with dementia. ABS data on births, deaths, migration and birthplace were used, alongside Australian Institute of Health and Welfare (AIHW) estimates of dementia prevalence with birthplace dementia weights calculated from administrative data. Results: The number of older migrants living with dementia is projected to increase from about 134,423 in 2016 to 378,724 by 2051. Increases in populations with dementia varied considerably, from a slight decrease for those born in Southern & Eastern Europe to over 600% increases amongst the South‐East Asia, Southern & Central Asia, and Sub‐Saharan Africa‐born populations. Conclusions: Cohort flow is the primary driver increasing the number of older migrants living with dementia. This growth is largely inevitable because the cohorts are already living in Australia as part of the migrant population, but currently at ages below 60 years. Implications for public health: High relative growth and shifting birthplace composition in the number of migrants living with dementia poses implications for culturally appropriate care, health care access and workforce needs to support migrant families, carers and their communities.

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Section: Discussionmentioning

confidence: 99%

The role of demographic change in explaining the growth of Australia's older migrant population living with dementia, 2016–2051

Temple

Wilson

Brijnath

et al. 2022

Australian and New Zealand Journal of Public Health

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“…Individuals in the aged care sector represent almost 40% of the estimated prevalent cases of dementia in Australia. 19 The prevalence of dementia in new users of aged care services ranges from up to 48% for those entering RACFs to 22% for those accessing home care packages (2015 estimates). 9 The cohort of people with dementia in the ROSA Historical Cohort is largely comparable to cohorts captured in international dementia registries, demonstrating ROSA’s potential to contribute to the examination of the quality of care provided to older people with dementia and facilitating international benchmarks.…”

Section: Findings To Datementioning

confidence: 99%

“…Dementia disproportionally affects older individuals in the aged care sector and the quality of care provided to people with dementia is varied . Individuals in the aged care sector represent almost 40% of the estimated prevalent cases of dementia in Australia 19. The prevalence of dementia in new users of aged care services ranges from up to 48% for those entering RACFs to 22% for those accessing home care packages (2015 estimates) 9.…”

Section: Findings To Datementioning

confidence: 99%

Registry of Senior Australians (ROSA): integrating cross-sectoral information to evaluate quality and safety of care provided to older people

2022

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PurposeThe Registry of Senior Australians (ROSA) was established to evaluate aged care experiences in Australia. In this manuscript, we describe the ROSA framework, the two ROSA cohorts, highlights from research findings, and future plans.ParticipantsThe South AustralianROSA Prospective Cohort(August 2018–June 2020) enrolled 26 605 participants, of which 59.2% (N=15 745) are women, with a median age of 83 (interquartile range (IQR) 77–88). The NationalROSA Historical Cohort(January 2002–June 2020) includes 1 694 206 participants with an aged care eligibility assessment, of which 59.1% (N=1 001 705) are women and the median age is 78 (IQR 72–83).Findings to dateMost research using the ROSA has focused on dementia, service accessibility, quality and safety of care, falls and injuries and quality use of medicines. The ROSA has also examined the experience of individuals with highly prevalent and understudied conditions in aged care settings (eg, eye and mental health) and aspects of services (eg, built environment) and innovation (eg, mobile radiological services) that can affect older people’s health. Important learnings from the ROSA’s development include the significant resources and multidisciplinary expertise required for establishing this platform. Between 2018 and 2022, 43 academic publications, eight reports of the Australian Government Royal Commission into Aged Care Quality and Safety, and several reports to state health authorities and professional societies have used the ROSA.Future plansOur plans include to: (1) continue delivering high-quality evidence to support the improvement of ageing and aged care services; (2) influence and improve the quality of research in and for the aged care sector; (3) expand scope to facilitate examining aims in more depth; (4) include future aged care sector data collections within the ROSA; (5) inform best practices and innovate how consumer engagement occurs in research; (6) monitor and evaluate the impact of the 2021 Australian Aged Care Reforms.

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“…An estimated 472,000 people are living with dementia in Australia in 2021, [1] with 10% of people aged ≥65 years and 30% of people aged ≥85 years having dementia [2]. In Australia, the prevalence of dementia is generally estimated using a range of data sources including routinely collected health data such as hospitalisations, deaths and other health administrative data such as pharmaceutical claims for dementia-specific medications and aged care assessments [3][4][5][6]. However, the accuracy and agreement between these sources of data are not well understood.…”

Section: Introductionmentioning

confidence: 99%

Diagnostic accuracy of linked administrative data for dementia diagnosis in community-dwelling older men in Australia

et al. 2022

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Background Routinely collected health administrative data can be used to estimate the prevalence or incidence of dementia at a population level but can be inaccurate. This study aimed to examine the accuracy of hospital and death data for diagnosing dementia compared with a clinical diagnosis in community dwelling older men in Australia. Methods We performed a retrospective analysis of the Concord Health and Ageing in Men Project (CHAMP) in Sydney, Australia. Of the 1705 men aged ≥70 years in the CHAMP study, 1400 had available linked administrative data records from 1 year prior to 1 year post the date of clinical dementia diagnosis. The primary outcome was the accuracy of dementia diagnosis using linked administrative data records compared to clinical dementia diagnosis. The linked data diagnosis was based on hospital and death records for the 1 year pre and post the clinical diagnosis. Clinical dementia diagnosis was a two-stage process with initial screening, followed by clinical assessment for those meeting a validated cut-off. A final clinical diagnosis of dementia based on the Diagnostic and Statistical Manual of Mental Disorders (4th edition) criteria was reached by a consensus panel. Results Administrative data identified 28 participants as having dementia, compared to 88 identified through clinical assessment. Administrative data had a sensitivity of 20% (95% CI: 13–30%, 18/88), specificity of 99% (95% CI: 99–100%, 1301/1312), positive predictive value (PPV) of 62% (95% CI: 44–77%), negative predictive value of 95% (95% CI: 94–95%), positive likelihood ratio of 24.4 (95% CI: 11.9–50.0) and negative likelihood ratio of 0.80 (0.72–0.89). Conclusions Administrative hospital and death data has limited accuracy for dementia diagnosis with poor sensitivity and PPV. The prevalence of dementia is likely underestimated using hospital and deaths data.

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Dementia case ascertainment using aged care assessment data

Cited by 12 publications

References 12 publications

The role of demographic change in explaining the growth of Australia's older migrant population living with dementia, 2016–2051

The role of demographic change in explaining the growth of Australia's older migrant population living with dementia, 2016–2051

Registry of Senior Australians (ROSA): integrating cross-sectoral information to evaluate quality and safety of care provided to older people

Diagnostic accuracy of linked administrative data for dementia diagnosis in community-dwelling older men in Australia

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