Depression in informal caregivers of persons with dementia

D’Aoust, Rita; Brewster, Glenna; Rowe, Meredeth A.

doi:10.1111/opn.12043

Cited by 35 publications

(26 citation statements)

References 67 publications

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“…The findings also highlight how the severity of the dementia is associated with poor relationship quality (Bauer et al, 2001;Rankin et al, 2001;de Vugt et al, 2003;Clare et al, 2012). This is not surprising, given that carers often experience significant stress, burden, and depressive symptoms when the demands of the carer role become overwhelming (Etters et al, 2008;D'Aoust et al, 2015). These symptoms reduce the carer's capacity to provide care (Etters et al, 2008;Leach et al, 2014) and lead to the carer developing negative feelings toward the PWD, and feeling consumed by the carer role (Michon et al, 2005).…”

Section: Discussionmentioning

confidence: 99%

Is it all bleak? A systematic review of factors contributing to relationship change in dementia

Conway

Watson

Tatangelo

et al. 2018

Int. Psychogeriatr.

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Section: Discussionmentioning

confidence: 99%

Is it all bleak? A systematic review of factors contributing to relationship change in dementia

Conway

Watson

Tatangelo

et al. 2018

Int. Psychogeriatr.

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“…Although caregiving is satisfying for some caregivers, 3–5 it can also be very burdensome. 6 7 Caregivers often experience higher rates of depression, 8 poorer physical and mental health, 9–11 a lower sense of well-being, more social isolation 12 and more financial burden 13 than people who do not provide care. The likelihood of nursing home admission for the person with dementia rises when their caregiver becomes overburdened and can no longer cope.…”

Section: Introductionmentioning

confidence: 99%

Testing the effectivity of the mixed virtual reality training Into D’mentia for informal caregivers of people with dementia: protocol for a longitudinal, quasi-experimental study

et al. 2017

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IntroductionInformal caregivers for people with dementia (hereafter: caregivers) often feel (over)burdened by the care for a loved one with dementia, and this can have various deleterious effects on both caregivers and patients. Support for caregivers is urgently needed, and for this reason, a dementia simulator (Into D’mentia) was developed in which caregivers experience what it is like to have dementia. The simulator attempts to heighten caregivers’ empathy and understanding for the patient and, in turn, diminish their own caregiver burden. The current study evaluates whether the simulator is effective on a number of outcomes.Methods and analysisA longitudinal, quasi-experimental study is ongoing in the Netherlands. We aim to recruit 142 caregivers in total divided over two groups: 71 caregivers in the intervention group and 71 caregivers in the control group. All participants will complete interviews and questionnaires at four time points: at baseline, 1 week, 2.5 months and 15 months after the training. The primary outcomes include empathy, caregiver burden, caregiver’s sense of competence, social reliance, anxiety, depression and caregivers’ subjective and objective health.Ethics and disseminationThis study is being carried out in agreement with the Declaration of Helsinki, and the protocol has been approved by the local ethics committees.Registration detailsThis study is registered with The Netherlands National Trial Register (NNTR5856).

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“…Caregiver depression and burden: Caregiving for a family member with dementia is stressful and exhausting. It is associated with depression, anxiety, hostility and poor self-reported physical health [11][12][13][14]. In fact, caregiving has been likened to being exposed to a severe, long-term stressor [15].…”

Section: Literature Reviewmentioning

confidence: 99%

Evaluating a Multi-Component Spanish Caregiver Monolingual Intervention

Huynh-Hohnbaum¹

2016

CMPH

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Approximately 15 million people are informal caregivers for older adults with Alzheimer's disease or other dementias; this number is poised to grow significantly as the older adult population expands far more quickly than other population segments [1]. The USA Hispanic elder population is expected to have one of the largest growths. The USA Census projections find that over the next five decades, the Hispanic population age 65+ is expected to increase 592% between 2000 and 2050 to 17.5 million [2]. While Hispanics have better mortality outcomes, they have worse morbidity, higher disability rates, poorer self-rated health, and more functional difficulties and chronic health conditions (e.g., diabetes, high blood pressure) compared to their non-Hispanic Whites counterparts [3,4]. Hispanic older adults are approximately 2.5 times more likely to have dementia than elderly non-Hispanic white adults [5]. According to the Alzheimer's Association, one of the reasons Hispanics has an increased risk of Alzheimer's disease and other dementia is because

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Depression in informal caregivers of persons with dementia

Abstract: Both caregivers' affect and perceived burden are strongly related to depressive symptoms, so healthcare practitioners need to frequently assess both so as to provide timely interventions.

Cited by 35 publications

References 67 publications

Is it all bleak? A systematic review of factors contributing to relationship change in dementia

Is it all bleak? A systematic review of factors contributing to relationship change in dementia

Testing the effectivity of the mixed virtual reality training Into D’mentia for informal caregivers of people with dementia: protocol for a longitudinal, quasi-experimental study

Evaluating a Multi-Component Spanish Caregiver Monolingual Intervention

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