Determinants of heart failure self-care: a systematic literature review

Oosterom-Calo, Rony; Ballegooijen, Adriana J. van; Terwee, Caroline B.; Velde, Saskia J. te; Brouwer, Ingeborg A.; Jaarsma, Tiny; Brug, Johannes

doi:10.1007/s10741-011-9292-9

Cited by 64 publications

(66 citation statements)

References 60 publications

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“…From the current review, several psychological barriers and facilitators of HF self-care have been identified beyond other sociodemographic and clinical determinants (8,11), as we have illustrated in a conceptual model (Fig. 5).…”

Section: Discussionmentioning

confidence: 88%

Psychological Determinants of Heart Failure Self-Care

Kessing

Denollet

Widdershoven

et al. 2016

Psychosomatic Medicine

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Psychological factors (depression, self-efficacy, and mental well-being) were associated with specific self-care facets in patients with chronic HF. These associations were predominantly observed with self-reported indices of self-care and not objective indices. Methodological heterogeneity and limitations preclude definite conclusions about the association between psychological factors and self-care and should be addressed in future research.

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Section: Discussionmentioning

confidence: 88%

Psychological Determinants of Heart Failure Self-Care

Kessing

Denollet

Widdershoven

et al. 2016

Psychosomatic Medicine

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“…Previously published reviews offer a more general account of self-care in HF or the experience of living with HF [38][39][40][41][42][43], rather than care seeking decisions specifically, or do not go beyond summarizing what is already reported in the literature [44].…”

Section: Figmentioning

confidence: 99%

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

Ivynian

DiGiacomo

Jha

et al. 2015

Heart, Lung and Circulation

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Purpose: Over 50% of heart failure (HF) patients delay seeking help for worsening symptoms until these reach acute levels and require emergency hospitalisation. This metasynthesis aimed to identify and explore factors influencing timely care-seeking in patients with HF.Methods: Electronic databases searched were Medline, EMBASE and CINAHL. Studies were included if they were peer reviewed journal articles written in English, and reported perspectives of HF patients following qualitative data collection and analysis. Forty articles underwent analysis following the approach of Thomas and Harden. Leventhal's self-regulatory model (SRM) was used to organise the literature.Results: Much of the literature fit within the SRM, however this model did not account for all factors that influence patients' care-seeking for worsening symptoms. Factors not accounted for included patients' appraisals of previous care-seeking experiences, perceived system and provider barriers to accessing care, and the influence of external appraisals. When added to factors already represented in the model, such as misattribution of symptoms, not identifying with HF diagnosis, cognitive status, lack of understanding information provided, adaptation to symptoms, and emotional responses, a more comprehensive account of patients' decision-making was revealed.Implications: This metasynthesis identified factors, as yet unaccounted for, in a prominent model, and has suggested a more comprehensive framework for addressing care-seeking in HF patients. This information can be used to tailor education, communication, and service initiatives to improve HF patients' responses to worsening symptoms, and target those most at risk of delay.

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“…Several studies identify barriers to performing recommended heart failure self-care (McEntee et al, 2009; Oosterom-Calo et al, 2012; Siabani et al, 2013; Zavertnik, 2014). Most of the studied barriers are patient-related factors such as age, lack of knowledge, and low self-efficacy (Oosterom-Calo et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

The patient work system: An analysis of self-care performance barriers among elderly heart failure patients and their informal caregivers

2015

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Human factors and ergonomics approaches have been successfully applied to study and improve the work performance of healthcare professionals. However, there has been relatively little work in “patient-engaged human factors,” or the application of human factors to the health-related work of patients and other nonprofessionals. This study applied a foundational human factors tool, the systems model, to investigate the barriers to self-care performance among chronically ill elderly patients and their informal (family) caregivers. A Patient Work System model was developed to guide the collection and analysis of interviews, surveys, and observations of patients with heart failure (n=30) and their informal caregivers (n=14). Iterative analyses revealed the nature and prevalence of self-care barriers across components of the Patient Work System. Person-related barriers were common and stemmed from patients’ biomedical conditions, limitations, knowledge deficits, preferences, and perceptions as well as the characteristics of informal caregivers and healthcare professionals. Task barriers were also highly prevalent and included task difficulty, timing, complexity, ambiguity, conflict, and undesirable consequences. Tool barriers were related to both availability and access of tools and technologies and their design, usability, and impact. Context barriers were found across three domains—physical-spatial, social-cultural, and organizational—and multiple “spaces” such as “at home,” “on the go,” and “in the community.” Barriers often stemmed not from single factors but from the interaction of several work system components. Study findings suggest the need to further explore multiple actors, context, and interactions in the patient work system during research and intervention design, as well as the need to develop new models and measures for studying patient and family work.

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Determinants of heart failure self-care: a systematic literature review

Cited by 64 publications

References 60 publications

Psychological Determinants of Heart Failure Self-Care

Psychological Determinants of Heart Failure Self-Care

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

The patient work system: An analysis of self-care performance barriers among elderly heart failure patients and their informal caregivers

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