Determinants of Burden in Family Caregivers of Individuals With Schizophrenia: A Systematic Review

Sustrami, Dya; Yusuf, Ah.; Fitryasari, Rizki; Suhardiningsih, A.V. Sri; Arifin, Hidayat

doi:10.3928/02793695-20220804-02

Cited by 9 publications

(7 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Despite suffering from various physical and mental problems related to the caregiving role, caregivers of individuals with schizophrenia often do not receive supportive healthcare services to assist them in their well-being [10]. Family caregivers of individuals with schizophrenia must be empowered to improve resilience and acceptance in caring for these individuals [11]. The findings suggest that interventions to strengthen the Sense of coherence (SOC) are necessary to support and promote the well-being of family caregivers who care for persons with schizophrenia [12,13].…”

Section: Introductionmentioning

confidence: 99%

Impact of Watson’s human caring-based health promotion program on caregivers of individuals with schizophrenia

Bagheri

Zarshenas

Rakhshan

et al. 2023

BMC Health Serv Res

View full text Add to dashboard Cite

Background Caring for people with schizophrenia is accompanied by challenges that impact caregiver health. We conducted this study to explore the effect of a Caring Science-Based health promotion program on the sense of coherence and well-being among caregivers of persons with schizophrenia. Methods This randomized clinical trial with the Solomon four-group design was conducted on 72 caregivers randomly allocated into two intervention and two control groups. A health promotion program based on Watson’s theory was performed individually through five face-to-face sessions and a four-week follow-up. Settings were the psychiatric centers of the three educational, specialty, and subspecialty Ibn-e-Sina, Moharary, and Hafez hospitals affiliated with Shiraz University of Medical Sciences (SUMS), south of Iran. The data were collected using a demographic information form, the Sense of Coherence Scale, and the Caregiver Well-Being Scale. One-way ANOVA, chi-square, Kruskal–Wallis, and independent t-test were used to determine the homogeneity at baseline. In the post-test, multiple between-groups and pairwise comparisons were assessed by One-way ANOVA and Tukey’s post-hoc. Within-group comparisons were evaluated using paired t-tests. All tests were two-tailed, and the statistical level was considered 0.05. Results Data analysis showed that the mean scores of caregiver sense of coherence and well-being from pre-intervention to post-intervention were significantly increased in the intervention groups (p < 0.001). At the same time, there were no significant differences in the control groups. Conclusion The health promotion program based on Watson’s human caring theory facilitated ongoing intrapersonal, and holistic caring and improved the sense of coherence and well-being in caregivers of persons with schizophrenia. Hence, this intervention is recommended for developing healing care programs. Trial registration https://www.irct.ir/trial/55040: IRCT20111105008011N2 (11/04/2021).

show abstract

Section: Introductionmentioning

confidence: 99%

Impact of Watson’s human caring-based health promotion program on caregivers of individuals with schizophrenia

Bagheri

Zarshenas

Rakhshan

et al. 2023

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…In previous studies, disease type ( 10 , 61 ) and trajectory ( 63 ) were reported to affect the caregiver burden. In particular, the caregiver burden is high for dementia ( 61 ), stroke ( 12 ), and schizophrenia ( 19 ). In cases of dementia, the caregiver burden differs depending on the type of dementia (Lewy body disease > Alzheimer’s disease) ( 61 ).…”

Section: Discussionmentioning

confidence: 99%

“…Care-recipient factors influencing care burden were physical disability (11)(12)(13), mental dependency (11), and behavioral and psychological symptoms of dementia (13). Caregiver factors were gender (11), age (13)(14)(15), satisfaction with care (16), caring time (10,17,18), duration of caregiving (11), care attitude (19), and stress (6,11). Lastly, the utilization of community services (20) and perceived social support (11,20) were social factors reported to affect caregiver burden of care.…”

Section: Introductionmentioning

confidence: 99%

The moderating effect of care time on care-related characteristics and caregiver burden: differences between formal and informal caregivers of dependent older adults

Oh,

Moon,

Chung

et al. 2024

Front. Public Health

View full text Add to dashboard Cite

ObjectiveThis study examined differences in care burden between formal and informal caregivers of dependent older adults according to care-related characteristics, and whether care time had a moderating effect on the relationship between care-related characteristics and caregiver burden.MethodsParticipants were formal (n = 520) and informal caregivers (n = 142) of dependent older adults in South Korea. Caregiver burden was measured using the Korean version of the Zarit Burden Interview. Data were analyzed using hierarchical regression with interaction terms and moderation analysis.ResultsCaregiver burden was higher for informal caregivers than formal caregivers. Factors associated with an increased risk of caregiver burden in both formal and informal caregiver of dependent older adults were caregivers’ stress, physical strain, and care time. Care time significantly moderated the relationship between care attitude and care burden only among formal caregivers. When formal caregivers’ care time was 1 standard deviation higher than the mean value, care attitude was significantly associated with care burden (bsimple = −0.903, SE = 0.106, p < 0.001).ConclusionThe caregiver burden of dependent older adults can be reduced by providing interventions to attenuate the effects of modifiable risk factors that were identified in this study. And to weaken the relationship between care attitude and burden of formal caregivers who have long care hours, a positive social atmosphere for care should be provided in addition to education. To realize sustainable care, policy considerations that reflect the results of this study will help solve the problem of formal and informal caregiver burden of dependent older adults.

show abstract

“…However, the treatment of persons with schizophrenia also places economic burdens on families [ 14 ]. In addition to emotional problems, most family members have been found to experience financial problems that affect their quality of life [ 15 ]. More importantly, the recovery of people with schizophrenia is closely linked to family circumstances, such as family economic status [ 16 , 17 ].…”

Section: Introductionmentioning

confidence: 99%

Characteristics of Families with Members Going Out for Work and Associated Factors among Persons with Schizophrenia in Rural China

et al. 2022

View full text Add to dashboard Cite

Background: The characteristics associated with having family members going out for work among persons with schizophrenia in rural China are unknown. This study aimed to explore the characteristics of families with members going out for work and the risk factors among persons with schizophrenia in a rural area of China. Methods: This study employed a cross-sectional dataset from a mental health survey, using the International Classification of Disease, Tenth Revision (ICD-10), conducted among 152,776 people aged 15 years and older in Xinjin District, Chengdu, China, in 2015. Results: A total of 598 persons with schizophrenia were included in this study, and 20.4% (n = 122) of them had at least one family member who went out for work. Compared with those without family going out for work, participants with family going out for work had significantly larger numbers of family members, higher monthly incomes and lower percentages of social low-income insurance. Participants with family going out for work were more likely to be females, married and with higher levels of subjective and instrumental support. The statuses of families with members going out for work were significantly associated with larger numbers of family members and higher levels of instrumental support. Conclusions: Our findings indicate specific characteristics of families with members going out for work and factors associated with having family going out for work among persons with schizophrenia (number of family members and instrumental support). Culture-specific mental health policies and community-based services should be developed for persons with schizophrenia who have family going out for work in rural China.

show abstract

Determinants of Burden in Family Caregivers of Individuals With Schizophrenia: A Systematic Review

Cited by 9 publications

References 39 publications

Impact of Watson’s human caring-based health promotion program on caregivers of individuals with schizophrenia

Impact of Watson’s human caring-based health promotion program on caregivers of individuals with schizophrenia

The moderating effect of care time on care-related characteristics and caregiver burden: differences between formal and informal caregivers of dependent older adults

Characteristics of Families with Members Going Out for Work and Associated Factors among Persons with Schizophrenia in Rural China

Contact Info

Product

Resources

About