Determining The Difficulties Faced By Families With Intellectual Disability Children And The Burden On The Family

Examination of Affiliate Stigma, Hopelessness and Life Satisfaction in Parents of Children with Intellectual Disabilty

“…The levels of affiliate stigma in parents increased, the levels of life satisfaction decreased, and the levels of hopelessness increased. The presence of a child with a disability causes many difficulties and drastic changes in the family [13,36,39]. Parents expressed that having a child with a disability empowered them, increased their self-confidence, gave more meaning in their lives, increased their spirituality, and that they had positive experiences as a result of the disability of their child and these attitudes led to a change in negative thoughts in society [40].…”

Family Burden and Self-Care Skills of Children With Intellectual Disability, Life Satisfaction of Their Mothers and the Effective Factors

“…The mothers take more responsibilities physically and require more time. This situation increases the burden of the mothers and affects the life satisfaction in a negative manner (Balcı et al, 2019;Boehm & Carter, 2019;Ezzat et al, 2017). Organising programmes for increasing involvement of other family members in training and care of the children with intellectual disability, creating family support groups in rehabilitation centres, and organising social activities for the children and their families will be beneficial to reduce the burden of the mothers.…”

“…Intellectual disability (ID) is an important disorder which results in permanent disabilities in the person and requires life-long observation, control, care, treatment and rehabilitation (Balcı, Kızıl, Savaşer, Dur, & Mutlu, 2019). Having a child with intellectual disability impacts the whole family.…”

“…Having a child with intellectual disability impacts the whole family. The focus of recent studies, conducted in order to determine conditions affecting the family system such as having a disabled child, is "family burden" (Balcı et al, 2019;Çalışır, Karabudak-Sarıkaya, Karataş, Tosun, & Meşealan, 2018;İlhan, Utaş-Akhan, Baygut, Nazar-Dallı, & Yıldırım, 2019;Seliner, Latal, & Spirig, 2016;Shyam, Govil, & Govil, 2014).…”

“…Zihinsel yetersizlik, kişide kalıcı yetersizlikler bırakan, yaşam boyu gözlem, kontrol, bakım, tedavi ve rehabilitasyon gerektiren önemli bir bozukluktur (Balcı, Kızıl, Savaşer, Dur, & Mutlu, 2019). Zihinsel yetersiz bir çocuğa sahip olmak ailenin tüm yaşamını önemli düzeyde etkiler.…”