Depression and Anxiety in Pediatric Inflammatory Bowel Disease and Cystic Fibrosis

Burke, Patrick; Meyer, Viveca; Kocoshis, Samuel A.; Orenstein, David M.; Chandra, Ramamurti; Nord, Donna J.; Sauer, Jennifer; Cohen, E. E. W.

doi:10.1097/00004583-198911000-00022

Cited by 109 publications

(63 citation statements)

References 27 publications

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“…Patients with different diseases, however, show differing intensity or type of psychiatric abnormalities. This may be due to differences in illness, the use of different research instruments, social class, ethnicity, the amount of support available to patients, previous treatments and self-coping strategies [27,28]. …”

Section: Discussionmentioning

confidence: 99%

Quality of life of Iranian β-thalassaemia major patients living on the southern coast of the Caspian Sea

Khani

Majdi²,

Marzabadi³

et al. 2012

East Mediterr Health J

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In the present study, the aim was to explore the quality of life of thalassaemia major (TM) patients according to age, sex, school performance, severity and complications of the disease. A cross-sectional descriptive study was conducted. Quality of life was evaluated by 4 questionnaires; demographic characteristics, the short form 36 health survey (SF-36), Persian version of symptoms checklist-90-revised (SCL-90-R) and life satisfaction index (LSI). 687 (41.08%) of the eligible patients with TM completed the questionnaires. With the SF-36 questionnaire, 329 (47.9%) participants had an excellent level of physical functioning. With the SCL-90-R questionnaire, 446 (64.9%) participants had a global severity index of > 0.7, considered psychiatric patients, 141 (20.5%) patients had GSI between 0.4 and 0.7, considered suspected psychiatric patients and 100 (14.6%) participants had GSI of < 0.4, considered non-psychiatric patients. The mean score of LSI questionnaire was 20.50 (SD 5.95), range 2-37. Beta-TM patients are at risk of psychiatric symptoms and need appropriate psychiatric counselling. Qualité de vie de patients iraniens atteints de β-thalassémie majeure vivant sur la côte sud de la mer Caspienne RÉSUMÉ La présente étude vise à examiner la qualité de vie de patients atteints de thalassémie majeure en fonction de l'âge, du sexe, des résultats scolaires, et de la gravité et des complications de la maladie. Une étude descriptive transversale a été menée. Dans cette étude, la qualité de vie a été évaluée au moyen de quatre outils : les caractéristiques démographiques, le questionnaire d'évaluation de la santé SF-36 en version abrégée, la version en persan de l'échelle de symptômes SCL-90-R et l'indice de satisfaction de vie. Parmi les patients éligibles souffrant de thalassémie majeure, 687 d'entre eux (41,08 %) ont rempli les questionnaires. Selon les résultats du questionnaire SF-36, 329 participants (47,9 %) avaient un excellent niveau de capacité physique fonctionnelle. En tout, 446 participants (64,9 %) ont obtenu un indice de sévérité global de plus de 0,7 (patients psychiatriques) au questionnaire SCL-90-R ; 141 participants (20,5 %) présentaient un indice de sévérité global allant de 0,4 à 0,7 (patients psychiatriques présumés) ; et 100 participants (14,6 %) avaient des résultats inférieurs à 0,4 (patients non psychiatriques). Le score moyen au questionnaire d'indice de satisfaction de vie était de 20,50 (± 5,95, extrêmes 2-37). Les patients souffrant de β-thalassémie majeure risquent de présenter des symptômes psychiatriques et ont donc besoin d'un accompagnement dans ce domaine.

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Section: Discussionmentioning

confidence: 99%

Quality of life of Iranian β-thalassaemia major patients living on the southern coast of the Caspian Sea

Khani

Majdi²,

Marzabadi³

et al. 2012

East Mediterr Health J

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“…Depressed mood was also significantly associated with anxiety and impaired HRQOL and more IBD relapse in adults with IBD. 56 Several studies have found that adolescents with IBD are more depressed than children with other diseases [57][58][59][60] with rates up to 25%. 20 In adults with IBD, sleep quality was significantly inversely correlated with IBD activity 61 and could also have a significant impact on HRQOL.…”

Section: Psychosocial/psychological Factorsmentioning

confidence: 99%

Strategies to improve quality of life in adolescents with inflammatory bowel disease

Karwowski

Keljo

Szigethy

2009

Inflammatory Bowel Diseases

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Inflammatory bowel disease (IBD), which encompasses Crohn's disease (CD) and ulcerative colitis (UC), are chronic and debilitating conditions with unpredictable courses and complicated treatment. Pediatric IBD carries implications that extend beyond the health of the gastrointestinal tract. When these lifelong illnesses are diagnosed during adolescence, a critical developmental period, the transition to adulthood can be even more turbulent. Like other chronic diseases of childhood, patients with IBD are at risk for depression, anxiety, social isolation, and altered self-image, which can all negatively affect health-related quality of life (HRQOL). The review will draw from pertinent adult and pediatric literature about HRQOL over the past 10 years using a PubMed literature search to summarize instruments with which HRQOL is measured, and address factors that affect HRQOL in adolescents and young adults with IBD. Psychosocial interventions that have been utilized to improve quality of life in this population will also be covered. Identifying patients with impaired quality of life is of paramount importance, as is implementing strategies that may improve HRQOL, so that they may have an easier transition to adulthood while living with IBD.

