Dementia in the Context of Disability

DiZazzo-Miller, Rosanne; Pociask, Fredrick D.

doi:10.3109/02703181.2015.1014126

Cited by 1 publication

(1 citation statement)

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“…Citizenship entails membership, participation, belonging, and recognition, and means being able to control one's life and influence one's society (Lister, 2003). Despite international reports on the increasing prevalence and future evolution of dementia (Prince et al, 2015), the condition is rarely included in disability studies (DiZazzo-Miller & Pociask, 2015). To enhance such inclusion, Bartlett and O'Connor (2010) suggest broadening the conceptualizations of both dementia and citizenship.…”

Section: Introductionmentioning

confidence: 99%

Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia

Ursin

Lotherington

2018

Scandinavian Journal of Disability Research

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Citizenship for people with a disability has become a notable subject within disability studies, but dementia has only sparingly been included in these studies. However, an important international debate on citizenship for people with dementia is emerging, highlighting rights, empowerment, agency, and new socio-political understandings. Yet, even though these studies often entail a relational understanding, they tend to perceive citizenship as allocated statically to individuals. This article contributes to the debate by conceptualizing relational citizenship as the distributed achievements of care-collectives consisting of a complex set of socio-material agents, including the person with dementia and the disease. Rather than adding more knowledge about experiences of dementia, the article develops an understanding of the critical mechanisms producing citizenship for all, and of care-collectives as potential facilitators for such distributed achievements. The results indicate that citizenship is a malleable and precarious enactment that needs continuous nourishment to be maintained, and that localized knowledge about the emergence and development of care-collectives is crucial for this maintenance and, hence, for shaping decent conditions for an everyday life with dementia.

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Section: Introductionmentioning

confidence: 99%