Dental care in children with Down syndrome: A questionnaire for Belgian dentists

Descamps, Isabelle; Fernandez, Carla; Cleynenbreugel, Diane Van; Hoecke, Yann Van; Marks, Luc

doi:10.4317/medoral.22129

Cited by 13 publications

(20 citation statements)

References 11 publications

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“…In the present study, however, no such relation was found. The reason for this may be that in the study by Norderyd et al, only about 25% of the children with disabilities had DS [27].…”

Section: Dentistmentioning

confidence: 89%

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Parents’ perceptions of oral health, general health and dental health care for children with Down syndrome in Sweden

Stensson

Norderyd

Riper

et al. 2020

Acta Odontologica Scandinavica

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Aim: To describe parental perceptions of general health, oral health and received dental health care in Swedish children with Down syndrome (DS). Methods: Online questionnaire, quantitative data analysis (Chi-square test). Results: Parents of 101 children with DS (52 boys, 49 girls, mean age: 9.6 years) participated. Seventy percent rated their child's general health and 74% their child's oral health as good or very good. Parents, who rated their child's oral health as poor (8%), also reported that dental procedures were difficult. Children received dental care at general (55%) and specialist clinics (53%). Ninety-four percent of parents of children receiving specialist dental health care were satisfied compared to 70% of parents with children in general clinics. The parents most valued characteristics of dental professionals were patience (63%) and their ability to engage the child (68%). Parents wanted multidisciplinary collaboration. Conclusion: Most parents rated their child's general and oral health as good or very good. Children with poor oral health were also reported to have difficulties coping with dental procedures. Parents wanted dental care to be tailored to meet their child's unique needs. They wanted dental professionals to have knowledge about children with a need for special care. Lastly, they requested multidisciplinary collaboration.

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“…In the present study, however, no such relation was found. The reason for this may be that in the study by Norderyd et al, only about 25% of the children with disabilities had DS [27].…”

Section: Dentistmentioning

confidence: 89%

“…Children who find it difficult to interact with people outside of the family have a greater need for customized dental care [25,26]. Therefore, these children often meet specialists in paediatric dentistry [27].…”

Section: Introductionmentioning

confidence: 99%

Parents’ perceptions of oral health, general health and dental health care for children with Down syndrome in Sweden

Stensson

Norderyd

Riper

et al. 2020

Acta Odontologica Scandinavica

View full text Add to dashboard Cite

show abstract

“…Furthermore, parents felt that health care professionals were reactionary towards their children, tried to avoid performing dental procedures, and kept their treatment limited to prescription of painkillers and antibiotics. It seems that health care professionals in primary dental care lack adequate knowledge and skills for providing oral health care for individuals with intellectual disability 32 . It is clear that more efforts are definitely needed to train dentists to manage oral health issues in patients with intellectual disability.…”

Section: Discussionmentioning

confidence: 99%

Failure on all fronts: Qualitative analysis of the oral health care experience in individuals with intellectual disability

Hassona

Aljafari

Atef

et al. 2020

Special Care in Dentistry

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Aim To explore the oral health care experience of individuals with intellectual disability and their families. Methods A qualitative approach utilising face‐to‐face semi‐structured interviews with parents of individuals with intellectual disability. All interviews were audio recorded and transcribed verbatim, and Qualitative Framework Analysis was used to present the results. Results Twenty‐six parents of 26 individuals with intellectual disability were interviewed. The interviewees were 10 males and 16 females, and their average age was 46.4 ± 11.2 years (range 28‐66). The average age of individuals with intellectual disability was 17.9 ± 9.2 years (range 6‐48), and there were 11 (42.3%) males and 15 (57.7%) females. The interviewees reported that challenges to oral health care do occur on multiple levels: (a) home environment; (b) primary dental care; (c) secondary dental care facilities; (d) health and education policies and systems; and (e) societal views on individuals with intellectual disability. Conclusion Individuals with intellectual disability and their families are being failed at multiple levels of oral health care, leaving parents feeling frustrated, isolated, and sometimes helpless. Collaborative efforts are needed to train families to prevent oral health disease at home, establish better primary and secondary oral health care systems, and overcome wider cultural, social, and economic barriers.

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“…These could arguably be one of the most important variables to consider when examining the impact sensory sensitivities may have on oral care, as uncooperative behaviors exhibited during care are reported to be one of the leading barriers to dentists' treatment of children with special healthcare needs. [35][36][37][38][39] Likewise, slightly more parents of children with SOR endorsed that their child had been refused care by a dentist due to their child's behavior problems than parents of SNOR children with DS.…”

Section: Discussionmentioning

confidence: 99%

Association between oral care challenges and sensory over‐responsivity in children with Down syndrome

Duker

Martínez

Lane

et al. 2021

Int J Paed Dentistry

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Background Sensory over‐responsivity has been linked to oral care challenges in children with special healthcare needs. Parents of children with Down syndrome (cDS) have reported sensory over‐responsivity in their children, but the link between this and oral care difficulties has not been explored. Aim To investigate the relationship between sensory over‐responsivity and oral care challenges in cDS. Design An online survey examined parent‐reported responses describing the oral care of their cDS (5–14 years; n = 367). Children were categorized as either sensory over‐responders (SORs) or sensory not over‐responders (SNORs). Chi‐square analyses tested associations between groups (SORs vs. SNORs) and dichotomous oral care variables. Results More parents of SOR children than of SNOR reported that child behavior (SOR:86%, SNOR:77%; p < .05) and sensory sensitivities (SOR:34%, SNOR:18%; p < .001) make dental care challenging, their child complains about ≥3 types of sensory stimuli encountered during care (SOR:39%, SNOR:28%; p = .04), their dentist is specialized in treating children with special healthcare needs (SOR:45%, SNOR:33%; p = .03), and their child requires full assistance to brush teeth (SOR:41%, SNOR:28%; p = .008). No intergroup differences were found in items examining parent‐reported child oral health or care access. Conclusions Parents of SOR children reported greater challenges than parents of SNOR children at the dentist’s office and in the home, including challenging behaviors and sensory sensitivities.

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Dental care in children with Down syndrome: A questionnaire for Belgian dentists

Cited by 13 publications

References 11 publications

Parents’ perceptions of oral health, general health and dental health care for children with Down syndrome in Sweden

Parents’ perceptions of oral health, general health and dental health care for children with Down syndrome in Sweden

Failure on all fronts: Qualitative analysis of the oral health care experience in individuals with intellectual disability

Association between oral care challenges and sensory over‐responsivity in children with Down syndrome

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