Depression and psychosocial burden among caregivers of children with chronic kidney disease

Abstract

Background More attention has recently targeted families of children with chronic kidney diseases displaying depressive symptoms and major psychosocial burden due to the long-standing nature of the illness and its alarming complications. A cross sectional comparative study was conducted to assess the rate of occurrence of both depression severity and psychological burden, personal and role strain in a sample of Egyptian caregivers of children with chronic kidney disease. Results Thirty caregivers of children with CKD were enrolled compared to 30 matched controls during a 6-month period. A short pre-designed sheet including socio-demographic data, and general medical, psychiatric and family history was used, and Beck Depression Inventory, Zarit Burden Interview, Holmes and Rahe Socioeconomic Stress Scale, and Occupational Stress Questionnaire were answered. More than half of the caregivers of children with chronic kidney disease reported moderate depression (53.3%), while 30% and 16.7% reported mild and severe depression respectively. The majority of cases 80% had moderate psychological burden. And 70% of cases reported minimal socioeconomic stress compared to 40% in the control. Logistic regression analysis showed that ZBI and SRRS scores were significantly linked to depression and burden found in caregivers of children with CKD (P = 0.001 and 0.031) respectively. Conclusion The rate of occurrence of depression and psychological burden is significantly high in caregivers of children with chronic kidney disease; therefore, this population must be assessed and provided with liaison psychological rehabilitation.

Chronic kidney disease and the global public health agenda: an international consensus

“…Of note, in advanced CKD, quality of life is worse in women than in men 107 . Moreover, having a person with CKD in the family adversely impacts the mental health of caregivers, 30-50% of whom report symptoms of anxiety or depression [110][111][112][113] .…”

Baseline characteristics of participants in the NAVKIDS2 trial: a patient navigator program in children with chronic kidney disease

“…Caregivers of children with CKD are burdened with the responsibility of keeping up with numerous appointments, ensuring adherence to (often multiple) medications, monitoring diet and fluid restrictions, performing time-consuming and involved technical procedures such as home dialysis, and advocating for their child's health care needs [8]. Consequently, caregivers may experience high levels of physical and psychosocial stress [9][10][11].…”

“…Prior work has shown that children with CKD whose caregivers are unemployed, have lower incomes, poorer selfperceived financial status and lack of home ownership are at least twice as likely to experience poor to fair overall health compared to children with more affluent caregivers [14,15]. Health inequities in these children are likely to reflect multiple factors including poor access to primary or specialty care, complex health care systems, rigorous and burdensome treatment regimens, lack of awareness of resources, and geographic and language barriers [9][10][11]17]. The quality of care that these children receive are further influenced by the conflicting priorities and psychosocial stressors faced by the caregivers that can be related to depleting resources caused by continual medical treatment, fatigue and exhaustion from the burden of caring, the demands of tending to family members (e.g., siblings of the patient), and providing financial support to the family [9,18].…”

Hubungan Lama Merawat dan Tingkat Pendidikan dengan Beban Keluarga Sebagai Caregiver dalam Merawat Pasien Penyakit Ginjal Kronik yang Menjalani Hemodialisis

“…Intervensi kesehatan masyarakat harus dikembangkan dan diimplementasikan untuk meningkatkan kualitas hidup pasien GGK (Mahato, 2020). Terjadi peningkatan kejadian depresi dan beban psikologis secara signifikan tinggi pada Caregiver anak-anak dengan penyakit ginjal kronis (Mahmoud, 2021). Hasil penelitian di atas menujukan bahwa begitu pentingnya peran dari keluarga pasien dengan GGK yang menjalani hemodialisis, peran ini hendaknya jangan menjadi beban bagi keluarga sebagai caregiver, maka tujuan penelitian ini adalah untuk mengetahui hubungan lama merawat dan tingkat pendidikan dengan beban keluarga sebagai caregiver dalam merawat pasien penyakit ginjal kronik yang menjalani hemodialisis.…”