Dementia quality of life instrument – construct and concurrent validity in patients with mild to moderate dementia

Voigt-Radloff, Sebastian; Leonhart, Rainer; Schützwohl, Matthias; Jurjanz, Luisa; Reuster, Thomas; Gerner, Antje; Marschner, Kira; Nes, Fenna van; Graff, Maud; Vernooij-Dassen, M.J.F.J.; Rikkert, M. Olde; Holthoff-Detto, Vjera; Hüll, Michael

doi:10.1111/j.1468-1331.2011.03561.x

Cited by 14 publications

(13 citation statements)

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“…Hence, this instrument was selected. In the meantime, however, a number of other measures have been validated in Germany, such as the Qol-Ad [60], the D-Qol [61], and the QALIDEM [62]. Further research to establish the convergent validity of the ICECAP-O with these instruments would be valuable.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life of Nursing Home Residents with Dementia: Validation of the German Version of the ICECAP-O

et al. 2014

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ObjectivesTo validate the ICECAP-O capability wellbeing measure’s German translation in older people with dementia living in a nursing home, and to investigate the influence of proxy characteristics on responses.MethodCross-sectional study. For 95 residents living in a German nursing home, questionnaires were completed by nursing professionals serving as proxy respondents. We investigated the convergent validity of the ICECAP-O with other Quality of Life (Qol) measures, the EQ-5D extended with a cognitive dimension (EQ-5D+C), the Alzheimer’s Disease Related Quality of Life (ADRQL) measures, and the Barthel-index measure of Activities of Daily Living (ADL). Discriminant validity was investigated using bivariate and multivariate stepwise regression analysis, comparing ICECAP-O scores between subgroups varying in dementia severity, care dependency, ADL status and demographic characteristics.ResultsConvergent validity between the ICECAP-O, EQ-5D+C, ADRQL and Barthel-Index scores was moderate to good (with correlations of 0.72, 0.69 and 0.53 respectively), but differed considerably between dimensions of the instruments. Discriminant validity was confirmed by finding differences in ICECAP-O scores between subgroups based on ADL scores (0.58 below 65 points on the Barthel-index and 0.80 above 65 points) and other characteristics. The ICECAP-O scores based on available tariffs were related to proxy characteristics gender (0.52 males versus 0.65 females) and work experience (0.61 below 2 years of experience versus 0.68 above 2 years).DiscussionThe results of this study suggest that the ICECAP-O is a promising generic measure for general Qol and capability of people with dementia living in a nursing home. Validity tests generally yielded favorable results. Work experience and gender appeared to influence proxy response, which raises questions regarding appropriate proxies, especially since the ICECAP-O may be completed by proxies relatively often. Further research is necessary to validate the German version of the ICECAP-O, with specific attention to proxy completion for people with dementia.

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Section: Discussionmentioning

confidence: 99%

Quality of Life of Nursing Home Residents with Dementia: Validation of the German Version of the ICECAP-O

et al. 2014

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“…Caregiver ratings on the QOL-AD were not correlated with various levels of the person with dementia's cognitive functioning. Criterion related validity was demonstrated with Pearson correlation coefficients for measures of behavioural competence, psychological status, physical function and interpersonal environment [82,84]. Some individual item scores for the person with dementia do not correlate with those of the proxy caregiver [82,84].…”

Section: Methodsmentioning

confidence: 99%

Mobility of Vulnerable Elders (MOVE): study protocol to evaluate the implementation and outcomes of a mobility intervention in long-term care facilities

