Dementia, Diagnostic Disclosure, and Self‐Reported Health Status

Campbell, Kellie Hunter; Stocking, Carol; Hougham, Gavin W.; Whitehouse, Peter J.; Danner, Deborah D.; Sachs, Greg A.

doi:10.1111/j.1532-5415.2007.01551.x

Cited by 18 publications

(22 citation statements)

References 26 publications

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“…Between one fifth and one third of people with dementia can recall their diagnostic label accurately (Pinner and Bouman, 2003;Elson, 2006;Campbell et al, 2008), although many more are able to recall some elements of the process of disclosure . Not surprisingly, recall of the diagnosis is associated with a higher Mini-mental State Examination (MMSE) score (Folstein et al, 1975), as well as younger age and higher levels of education; however, people with dementia who recalled their diagnosis were more likely to report poorer health status (Campbell et al, 2008).…”

Section: Factors Influencing Disclosure and Recall Of A Diagnosis Of mentioning

confidence: 99%

The transition to dementia – individual and family experiences of receiving a diagnosis: a review

Robinson

Gemski

Bond

et al. 2011

Int. Psychogeriatr.

122

127

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Section: Factors Influencing Disclosure and Recall Of A Diagnosis Of mentioning

confidence: 99%

The transition to dementia – individual and family experiences of receiving a diagnosis: a review

Robinson

Gemski

Bond

et al. 2011

Int. Psychogeriatr.

122

127

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“…We considered dementia to be present if the participant was taking a cholinesterase inhibitor or memantine. 23 We ascertained occurrence of pneumonia by self-report of hospitalization. A review of hospital records for a group of 94 participants showed excellent reliability for self-reported hospitalizations (κ=0.94).…”

Section: Methodsmentioning

confidence: 99%

A Method for Partitioning the Attributable Fraction of Multiple Time-Dependent Coexisting Risk Factors for an Adverse Health Outcome

et al. 2013

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Objectives We decomposed the total effect of coexisting diseases on a timed occurrence of an adverse outcome into additive effects from individual diseases. Methods In a cohort of older adults enrolled in the Precipitating Events Project in New Haven County, Connecticut, we assessed a longitudinal extension of the average attributable fraction method (LE-AAF) to estimate the additive and order-free contributions of multiple diseases to the timed occurrence of a health outcome, with right censoring, which may be useful when relationships among diseases are complex. We partitioned the contribution to death into additive LE-AAFs for multiple diseases. Results The onset of heart failure and acute episodes of pneumonia during follow-up contributed the most to death, with the overall LE-AAFs equal to 13.0% and 12.1%, respectively. The contribution of preexisting diseases decreased over the years, with a trend of increasing contribution from new onset of diseases. Conclusions LE-AAF can be useful for determining the additive and order-free contribution of individual time-varying diseases to a time-to-event outcome.

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“…In one study, patients with known dementia diagnoses were asked whether they have problems with memory and whether a physician had ever told them that they have a memory problem or dementia. Approximately 64% of participants reported memory problems, but only 26% reported having been previously told that they have memory problems or dementia by a physician 10 . There was also a sizeable discrepancy between patients and companions in their understanding of whether a dementia diagnosis had been given, with only 37% agreement between patient and companions.…”

Section: Introductionmentioning

confidence: 99%

Agreement on Diagnosis Among Patients, Companions, and Professionals After a Dementia Evaluation

Zaleta¹,

Carpenter²,

Porensky³

et al. 2012

Alzheimer Disease &Amp; Associated Disorders

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A dementia diagnosis is challenging to deliver and to hear, yet agreement about a diagnosis is essential for effective dementia care. We examined consensus about the results of a dementia evaluation in 90 patients assessed at an Alzheimer’s Disease Research Center. Diagnostic impressions were obtained from five sources: 1) the physician’s chart diagnosis, 2) the patient who was evaluated, 3) a companion present at the evaluation, 4) a diagnostic summary written by a nurse present during the evaluation, and 5) raters who watched a video of the diagnostic disclosure conversation. Overall, diagnostic consensus was only moderate. Patients and companions exhibited just fair agreement with one another. Agreement was better between physicians and companions compared to physicians and patients, though imperfect between the physician and video raters and the written summary. Agreement among sources varied by dementia severity, with lowest agreement occurring in instances of very mild dementia. This study documents discrepancies that can arise in diagnostic communication, which could influence adjustment to a dementia diagnosis and decisions regarding future planning and care.

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Dementia, Diagnostic Disclosure, and Self‐Reported Health Status

Cited by 18 publications

References 26 publications

The transition to dementia – individual and family experiences of receiving a diagnosis: a review

The transition to dementia – individual and family experiences of receiving a diagnosis: a review

A Method for Partitioning the Attributable Fraction of Multiple Time-Dependent Coexisting Risk Factors for an Adverse Health Outcome

Agreement on Diagnosis Among Patients, Companions, and Professionals After a Dementia Evaluation

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