Determinants of long‐term care service use by persons with dementia: A national dementia registry study conducted in Taiwan

Tsai, Chia-Ming; Huang, Mao‐Hsuan; Cheng, Chih‐Ming; Lee, Jun-Jun; Wang, Wen‐Fu; Huang, Ling‐Chun; Huang, Li‐Kai; Lee, Wei‐Ju; Sung, Pi‐Shan; Liu, Yi‐Chien; Ouyang, Wen‐Chen; Hsu, Ching‐Yun; Fuh, Jong‐Ling

doi:10.1002/gps.5719

Cited by 5 publications

(5 citation statements)

References 43 publications

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“…The social resources include resources or services that PwD and their family caregivers can apply for, such as day care, home help services, responsive care and home care. Social resources provide additional support for families of PwD and ease the burden on caregivers (Tsai et al 2022;Wakefield 2020). Understanding family caregivers' utilisation of social resources may ease psychological distress.…”

Section: Social Resource Utilisationmentioning

confidence: 99%

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Psychological Distress, Multicare Needs and Social Resource Utilisation of Family Caregivers of People With Dementia: A Descriptive‐Correlational Study

Shen,

Chang,

Huang

et al. 2024

Int J Older People Nursing

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BackgroundThe population of people with dementia increases yearly, imposing a growing burden on family caregivers. Psychological distress impacts the mental health of family caregivers of people with dementia. Caregiver psychological distress can result in increased social resource utilisation and unmet multicare needs.PurposeThe study explored the psychological distress of family caregivers of people with dementia and examined the impact on social resource utilisation and multicare needs.MethodsA descriptive‐correlational study collected data in Taiwan from a cross‐sectional sample of family caregivers of people with dementia using a self‐report questionnaire. Data were analysed using linear and logistic regression.ResultsA total of 301 caregivers provided data for analysis. Nearly two‐thirds of caregivers were female with a mean age of 57 years old (SD = 12). Over half of the family caregivers of people with dementia experienced mild‐to‐moderate psychological distress. The greater the psychological distress, the greater the probability of using social resources (1.09 times per 1‐point increase, p = 0.002). Psychological distress was positively associated with the number of caregivers' care needs (β = 0.371, p < 0.001).ConclusionsFindings of this study can assist healthcare professionals in better understanding the psychological distress and care needs of caregivers. Services designed to meet the needs of family caregivers will improve psychological distress.

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Section: Social Resource Utilisationmentioning

confidence: 99%

“…Social resources provide additional support for families of PwD and ease the burden on caregivers (Tsai et al. 2022; Wakefield 2020). Understanding family caregivers' utilisation of social resources may ease psychological distress.…”

Section: Introductionmentioning

confidence: 99%

Psychological Distress, Multicare Needs and Social Resource Utilisation of Family Caregivers of People With Dementia: A Descriptive‐Correlational Study

Shen,

Chang,

Huang

et al. 2024

Int J Older People Nursing

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“…This study is a subproject of the National Dementia Registry Study (T-NDRS), which was conducted by the National Health Research Institutes of Taiwan and involved data collection from 2017 to 2019. 16 The T-NDRS was conducted at nine hospitals distributed across Taiwan: three in northern Taiwan, two in central Taiwan, and four in southern Taiwan. The inclusion criterion for individuals with dementia was individuals aged 50 to 90 years with a Clinical Dementia Rating (CDR) score of 0.5 or higher, denoting very mild dementia to severe dementia.…”

Section: Data Sources and Study Participantsmentioning

confidence: 99%

Predictors of live-in migrant caregiver employment for people with dementia in Taiwan

