Determining What We Stand for Will Guide What We Do: Community Priorities, Ethical Research Paradigms, and Research With Vulnerable Populations

Pérez, Leda M.; Treadwell, Henrie M.

doi:10.2105/ajph.2007.125617

Cited by 22 publications

(12 citation statements)

References 19 publications

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“…Similarly, research with Indigenous communities in the U.S. (American Indian and Alaska Native communities) illustrates the benefits of CBPR (collaborative relationships, development of programs in culturally acceptable ways, disseminating research findings from Indigenous perspectives), but also reminds researchers how important it is to be aware of and sensitive to the history of relationships before a community is approached [ 43 ]. In a similar fashion, another study [ 44 ] suggests that CBPR can be a valuable tool for determining the immediate concerns of prisoners, such as the receipt of high-quality and dignified health care inside and outside prisons (as this population bears significantly higher rates of Hepatitis C, HIV, tuberculosis, and other physical conditions). From a research ethics perspective, this work highlights that in building research agendas researchers must be sensitive to the priorities of marginalized populations and ensure the participation of communities impacted by the resulting policies.…”

Section: Theme 3: Peer Recruitment and Representation In Cbprmentioning

confidence: 99%

The ethics of community-based research with people who use drugs: results of a scoping review

et al. 2016

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BackgroundDrug user networks and community-based organizations advocate for greater, meaningful involvement of people with lived experience of drug use in research, programs and services, and policy initiatives. Community-based approaches to research provide an opportunity to engage people who use drugs in all stages of the research process. Conducting community-based participatory research (CBPR) with people who use drugs has its own ethical challenges that are not necessarily acknowledged or supported by institutional ethics review boards. We conducted a scoping review to identify ethical issues in CBPR with people who use drugs that were documented in peer-reviewed and grey literature.MethodsThe search strategy focused on three areas; community-based research, ethical issues, and drug use. Searches of five academic databases were conducted in addition to a grey literature search, hand-searching, and consultation with organizational partners and key stakeholders. Peer reviewed literature and community reports published in English between 1985 and 2013 were included, with initial screening conducted by two reviewers.ResultsThe search strategy produced a total of 874 references. Twenty-five references met the inclusion criteria and were included in our thematic analysis. Five areas were identified as important to the ethics of CBPR with people who use drugs: 1) participant compensation, 2) drug user perspectives on CBPR, 3) peer recruitment and representation in CBPR, 4) capacity building, and 5) participation and inclusion in CBPR.ConclusionsWe critically discuss implications of the emerging research in this field and provide suggestions for future research and practice.

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Section: Theme 3: Peer Recruitment and Representation In Cbprmentioning

confidence: 99%

The ethics of community-based research with people who use drugs: results of a scoping review

et al. 2016

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“…25,26 Thus, in our work with incarcerated women, we had to identify ways to engage incarcerated women without violating facility rules or policies, or inappropriately challenging existing power structures within the prison environment. We have also had to work to develop trusting relationships with staff and inmates.…”

Section: Lessons Learnedmentioning

confidence: 99%

Pregnancy and Parenting Support for Incarcerated Women: Lessons Learned

Shlafer¹,

Gerrity²,

Duwe³

2015

cpr

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Background There are more than 200,000 incarcerated women in U.S. prisons and jails, and it is estimated that 6% to 10% are pregnant. Pregnant incarcerated women experience complex risks that can compromise their health and the health of their offspring. Objectives Identify lessons learned from a community–university pilot study of a prison-based pregnancy and parenting support program. Methods A community–university–corrections partnership was formed to provide education and support to pregnant incarcerated women through a prison-based pilot program. Evaluation data assessed women’s physical and mental health concerns and satisfaction with the program. Between October 2011 and December 2012, 48 women participated. Lessons Learned We learned that providing services for pregnant incarcerated women requires an effective partnership with the Department of Corrections, adaptations to traditional community-based participatory research (CBPR) approaches, and resources that support both direct service and ongoing evaluation. Conclusions Effective services for pregnant incarcerated women can be provided through a successful community– university–corrections partnership.

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“…The data generated from these studies can also enhance the capacity of research teams to advocate for solutions that affect practice and policy and target further areas of research. We argue, as do others (Chandler, 2003;Magee et al, 2005;Perez & Treadwell, 2009), that without prisoners' voices we can not adequately document or address the health conditions in jails and prisons or the policies that maintain them.…”

Section: Conclusion and Recommendationsmentioning

confidence: 70%

“…Yet, we are not alone in the argument that those who are most marginalized in these settings deserve a voice in the policies that affect their lives (Magee et al, 2005;Perez & Treadwell, 2009). Participatory research methods offer one strategy for bringing women prisoners' voices into this discourse.…”

Section: Conclusion and Recommendationsmentioning

confidence: 99%

Using Participatory Methods to Examine Policy and Women Prisoners’ Health

Hatton

Fisher

2011

Policy, Politics, & Nursing Practice

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This article describes how community-based participatory research (CBPR) led to the discovery of the unintended consequences of jail and prison copayment policy on women prisoners' health. The article addresses (a) a working definition of participatory research; (b) the importance of research with women prisoners; (c) the origins and development of our work and its grounding in CBPR; (d) issues related to research with prisoners; and (e) recommendations for using participatory methods to bring women prisoners into the discourse about the practices and policies that impact their lives. These methods have the potential to minimize the invisibility of prisoners and their health disparities.

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Determining What We Stand for Will Guide What We Do: Community Priorities, Ethical Research Paradigms, and Research With Vulnerable Populations

Cited by 22 publications

References 19 publications

The ethics of community-based research with people who use drugs: results of a scoping review

The ethics of community-based research with people who use drugs: results of a scoping review

Pregnancy and Parenting Support for Incarcerated Women: Lessons Learned

Using Participatory Methods to Examine Policy and Women Prisoners’ Health

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