Depression, caregiver burden and social support among caregivers of retinoblastoma patients in China

Wang, Lijuan; Zhong, Wenxiang; Ji, Xunda; Chen, Jiao

doi:10.1111/ijn.12458

Cited by 45 publications

(43 citation statements)

References 32 publications

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“…The SSRS total score ranges from 0 to 66 (0–22 = slight social support; 23–44 = moderate social support; 45–66 = extensive social support). The SSRS has been used in a wide range of Chinese populations because of its high reliability and validity, with a Cronbach alpha of 0.92[ 36 ].…”

Section: Methodsmentioning

confidence: 99%

Factors associated with willingness to enter long-term care facilities among older adults in Chengdu, China

et al. 2018

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ObjectiveTo describe Chinese older adults’ willingness to enter long-term care facilities and to examine individual factors associated with the willingness of using this growing model of long-term care in China.MethodsA cross-sectional study involving a random sample of 670 adults aged 60+ in the Hezuo community in Chengdu, China in 2016. Respondents were interviewed by trained staff on socio-demographics, health status, quality of life, social support, and willingness to enter long-term care facilities.ResultsOnly 11.9% of the respondents were willing to enter long-term care facilities for meeting their medical and social service needs. Multivariable logistic regression analysis showed that willingness to enter long-term care facilities was associated with higher household income (OR = 4.55, 95% CI:1.72–12.00), insurance of Urban Resident Basic Medical Insurance (OR = 4.80, 95% CI:1.17–19.67) and unemployment (OR = 0.48, 95% CI:0.24–0.99). Among those who were willing to enter long-term care facilities, an overwhelming majority (81.2%) would prefer going to a facility within 30-minute walking distance from their current residence, 82.5% indicated the need of nursing care, and 90.0% expected a partnership between the long-term care facility and a large hospital.ConclusionsA minority of older Chinese were willing to receive long-term care delivered at a facility within walking distance from their current residence. Recent policy aimed at increasing the supply of long-term care facilities may not be consistent with consumer preference for home and community-based care. Balancing investment between home and community-based care, and establishing long-term care insurance remain the top priorities for long-term care research and policy development in China.

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Section: Methodsmentioning

confidence: 99%

Factors associated with willingness to enter long-term care facilities among older adults in Chengdu, China

et al. 2018

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“…At the same time, an increasing body of literature argues that dementia caregivers under higher objective burden are not necessarily feeling higher subjective burden, mainly due to the buffering role of intrapersonal and interpersonal resources for the caregivers [11][12][13]. In dementia caregiving, interpersonal resources refer to the instrumental and psychological supports from the state, community, and from family members [14]. As a type of interpersonal resource, social support's buffering effect on dementia caregivers' subjective burden has been well documented [15,16].…”

Section: Introductionmentioning

confidence: 99%

Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support

Yan-chun

Yang

2020

IJERPH

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Caregiving burden significantly effects the physical and mental health of family dementia caregivers. While the association between objective caregiving burden (OCB) and subjective caregiving burden (SCB) of family dementia caregivers is well documented, little is known as with how the association is moderated by the configuration of intrapersonal resource (e.g., immanent justice reasoning) and interpersonal resource (e.g., social support). The present study collected cross-sectional data on 157 major family caregivers of non-institutionalized persons with dementia in an urbanizing region of Western China’s Sichuan Province. They responded to questions on daily time spent on caregiving, the short version of Zarit Burden Interview (ZBI), a sub-scale of a caregiver meaning scale, Social Support Rating Scale (SSRS), and demographic questions. Controlling for the demographic variables of the caregivers, this study found that the objective and subjective dementia caregiving burden were significantly associated (p < 0.001), and immanent justice reasoning was positively correlated with subjective burden (p < 0.01). Moreover, the association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both high (p < 0.001), but neutral when social support was high and immanent justice reasoning was low. The association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both low (p < 0.05), but neutral when social support was low and immanent justice reasoning was high. This research suggests the importance of developing intervention programs that consider the configuration of the external supporting resources and internal meaning-making of caregiving of the family dementia caregivers.

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“…The enormity of this responsibility for cancer caregivers and its concomitant burden are associated with a wide range of health impairments for caregivers (Shaffer et al, 2018a). In this regard, it is noted that the CB of cancer patients is associated with depression and feelings such as grief, fear, loneliness, and helplessness (Wang et al, 2016). In addition, CB is associated with significant sleep disturbances with such sleep loss contributing to greater anxiety and depression, and an impaired quality of life for caregivers (Shaffer et al, 2018a).…”

Section: Introductionmentioning

confidence: 99%

Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment

et al. 2019

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Objective The present study examined the extent to which social support (SS) availability and satisfaction could predict the extent of caregiver burden (CB) among mothers of children with Acute Lymphocytic Leukemia (ALL). Method The study was a cross-sectional, descriptive-correlative study. It was conducted on a sample of 117 mothers whose children were undergoing treatment in a public hospital in Bam, Iran. The Norbeck Social Support Scale and the Caregiver Burden Scale were used to measuring study variables. The data were analyzed using Pearson's correlations, t-tests, ANOVAs, and linear regressions. Results Significant correlations were observed between CB and SS availability (r = −0.499, p < 0.001), SS satisfaction (r = −0.543, p < 0.001), the age of the child with cancer (r = −0.22, p = 0.01), and duration of treatment (r = 0.336, p < 0.001). Married mothers experienced less CB than those that were widowed or divorced. Within the regression equation, SS satisfaction, SS availability, marital status, and duration of treatment were the predictors of CB. Significance of results Based on the results of the current study, mothers who have less SS, especially those who are single mothers, with younger children, and who have taken care of their child for an extended duration should be given special attention. Furthermore, it appears that there are distinct cultural variations amongst Iranian mothers which suggest that culture may impact upon SS availability. Results also suggest a need for interventions that enhance nurses' ability to provide support to caregivers and the broader family unit as a whole. Nurses in cancer care need to have psychological competencies to help family members of cancer patients especially mothers and more so those that are single mothers. As integral members of the patient care experience, nurses may be uniquely positioned to provide this needed psychosocial support.

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Depression, caregiver burden and social support among caregivers of retinoblastoma patients in China

Cited by 45 publications

References 32 publications

Factors associated with willingness to enter long-term care facilities among older adults in Chengdu, China

Factors associated with willingness to enter long-term care facilities among older adults in Chengdu, China

Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support

Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment

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