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“…Bu çalışmalarda annelerde %20-53 arasında depresyon/depresif belirti ve %18-57 arasında anksiyete bozukluğu/belirtileri bildirilmiştir (2,5,6,10,28). Bizim araştırmamızda KF grubunda %28.6 oranında psikopatoloji ile uyumlu puan alan anne bulunmaktadır.…”

Section: Bulgularunclassified

Psychiatric Symptoms, Parental Attitudes and Coping Strategies in Mothers of Children with Cystic Fibrosis

Dinç

Özçeli̇k

Çöp

et al. 2017

Turkish J Pediatr Dis

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ÖzETAmaç: Kistik Fibrozis (KF), hem çocuğu hem aile sistemini etkileyen kronik bir hastalıktır. Hastalığın getirdiği yükle birlikte ailenin ruhsal durumu etkilenebilmekte, aile işlevlerinde sorunlar yaşanabilmektedir. Baş etme becerileri, kişinin ruhsal uyumunu belirlemede önemlidir. Çalışmada, KF tanısı ile izlenen çocukların annelerinde psikiyatrik belirtiler, ebeveynlik tutumları ve baş etme becerilerinin değerlendirilmesi ve psikiyatrik belirtiler ile baş etme becerileri, ebeveynlik tutumlarının ilişkisinin incelenmesi amaçlanmıştır. Bulgular: KF'li çocukların annelerinde Belirti Tarama Listesiyle belirlenen tüm puanlar kontrol grubundan yüksek bulundu. Bunun yanı sıra, bu annelerin aşırı koruyuculuk ve sıkı disiplin puanları da yüksekti. Başa Çıkma Tutumları Öl-çeğinde soruna odaklanma ve duyguları açığa vurma, inkâr, dini olarak başa çıkma ve kabullenme alt ölçek puanları KF'li çocukların annelerinde kontrol grubundan istatistiksel olarak anlamlı düzeyde yüksek bulunurken; şakaya vurma, duygusal sosyal destek kullanımı ve plan yapma alt ölçekler puanları ise KF'li çocukların annelerinde daha düşük olarak saptandı. KF'li çocukların annelerinde Belirti Tarama Listesi-Genel Belirti Düzeyi kesim noktası "1" olarak alındığında, psikopatolojiyle uyumlu puan alan KF'li çocukların annelerinde, ev kadınlığı rolünü reddetme ve evlilik çatışması puanları psikopatolojiyle uyumlu puan almayan annelere göre yüksek bulundu. Belirti Tarama Listesi-Genel Belirti Düzeyine göre muhtemel psikopatolojisi olan KF tanılı çocukların annelerinde Başa Çıkma Tutumları da değerlendirildi. Bu annelerde zihinsel boş verme, inkar, duygusal sosyal destek kullanımı ve uyum bozan başa çıkma yollarına ilişkin puanları istatistiksel olarak daha yüksek düzeydeydi. Gereç veSonuç: Çocukları KF tanısı ile izlenen annelerde hem baş etme becerileri ve evlilik ilişkisi hem de ruhsal sağlık olumsuz olarak etkilenmektedir. Ülkemizde KF'li çocuğa sahip annelerin baş etme becerilerini geliştirecek ve psikososyal destek sağlayacak çalışmalara gereksinim bulunmaktadır.Anahtar Sözcükler: Anne, Başa çıkma, Çocukluk, Ebeveyn, Kistik fibrozis, Psikopatoloji ABSTrAcTObjective: Cystic fibrosis (CF) is a chronic disease affecting both the child and the family system. The mental state of the family can be affected with the burden brought on by the disease, and family functioning can become problematic. Coping abilities and strategies are important in determining the psychological adjustment in difficult situations. The aim of this study was to evaluate psychiatric symptoms, parental attitudes and coping strategies in mothers of children with CF and to examine the relationship of psychiatric symptoms with parental attitudes and coping skills. Material and Methods:The study included the mothers of 35 children with CF and of 40 children with acute medical problems and no chronic diseases. The Symptom Checklist-90-Revised, the COPE inventory, the Parent Attitude Research Instrument and the sociodemographic information form were used in the evaluation of the subjects...

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Depression and Anxiety in Pediatric Inflammatory Bowel Disease and Cystic Fibrosis

Cited by 109 publications

References 27 publications

Quality of life of Iranian β-thalassaemia major patients living on the southern coast of the Caspian Sea

Quality of life of Iranian β-thalassaemia major patients living on the southern coast of the Caspian Sea

Strategies to improve quality of life in adolescents with inflammatory bowel disease

Psychiatric Symptoms, Parental Attitudes and Coping Strategies in Mothers of Children with Cystic Fibrosis

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