DEPIST 21: Information and knowledge of pregnant women about screening strategies including non-invasive prenatal testing for Down syndrome

Wehbe, Karl; Brun, Pauline; Gornet, Marion; Bory, J; Raimond, E.; Graesslin, Olivier; Barbe, Coralie; Duminil, L.

doi:10.1016/j.jogoh.2020.102001

Cited by 5 publications

(1 citation statement)

References 26 publications

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“…The high educational status of participants in this study precludes examination of the potential effectiveness of an app-based tool in people with lower educational levels. More recently, studies have shown that pregnant people in France (Wehbe et al 2020 ) and the USA (Palomaki et al 2017 ) are more knowledgeable about aneuploidy screening and NIPT than previously suggested.…”

Section: Discussionmentioning

confidence: 98%

Multisite assessment of the impact of a prenatal testing educational App on patient knowledge and preparedness for prenatal testing decision making

et al. 2022

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In this study, we wanted to assess the impact of the use of a patient educational app on patient knowledge about noninvasive prenatal testing (NIPT) and preparedness for prenatal screening decision-making. A randomized control study was carried out at three international sites between January 2019 and October 2020. Study participants completed a pre-consultation survey and post-consultation survey to assess knowledge, satisfaction, and preparedness for prenatal screening consultation. Providers completed a post-consultation survey. In the control arm, the pre-consultation survey was completed prior to consultation with their prenatal care provider. In the intervention arm, the pre-consultation survey was completed after using the app but prior to consultation with their prenatal care provider. Mean knowledge scores in the 203 participants using the app were significantly higher pre-consultation (p < 0.001) and post-consultation (p < 0.005) than those not using the app. Higher pre-consultation knowledge scores in the intervention group were observed at all sites. Most (86%) app users stated they were “Satisfied” or “Very Satisfied” with it as a tool. Providers rated the intervention group as more prepared than controls (p = 0.027); provider assessment of knowledge was not significantly different (p = 0.073). This study shows that clinical implementation of a patient educational app in a real-world setting was feasible, acceptable to pregnant people, and positively impacted patient knowledge.

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Section: Discussionmentioning

confidence: 98%

Multisite assessment of the impact of a prenatal testing educational App on patient knowledge and preparedness for prenatal testing decision making

et al. 2022

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Dépistage de la trisomie 21

Goffinet

Anselem²,

Barrois³

et al. 2023

Protocoles Cliniques De Port-Royal en Obstétrique

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Exploring measurement tools used to assess knowledge, attitudes, and perceptions of pregnant women toward prenatal screening: A systematic review

Sacca,

Zerrouki,

Burgoa

et al. 2024

Womens Health (Lond Engl)

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There is a lack of standardized measurement tools globally to assess knowledge, attitudes, and perceptions of expecting women toward prenatal screening. The purpose of this systematic review was to identify reasons women pursue or decline prenatal screening and compare the strengths and limitations of available measurement tools used to assess pregnant women’s perceptions, knowledge, and attitudes toward prenatal screening. This review followed the five-step York methodology by Arksey and O’Malley and incorporated recommendations from the Preferred Reporting Items for Systematic Reviews and Meta-Analysis checklist for the extraction, analysis, and presentation of results. The five steps consisted of: (1) identification of the research questions; (2) searching for relevant studies; (3) selection of studies relevant to the research questions; (4) data charting; and (5) collation, summarization, and reporting of results. Four online databases (PubMed, Embase, Web of Science, and Cochrane Library) were selected after the librarian’s development of a detailed search strategy. The Rayyan platform was used between June 2023 and August 2023 to epitomize the articles produced from our search. A total of 68 eligible studies were included in the analysis. The top five major reasons for declining prenatal screening uptake included (1) being unsure of the risk of prenatal screening and harm to the baby or miscarriage ( n = 15), (2) not considering action such as termination of pregnancy for prenatal screening to be considered as necessary ( n = 14), (3) high cost ( n = 12), (4) lack of knowledge about testing procedures and being anxious about the test ( n = 10), and (5) being worried about probability of false negative or false positive results ( n = 6). Only 32 studies utilized scientifically validated instruments. Difficulties in capturing representative, adequately sized samples inclusive of diverse ethnicities and demographics were pervasive. Findings highlight the need for rigorous validation of research measurement methodologies to ensure the accuracy and applicability of resulting data regarding the assessment of prenatal screening perceptions, knowledge, and attitudes across diverse female populations. Registration: N/A.

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DEPIST 21: Information and knowledge of pregnant women about screening strategies including non-invasive prenatal testing for Down syndrome

Cited by 5 publications

References 26 publications

Multisite assessment of the impact of a prenatal testing educational App on patient knowledge and preparedness for prenatal testing decision making

Multisite assessment of the impact of a prenatal testing educational App on patient knowledge and preparedness for prenatal testing decision making

Dépistage de la trisomie 21

Exploring measurement tools used to assess knowledge, attitudes, and perceptions of pregnant women toward prenatal screening: A systematic review

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