Dementia Literacy among Community-Dwelling Older Adults in Urban China: A Cross-sectional Study

Zhang, Haifeng; Loi, Samantha M; Zhou, Shu’aijun; Zhao, Mei; Lv, Xiaozhen; Wang, Jing; Wang, Xiao; Lautenschlager, Nicola T.; Yu, Xinguang; Wang, Huali

doi:10.3389/fpubh.2017.00124

Cited by 46 publications

(60 citation statements)

References 40 publications

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“…This finding echoed those of studies in developed countries such as Australia [6], Cambodia, Fiji and the Philippines [15], showing inadequate dementia literacy was prevalent in general. This study has filled the missing piece of puzzle in dementia literacy in China by providing further evidence of inadequate dementia literacy in community-dwelling adults (aged 18-64) in addition old adults (aged 65 or above) in China [11]. Public education to improve citizens' knowledge about dementia (which include the understanding of dementia symptoms, treatment options, care needs, and prognosis) and cultivate their positive attitudes towards dementia should be extensively supported.…”

Section: Discussionmentioning

confidence: 92%

“…Another study indicated that majority of the respondents (77%) had personal fear of developing Alzheimer's Disease (AD) and being female, those with poor self-rated health, high proximity to AD and high perceived severity of AD were more likely to indicate such fear [10]. A recent study investigated the dementia literacy of older adults (aged 60 or above) living in 34 urban cities in China and found that their dementia literacy was very low [11]. The studies mentioned above had investigated the Chinese participants' basic knowledge about dementia, their intended actions if their own relatives suffered from dementia, their personal fear of developing dementia, and dementia literacy level of older adults.…”

Section: Introductionmentioning

confidence: 99%

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Dementia Literacy in Greater Bay Area, China: Identifying the At-risk Population and the Preferred Mass Media for Receiving Dementia Information

Leung¹,

Molassiotis²,

Zhang³

et al. 2019

Preprint

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Background: This study aimed to assess the dementia literacy (DL) level of community-dwelling adults in the four cities (Hong Kong, Guangzhou, Macau and Zhuhai) of the Greater Bay Area of China and to determine the preferred mass media for receiving dementia information. Methods: A multi-city cross-sectional study with 788 community-dwelling adults completed the survey. Dementia literacy was indirectly measured by two validated scales, 30-item Alzhiemer’s Disease Knowledge Scale (ADKS) and 20-item Dementia Attitudes Scale (DAS). When the ADKS total score was <15 and DAS total score was <70, it was considered as ‘inadequate dementia literacy’. Participants were also asked to indicate whether they would like to receive dementia information via digital media or traditional media. Chi-square tests and logistic regressions were undertaken. Results: About one-third of the participants had inadequate dementia literacy. Those with young age or secondary education preferred to get dementia information from social media. But people living in public housing would like to get information from government or hospital websites. Middle-aged participants inclined to learn dementia from television or radio. Conclusion: It is worthy to conduct territory-wide public education in dementia and develop strategies according to their preferences in the types of mass media.

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Section: Discussionmentioning

confidence: 92%

Section: Introductionmentioning

confidence: 99%

Dementia Literacy in Greater Bay Area, China: Identifying the At-risk Population and the Preferred Mass Media for Receiving Dementia Information

Leung¹,

Molassiotis²,

Zhang³

et al. 2019

Preprint

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show abstract

“…China is one of those countries where the prevalence of dementia is growing rapidly; therefore, dementia literacy has become an important topic for discussion. The project team has identified three studies [9][10][11] on dementia literacy in China. A survey with 140 participants in the Chinese city of Tianjin showed that only 16% of the participants knew the risk factors of dementia and 56% were not sure whether they should share the diagnosis of dementia with the patients [9].…”

Section: Introductionmentioning

confidence: 99%

“…Another study indicated that the majority of the respondents (77%) had a personal fear of developing Alzheimer's Disease (AD), and that females, those with poor self-rated health, those in close proximity to someone with AD, and those with a high perception of the severity of AD, were more likely to indicate such a fear [10]. A recent study investigated the dementia literacy of older adults (those aged 60 or above) living in 34 urban cities in China and found that their dementia literacy was very low [11]. The studies mentioned above had investigated the Chinese participants' basic knowledge of dementia, their intended actions if their own relatives were to suffer from dementia, their personal fear of developing dementia, and the dementia literacy level of older adults.…”

Section: Introductionmentioning

confidence: 99%

Dementia Literacy in the Greater Bay Area, China: Identifying the At-Risk Population and the Preferred Types of Mass Media for Receiving Dementia Information

Leung

Molassiotis

Zhang

et al. 2020

IJERPH

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Background: The aim of this cross-sectional study was to assess the dementia literacy of community-dwelling adults in four cities (Hong Kong, Guangzhou, Macau, and Zhuhai) of the Greater Bay Area of China, and to determine their mass media preferences for receiving dementia information. Methods: The survey was completed by 787 community-dwelling adults. Dementia literacy was indirectly measured using two validated scales—the 30-item Alzheimer’s Disease Knowledge Scale and the 20-item Dementia Attitude Scale (DAS). Participants were also asked to indicate whether they wanted to receive dementia information via digital or traditional media. Chi-square tests, logistic regressions, and MANOVA analyses were conducted. Results: Unemployed or retired people had poor attitudes towards dementia and lower levels of knowledge about dementia. Single, cohabiting, or divorced people in Hong Kong and Macau had lower DAS scores than married people. Young people and those with a secondary education preferred to get their dementia information from social media. People with a tertiary education and employed people enjoyed searching government or hospital websites for information. Middle-aged, unemployed, or retired people tended to learn about dementia from television or radio. Conclusion: It is worth educating the public about dementia and developing strategies consistent with their preferences for types of mass media.

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“…, Mkhonto and Hanssen , Zhang et al . ). The ethnicity‐focused dementia awareness trope is also much broader than the assessment of knowledge.…”

Section: Awareness Research and The Ethnic Turnmentioning

confidence: 97%

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

Fletcher

2020

Sociology Health & Illness

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Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia and that interventions should be developed to better educate them. Operationalisations of awareness almost always reference senilitythe traditional notion that dementia is a natural outcome of ageinga widely held belief among many populations. Senility is considered incorrect knowledge in the research literature, and those participants who identify with it are deemed to have poor awareness. Despite the researchers' claims that senility is false, the scientific evidence is inconclusive, and the concept is contested. As such, a large body of research repeatedly positions minority ethnic communities as inferior and in need of re-education based on researchers' questionable assumptions. This issue is bound up with a racialised deficit-model of science communication and wider critiques of psychiatric colonialism. In response, researchers of dementia and ethnicity should reflect on their own awareness and the ways in which they position others in relation to it.

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Dementia Literacy among Community-Dwelling Older Adults in Urban China: A Cross-sectional Study

Cited by 46 publications

References 40 publications

Dementia Literacy in Greater Bay Area, China: Identifying the At-risk Population and the Preferred Mass Media for Receiving Dementia Information

Dementia Literacy in Greater Bay Area, China: Identifying the At-risk Population and the Preferred Mass Media for Receiving Dementia Information

Dementia Literacy in the Greater Bay Area, China: Identifying the At-Risk Population and the Preferred Types of Mass Media for Receiving Dementia Information

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

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