Determinants of Preference for Home Death Among Terminally Ill Patients With Cancer in Taiwan

Chen, Chen Hsiu; Lin, Yu-Chuan; Liu, Li-Ni; Tang, Siew Tzuh

doi:10.1097/jnr.0000000000000016

Cited by 34 publications

(55 citation statements)

References 25 publications

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“…The intervention of medicine is often accompanied by a process of self-empowerment that participants retain regarding both the previous situation and the future (Tzanakis, 2014). Thus, the suffering female body becomes at the same time the object of medical institutions and of personal care (Chen et al, 2014). Voluntary action is precisely a concrete result of this experience of biosociality (Rabinow, 2008).…”

Section: Discussionmentioning

confidence: 99%

Biographic Strategies of Greek Women with Breast Cancer: From the “Injured” to the “Contributing” Body

Alexias¹,

Manolis²,

Savvakis³

2015

JSSW

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This paper is based on a disciplinary qualitative research, grounded on fourteen biographical-narrative interviews with Greek women, experiencing breast cancer and mastectomy. These women have eventually participated in solidarity groups of self-help and voluntary action and describe the multiple ways they have coped with this new "alarm situation' that emerged in their biographies. The main purpose of the article is to understand and interpret the practises they employed, in as much as they record breast cancer as a turning point with respect to emotions, social relationships and activities. The main results of the research reveal that these particular women, members of a larger social group, tend to produce a special form of embodiment and politicization. This results in a complex, painful and struggling renegotiation of a social identity and a rather new form of relationships with the self and the significant others. The management of the disease -and the potential social stigma or everyday negativity -ultimately leads to a redefinition of the basic life values, within the framework of an energetic and combative, self-reflective project with an often contradictory content.

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Section: Discussionmentioning

confidence: 99%

Biographic Strategies of Greek Women with Breast Cancer: From the “Injured” to the “Contributing” Body

Alexias¹,

Manolis²,

Savvakis³

2015

JSSW

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“…degenerações físicas e psíquicas do paciente gera também um sentimento de dor e sofrimento no cuidador, levando-o, muitas vezes, em consonância com a religiosidade, a uma conformidade e aceitação da morte, que é vista como a solução para o sofrimento do familiar (13,17) . (2,10) . (8,23) .…”

Section: Processo De Morte E Morrer Do Pacienteunclassified

“…A AD tem um potencial inovador, já que há maior permeabilidade das equipes aos diferentes aspectos vivenciados pelos pacientes e suas famí-lias e pela construção de um cuidado ampliado, não se restringindo aos aspectos biológicos da doença, principalmente quando se trata de terminalidade (7) . Estudos (8)(9)(10) Oriente, os estudos (11)(12) abordam a visão do cuidador familiar no processo de morte e morrer no domicílio, enquanto o paciente ainda passa pelo processo. Deste modo, a discussão foca especialmente a expectativa do paciente em relação ao lugar de morte, isto é, antes do acontecimento.…”

Section: Introductionunclassified

Visão Do Familiar Cuidador Sobre O Processo De Morte E Morrer No Domicílio

Oliveira

Santos

et al. 2016

Rev. baiana enferm

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Objetivo: conhecer a visão do cuidador familiar que vivenciou o processo de morte e morrer no domicílio. Método: estudo qualitativo descritivo com dez cuidadores familiares de pacientes oncológicos que estiveram internados no Programa de Internação Domiciliar Interdisciplinar e vivenciaram o processo de morte e morrer no domicílio. A coleta de dados, por meio de entrevista semiestruturada, ocorreu entre agosto e setembro de 2015. Na análise dos dados, recorreu-se à análise temática de conteúdo. Resultados: acompanhar o processo de morte e morrer no domicílio produziu tristeza, impotência e receio em relação às lembranças do acontecimento nesse espaço. No entanto, o suporte da equipe de atenção domiciliar e a religiosidade fortaleceram os cuidadores. Conclusão: a sobrecarga, o estado do paciente, os suportes técnico, social e espiritual que transcorrem no processo de morte e morrer, podem produzir experiências potentes ou aversivas ao domicílio como local de morte.

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“…12 In Taiwan, the most recent nationwide study showed that more than one-half of terminally ill cancer patients expressed a preference to die at home. 13 The overall home death rate, according to death registrations, was approximately 43.2% in 2013. 14 In the traditional Chinese belief system, a good death is commonly recognized as one of the Five Blessings (longevity, wealth, health, love of virtue, a good death).…”

Section: Introductionmentioning

confidence: 99%

Patient Preferences versus Family Physicians' Perceptions Regarding the Place of End-of-Life Care and Death: A Nationwide Study in Taiwan

Shih

Cheng

et al. 2015

Journal of Palliative Medicine

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Background: Enabling people to die in their preferred place is important for providing high-quality end-of-life care. Objective: The study objective was to explore patients' preferences regarding the place of end-of-life care and death and to compare these preferences with the perceptions of their family physicians. Methods: This cross-sectional study used stratified random sampling, surveying 400 registered patients and 200 of their family physicians nationwide, with a five-part, structured, self-report questionnaire. Results: Of the selected population, 310 patients (response rate 77.5%) and 169 physicians (response rate 84.5%) responded. Regarding the preferred place for end-of-life care, most of the patients would choose to receive care at home (60.6%) if home care services were available. Additionally, home was the most frequently preferred (66.5%) place of death. The family physicians' survey showed that a higher proportion of physicians selected home as the preferred place for end-of-life care and death (71.6% and 87.2%, respectively). The results of logistic regression analysis showed that patients younger than 50 years of age who believed in Chinese folk religion and who resided in a rural area were more likely to prefer to die at home. Conclusions: The most commonly preferred place for end-of-life care and death is the patient's home. Establishing a community-based palliative care system should be encouraged to allow more individuals to die in their preferred locations. There were discrepancies in the preferred place of end-of-life care and death between the patients' preferences and their family physicians' perceptions. More effective physician-patient communication regarding end-of-life care is needed.

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Determinants of Preference for Home Death Among Terminally Ill Patients With Cancer in Taiwan

Cited by 34 publications

References 25 publications

Biographic Strategies of Greek Women with Breast Cancer: From the “Injured” to the “Contributing” Body

Biographic Strategies of Greek Women with Breast Cancer: From the “Injured” to the “Contributing” Body

Visão Do Familiar Cuidador Sobre O Processo De Morte E Morrer No Domicílio

Patient Preferences versus Family Physicians' Perceptions Regarding the Place of End-of-Life Care and Death: A Nationwide Study in Taiwan

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