Li,

Tsai,

Huang

et al. 2023

Journal of the Chinese Medical Association

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Background: With the increasing number of individuals with dementia, families have hired an increasing number of live-in migrant caregivers (LIMCs). Currently, limited evidence is available regarding the influence of long-term care resource utilization on the hiring of LIMCs for caring for individuals with dementia in Taiwan. Methods: We recruited individuals with dementia who did not hire LIMCs and their primary family caregivers from nine hospitals in Taiwan as baseline. Multivariable logistic regression was used to evaluate the utilization of long-term care resources for individuals with dementia and other factors that may affect the decision to hire LIMCs. Results: The users of non-long-term care resources had the highest likelihood of hiring LIMCs (odds ratio [OR] = 4.24, 95% CI, 2.30-7.84). Compared with spouses, nonimmediate family caregivers (OR = 3.40, 95% CI, 1.16-9.90) were significantly more likely to hire LIMCs. A higher likelihood of hiring LIMCs was observed for those with Lewy body dementia compared with other individuals (OR = 2.31, 95% CI, 1.03-5.14). Compared with individuals who did not hire LIMCs, those who hired LIMCs exhibited higher scores on the Neuropsychiatric Inventory (NPI) and higher severity of individual NPI items. Conclusion: Hiring LIMCs is strongly correlated with the utilization of non-long-term care resources and is influenced by the dynamics between individuals with dementia and their primary family caregivers. A higher likelihood of hiring LIMCs was observed for individuals with Lewy body dementia and individuals with elevated NPI scores compared with their counterparts. Given these observations, various support strategies and interventions should be tailored to the specific requirements of individuals with dementia and their families.

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“…Factors such as dementia stage, capability of activity daily living (ADL), resource of informal and paid care, relationship between the care provider and the recipient, sociocultural context, and the LTC system design all needed to be considered (Morrisby et al, 2018 ; Shepherd-Banigan et al, 2021 ). A national dementia registry enrolled 1,268 Taiwanese and revealed that aberrant motor behaviors, dysfunction in ADLs, higher caregiver burden, not residing with family members, and not employing a migrant caregiver were the factors associated with LTC service usage (Tsai et al, 2022 ).…”

Section: Introductionmentioning

confidence: 99%

Applying Apriori algorithm to explore long-term care services usage status—Variables based on the combination of patients with dementia and their caregivers

et al. 2022

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PurposeThe aim of this study was to identify the combination of patients with dementia and their caregivers' characteristics associated with long-term care (LTC) services usage.Patients and methodsA cross-sectional study was conducted with 475 patients with mild, moderate, and severe dementia at Changhua Christian Hospital, Taiwan. Eleven types of variables from patients with dementia, nine types of variables from patients' caregivers, and 15 types of LTC services were used for this study. The Apriori algorithm was employed to identify the attributes from the patients and their caregivers who used a particular LTC service from a comprehensive viewpoint.ResultsA total of 75 rules were generated by the Apriori algorithm with support of 2%, confidence of 80%, and lift >1. Among these rules, 25 rules belonged to home personal care services which were summarized further into four general rules for home personal care services. On the other hand, 50 rules belonged to assistive devices that were summarized further into 21 general rules based on their similarities. Patient's walking ability, patient's emotional liability, unemployed or retired caregivers, caregivers' feelings with either helplessness or hopelessness, and caregivers who cared for patients with dementia solely were found to be the critical variables to use home personal care services. In contrast, patient's walking ability, age, and severity as well as caregivers' age, mood, marital status, caregiving burden, and the patient being cared for mainly by a foreign care helper were found to be the critical variables to use assistive devices.ConclusionThis study showed preliminary results on the LTC service usage from patients with dementia and their caregivers residing in the community. Understanding the patient–caregiver dyad's profile leads the service providers, policymakers, and the referral team to tailor service provisions better to meet the needs and identify the potential target groups. The findings in this study serve as references to reduce caregivers' burden as well as to improve the quality of care for patients with dementia.

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Determinants of long‐term care service use by persons with dementia: A national dementia registry study conducted in Taiwan

Cited by 5 publications

References 43 publications

Psychological Distress, Multicare Needs and Social Resource Utilisation of Family Caregivers of People With Dementia: A Descriptive‐Correlational Study

Psychological Distress, Multicare Needs and Social Resource Utilisation of Family Caregivers of People With Dementia: A Descriptive‐Correlational Study

Predictors of live-in migrant caregiver employment for people with dementia in Taiwan

Applying Apriori algorithm to explore long-term care services usage status—Variables based on the combination of patients with dementia and their caregivers

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