Dementia Research Activity in Sri Lanka: A Review

Abhayasinghe, Kalpani; Dissanayake, Lasith; Benjamin, Saunders; Campbell, Paul; Athula, Sumathipala

doi:10.36959/459/603

J Neurodegener Disord

2020

DOI: 10.36959/459/603

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Dementia Research Activity in Sri Lanka: A Review

Kalpani Abhayasinghe¹,

Lasith Dissanayake²,

Saunders Benjamin³

et al.

Abstract: Background and IntroductionAs a result of the global rise in life expectancy, dementia has become a major global health concern; it is considered to be one of the most burdensome conditions of later life and many older adults will experience and live with dementia in the future [1][2][3][4]. Out of the diseases labelled as a global burden, dementia contributes to 11.2% of disability in people aged 60 and older [5], more so than many other common conditions, including stroke, musculoskeletal disorders, cardiova… Show more

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2024

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Cited by 2 publications

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The impact of cultural practice and policy on dementia care in Nepal

Simkhada,

Magar,

Simkhada

et al. 2024

BMC Geriatr

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Background People’s wider culture plays a vital role in both dementia care and policy. This study aims to explore the cultural practice and policy influence around caring for People Living with Dementia (PLWD) in Nepal. Methods An exploratory qualitative study was designed to investigate dementia care in Nepal. The study comprised four in-depth interviews and four focus group discussions with 29 participants, including family members, health care professionals, and other stakeholders. Data were analysed using thematic analysis. Result Four major themes (each with several sub-themes) were identified: (1) Cultural practice in dementia care; (2) Impact of policy on the dementia care; (3) Service provision; and (4) Education and training. Conclusion There is a need for community-based awareness raising on dementia and its care, to sensitise all relevant stakeholders to meet the needs of PLWD. In addition, capacity building of health workforce is needed to enhance their knowledge of and skills in providing culturally appropriate dementia care.

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The impact of cultural practice and policy on dementia care in Nepal

Simkhada,

Magar,

Simkhada

et al. 2024

BMC Geriatr

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Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey

Jagoda,

Dharmaratne,

Rathnayake

2024

BMC Health Serv Res

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Background Informal carers face difficulties and challenges when dealing with the behavioural and psychological symptoms of dementia (BPSD) of their family members or friends residing at home. Mobile health (mHealth) applications are promising for educating and supporting carers. However, needs analysis studies have not been conducted in Sri Lanka to develop mHealth applications for informal carers of people with dementia. Aims To explore the needs to design an mHealth application for informal carers of people with dementia concerning the management of BPSD. Method An exploratory cross-sectional survey was conducted among a convenience sample (N = 203) of informal carers as a part of developing an mHealth application. Family members, relatives, or friends who lived with people with dementia and provided care on an unpaid basis for more than three months were included. The questionnaire included sociodemographic data, carer-rated prevalence and severity of BPSD, and informal carers’ knowledge of dementia, carer burden, information-seeking sources, availability of smartphones, mHealth information seeking and perception of mHealth information seeking related to managing BPSD. Descriptive analysis and inferential tests were performed. Results Informal carers of people with dementia were predominantly female (70.4%), and 64% showed low knowledge of dementia. Of the participants, 35% reported a high carer burden, 53.7% reported a low burden, and only 11.3% reported no carer burden. Most of their care recipients (97%) had at least one BPSD. The prevalence and severity of BPSD were significantly and positively correlated with the carer burden. The participants’ main source of information was health professionals. Most of them owned smartphones (63.5%), but none used mHealth applications for dementia-related information seeking. Approximately half of the respondents were ready to spend time (52.7%) and money (46.8%) on mHealth information seeking. Perceived mHealth usefulness was significantly associated with dementia knowledge, smartphone ownership, and readiness to spend time and money on mHealth information seeking. Conclusion Informal carers of people with dementia were affected by BPSD in their care recipients. This study explored carers’ educational needs concerning dementia, BPSD, and carer burden. Informal carers could adapt mHealth for dementia-related information seeking. Their unmet needs in managing BPSD should be explored.

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Dementia Research Activity in Sri Lanka: A Review

Cited by 2 publications

References 46 publications

The impact of cultural practice and policy on dementia care in Nepal

The impact of cultural practice and policy on dementia care in Nepal

Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey

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