Descriptive survey about causes of illness given by the parents of children with cancer

Bernardi, Matteo; Pierluigi, Badon

doi:10.1016/j.ejon.2007.08.003

Cited by 9 publications

(5 citation statements)

References 18 publications

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“…Other studies have confirmed that in some cases parents do respond to a child's genetic diagnosis with feelings of guilt or attributions of blame. [10][11][12] On the other hand, parents may have concerns that other parenting decisions they made led to their child's illness 13 and believe that a genetic diagnosis could relieve these feelings of culpability. 14 In two studies with parents of children with disabilities, participants reported feeling absolved of guilt and blame upon learning that there was a genomic explanation for their child's condition.…”

Section: Introductionmentioning

confidence: 99%

Responsibility, culpability, and parental views on genomic testing for seriously ill children

Malek

Pereira

Robinson

et al. 2019

Genetics in Medicine

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Section: Introductionmentioning

confidence: 99%

Responsibility, culpability, and parental views on genomic testing for seriously ill children

Malek

Pereira

Robinson

et al. 2019

Genetics in Medicine

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“…With the possible exception of AIDS, no disease evokes greater insecurity and fear than cancer. According to Matteo and Pierluigi (2008), this fear resonates because of the association of cancer with the idea of death, pain, uncertainty and powerlessness. Whilst there are no accurate published statistics on the incidence of childhood cancer, preliminary data suggests that South Africa has an annual prevalence rate of 70-80 cases per 1 million children (Poole, 2003).…”

mentioning

confidence: 99%

To Tell or not to Tell; The Childhood Cancer Conundrum: Parental Communication and Information-Seeking

Jithoo

2010

South African Journal of Psychology

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Information seeking and good communication have acquired increasing importance in aiding people to cope with cancer. The purpose of this study was to investigate parents' perceptions of their knowledge-seeking behaviour, experience of the communication process and to identify what support and guidance they may have desired. In this study 100 parents of children (6 to 18 years of age) diagnosed with cancer were interviewed. Interviews were analysed using thematic content analysis Parents' narratives revealed the following themes: most did not want nor seek information beyond that volunteered; communicating about the illness was generally limited to physiological and medically related matters, with emotional issues being rarely articulated; parents felt overwhelmed by the emotional experience of their child's illness and expressed the need for psychosocial services. This study concludes that: (i) information is not in every instance a sought after resource; (ii) communication is complex and whilst open communication is generally advocated it is not always desired or required as there may be context related factors that may militate against it; and (iii) psychosocial support could facilitate understanding of the cognitive, social and emotive trajectory associated with childhood cancer.

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“…Sin embargo, el cáncer infantil no solo significa un reto para el niño, sino también para su cuidador familiar, que por lo general es su madre o padre (Anderzén-Carlsson et al, 2010;Barrera et al, 2006;Cline et al, 2006;Matteo y Pierluigi, 2008;Patistea y Babatsikou, 2003;Pöder et al, 2010;Sánchez et al, 2008;Santo et al, 2011).…”

Section: Introductionunclassified

Cuidador familiar del niño con cáncer: un rol en transición

Carreño-Moreno

Díaz

Blanco-Sánchez

2017

Rev. latinoam. bioet

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Convertirse en cuidador familiar de un niño con cáncer implica ejercer un nuevo rol, el cual se construye en la interacción con otros significativos. Objetivo. Integrar los hallazgos derivados de investigación que evidencian que el ser cuidador de un niño con cáncer denota un rol en transición. Materiales y métodos. Revisión integrativa de literatura que incluyó búsqueda sistemática de literatura, lectura crítica de las publicaciones, integración de hallazgos con apoyo en Atlas Ti versión 7 en un proceso de comparación constante; 46 artículos constituyeron el insumo para la revisión. Resultados. El cuidador del niño con cáncer pasa por una transición de su rol, la cual es de tipo salud – enfermedad, que se caracteriza por tener un patrón múltiple, simultáneo y relacionado. Con frecuencia el cuidador presenta insuficiencia de su rol durante la transición, por lo que intervenir sobre el conocimiento y preparación para el ejercicio del rol es clave. Los cuidadores familiares que han recibido apoyo para el ejercicio de su rol, mejoran sus habilidades para resolver problemas y conocimientos acerca del cuidado, lo que impacta en su calidad de vida, estado de ánimo y resultados de salud en su receptor de cuidados. Conclusión. Se requieren intervenciones para mejorar las condiciones de transición en el rol del cuidador de niño con cáncer, preparar al cuidador para ejercer su rol con suficiencia mejora sus resultados y los de su receptor de cuidados.

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Descriptive survey about causes of illness given by the parents of children with cancer

Cited by 9 publications

References 18 publications

Responsibility, culpability, and parental views on genomic testing for seriously ill children

Responsibility, culpability, and parental views on genomic testing for seriously ill children

To Tell or not to Tell; The Childhood Cancer Conundrum: Parental Communication and Information-Seeking

Cuidador familiar del niño con cáncer: un rol en transición

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