et al. 2011

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BackgroundAlmost 90% of residents living in long-term care facilities have limited mobility which is associated with a loss of ability in activities of daily living, falls, increased risk of serious medical problems such as pressure ulcers, incontinence and a significant decline in health-related quality of life. For health workers caring for residents it may also increase the risk of injury. The effectiveness of rehabilitation to facilitate mobility has been studied with dedicated research assistants or extensively trained staff caregivers; however, few investigators have examined the effectiveness of techniques to encourage mobility by usual caregivers in long-term care facilities.Methods/DesignThis longitudinal, quasi-experimental study is designed to demonstrate the effect of the sit-to-stand activity carried out by residents in the context of daily care with health care aides. In three intervention facilities health care aides will prompt residents to repeat the sit-to-stand action on two separate occasions during each day and each evening shift as part of daily care routines. In three control facilities residents will receive usual care. Intervention and control facilities are matched on the ownership model (public, private for-profit, voluntary not-for-profit) and facility size. The dose of the mobility intervention is assessed through the use of daily documentation flowsheets in the health record. Resident outcome measures include: 1) the 30-second sit-to-stand test; 2) the Functional Independence Measure; 3) the Health Utilities Index Mark 2 and 3; and, 4) the Quality of Life - Alzheimer's Disease.DiscussionThere are several compelling reasons for this study: the widespread prevalence of limited mobility in this population; the rapid decline in mobility after admission to a long-term care facility; the importance of mobility to quality of life; the increased time (and therefore cost) required to care for residents with limited mobility; and, the increased risk of injury for health workers caring for residents who are unable to stand. The importance of these issues is magnified when considering the increasing number of people living in long-term care facilities and an aging population.Trial RegistrationThis clinical trial is registered with ClinicalTrials.gov (trial registration number: NCT01474616).

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“…A recent review did not identify any Qol instrument for people with dementia that has been validated in Germany [18]. To the best of our knowledge, there are a limited number of Qol instruments that have been translated into German, including the Qol-AD [19], D-Qol [20,21] and QUALIDEM [22]. These instruments have not been fully psychometrically tested.…”

Section: Introductionmentioning

confidence: 99%

Scalability and internal consistency of the German version of the dementia-specific quality of life instrument QUALIDEM in nursing homes – a secondary data analysis

Dichter

Dortmann

Halek

et al. 2013

Health and Quality of Life Outcomes

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BackgroundQuality of life (Qol) is a widely selected outcome in intervention studies. The QUALIDEM is a dementia-specific Qol-instrument from The Netherlands. The aim of this study is to evaluate the scalability and internal consistency of the German version of the QUALIDEM.MethodsThis secondary data analysis is based on a total sample of 634 residents with dementia from 43 nursing homes. The QUALIDEM consists of nine subscales that were applied to a subsample of 378 people with mild to severe dementia and six consecutive subscales that were applied to a subsample of 256 people with very severe dementia. Scalability, internal consistency and distribution scores were calculated for each predefined subscale using the Mokken scale analysis.ResultsIn people with mild to severe dementia, seven subscales, care relationship, positive affect, negative affect, restless tense behavior, positive self-image, social relations and feeling at home, were scalable (0.31 ≤ H ≤ 0.65) and internally consistent (Rho ≥ 0.62). The subscales social isolation (H = 0.28) and having something to do (H = 0.18) were not scalable and exhibited insufficient reliability scores (Rho ≤ 0.53). For people with very severe dementia, five subscales, care relationship, positive affect, restless tense behavior, negative affect and social relations, were scalable (0.33 ≤ H ≤ 0.65), but only the first three of these subscales showed acceptable internal consistency (Rho 0.59 – 0.86). The subscale social isolation was not scalable (H = 0.20) and exhibited poor internal consistency (Rho = 0.42).ConclusionsThe results show an acceptable scalability and internal consistency for seven QUALIDEM subscales for people with mild to severe dementia and three subscales for people with very severe dementia. The subscales having something to do (mild to severe dementia), negative affect (very severe dementia), social relations (very severe dementia) and social isolation (both versions) produced unsatisfactory results and require revision.

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Dementia quality of life instrument – construct and concurrent validity in patients with mild to moderate dementia

Abstract: The DQoL can be used in dementia research for assessing positive and negative affect, feelings of belonging and self-esteem. The findings suggest further research to improve the structure of the scales aesthetics, feelings of belonging and self-esteem.

Cited by 14 publications

References 42 publications

Quality of Life of Nursing Home Residents with Dementia: Validation of the German Version of the ICECAP-O

Quality of Life of Nursing Home Residents with Dementia: Validation of the German Version of the ICECAP-O

Mobility of Vulnerable Elders (MOVE): study protocol to evaluate the implementation and outcomes of a mobility intervention in long-term care facilities

Scalability and internal consistency of the German version of the dementia-specific quality of life instrument QUALIDEM in nursing homes – a secondary data analysis

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