Determinants of health‐related quality of life in children and adolescents living with type 1 diabetes mellitus during the COVID‐19 pandemic

Smudja, Mirjana; Milenkovic, Tatjana; Minakovic, Ivana; Zdravkovic, Vera; Mitic, Sandra; Milutinovic, Dragana

doi:10.1002/nop2.1993

Cited by 1 publication

(2 citation statements)

References 55 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The questionnaire underwent content validity assessment, involving input from an endocrinology faculty member and two pediatric nurses. Additionally, face validity was evaluated by soliciting feedback from four parents and four pediatric patients (two aged 8-12 and two aged [13][14][15][16][17][18], who provided insights into the clarity, simplicity, and comprehensibility of the questions and response options.…”

Section: Plos Onementioning

confidence: 99%

“…There is a time when 1) adults ((parents or guardians and doctors or diabetes specialist nurses (DSNs)) are fully responsible; 2) time when adults (parents or guardians and doctors or DSNs) prepare the child for responsibility, 3) time when adults ((parents or guardians)) monitor behavior, and 4) time when adults ((parents or guardians)) transfer full responsibility to the child [ 7 ]. Education and re-education programs are available to pediatric patients with diabetes and their parents or guardians in Serbia to provide adequate training for the self-management of diabetes [ 15 ]. When lacking adequate support from diverse sources like families, healthcare professionals, and peers at school, T1DM can profoundly disrupt the lives of pediatric patients, particularly adolescents who grapple with maintaining proper adherence to the T1DM regimen, often resulting in unstable blood glucose levels.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Self-care activities in pediatric patients with type 1 diabetes mellitus

Smudja,

Milenković,

Minaković

et al. 2024

PLoS ONE

Self Cite

View full text Add to dashboard Cite

Introduction Effective diabetes self-management and collaborative responsibility sharing with parents are imperative for pediatric patients with type 1 diabetes mellitus, particularly as they gradually assume more self-care responsibilities. The primary goal of this study was to assess differences in adherence to self-care activities regarding sociodemographics and clinical characteristics in pediatric patients with type 1 diabetes. The secondary goal of this study was to understand the level of parental involvement in diabetes management and to assess the pediatric patients’ behaviors (independent or dependent on disease self-management) that relate to sociodemographic and clinical characteristics. Methods This was a comparative cross-sectional and correlational study. The study sample included 182 children and adolescents who had been diagnosed with type 1 diabetes at least 3 months prior. Data collection instruments included a sociodemographic and questionnaire about Adherence to self-care activities and parental involvement in diabetes self-management, as well as a documentation sheet for recording clinical data. Results A majority of participants (71%) exhibited non-adherence to self-care tasks, despite 78.0% asserting their independence in diabetes self-management. Notably, insufficient parental involvement in administering insulin therapy significantly predicted severe hypoglycemic episodes. Conclusions Pediatric patients dealing with type 1 diabetes demonstrate a substantial degree of autonomy in managing their condition, paradoxically coupled with self-reported non-adherence to critical self-care responsibilities. Notably, children (aged 8–12) rely more heavily on parental support, especially concerning insulin therapy administration. The study underscores the crucial role of parental engagement in insulin therapy, as its deficiency significantly predicts the likelihood of severe hypoglycemic episodes.

show abstract