Developing a decision aid for youth with brachial plexus birth injuries facing treatment decisions for an elbow flexion contracture

Ho, Emily S.; Parsons, Janet; Davidge, Kristen M.; Clarke, Howard M.; Lawson, Margaret L.; Wright, F. Virginia

doi:10.1002/pmrj.12677

Cited by 3 publications

(1 citation statement)

References 63 publications

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“…38 The management of elbow flexion contractures is an area of active research at our center. 39 For functional concerns, our occupational therapy team provides support, adaptive devices, and education to enable patients to meet specific goals (i.e., sports, writing, grooming/hygiene, dressing, etc.). Management of pain, which is still not well understood in BPBI, consists of multimodal therapy including massage, heat, activity modification, stretching, and specific exercises.…”

Section: Conservative Managementmentioning

confidence: 99%

Management of Brachial Plexus Birth Injury: The SickKids Experience

et al. 2023

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This article describes the approach utilized by the multidisciplinary team at Sick Kids Hospital to evaluate and treat patients with brachial plexus birth injury (BPBI). This approach has been informed by more than 30 years of experience treating over 1,800 patients with BPBI and continues to evolve over time. The objective of this article is to provide readers with a practical overview of the Sick Kids approach to the management of infants with BPBI.

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Section: Conservative Managementmentioning

confidence: 99%

Management of Brachial Plexus Birth Injury: The SickKids Experience

et al. 2023

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Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making

Bosch,

Siebel,

Heiser

et al. 2024

Pediatr Res

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Purpose To review and synthesize the literature on interventions to facilitate shared decision-making or to increase participation in decision-making in pediatrics focusing on interventions for children and adolescents. Methods We systematically searched three electronic databases (September 2021, update in September 2022). We included studies that aimed to increase involvement of children and adolescents in medical or treatment decisions, regardless of study design and reported outcomes. Study quality was assessed using the MMAT. The synthesis strategy followed a narrative methodology. Results 21 studies met the inclusion criteria. Interventions aimed to increase participation by provision of information, encouraging active participation and collaboration. Didactic strategies included digital interactive applications (n = 12), treatment protocols and guiding questions (n = 12), questionnaires or quizzes about patients’ condition or their knowledge (n = 8), visual aids (n = 4), and educational courses (n = 1). Findings indicate positive effects on some of the investigated outcomes. However, the heterogeneity of studies made it difficult to draw consistent conclusions about the effectiveness of interventions. Conclusions Interventions used a variety of approaches to facilitate SDM and increase participation. The findings suggest that interventions have inconsistent effects across different outcome variables. The evidence was limited due to the methodological shortcomings of the included studies. Impact To increase the participation of children and adolescents in decision-making, interventions targeting them are needed. Most intervention focus on the provision of information and encouragement for active participation. The results suggest high feasibility and, mostly, positive effects in participation, health-related knowledge, patient-HCP relationship, and adherence The study highlights that further high-quality studies using similar outcome parameters are needed to investigate the effects of interventions to facilitate participation in decision-making.

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Obstetric Brachial Plexus Palsy and Functional Implications: Which Joint in the Upper Extremity Is More Closely Associated?

Utku Umut,

Hoşbay,

Tanrıverdi

et al. 2024

Medicina

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Background and Objectives: The objective of this study is to examine the correlation between the active range of motion (ROM) of the affected upper extremity and functional capacity in children with Obstetric Brachial Plexus Palsy (OBPP) who have undergone the modified Hoffer tendon transfer technique. Materials and Methods: The study cohort comprised 52 children with OBPP, aged 4–14 years, who had undergone a shoulder tendon transfer. The ROM was quantified using a goniometer, while functionality was evaluated through the administration of the Brachial Plexus Outcome Measure (BPOM). Results: The study identified significant correlations between the shoulder ROM and the Brachial Plexus Outcome Measure (BPOM). Specifically, shoulder flexion (p = 0.017; r = 0.351) was positively associated with shoulder functionality, while shoulder internal rotation (p = 0.001; r = 0.481) was linked to appearance scores. A significant negative relationship was observed between elbow extension (p < 0.001; r = −0.512) and elbow and forearm activities. Conclusions: The study highlights the necessity of assessing both joint range of motion and body perception for effective treatment and follow-up, to improve the functionality and quality of life for children with OBPP.

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Developing a decision aid for youth with brachial plexus birth injuries facing treatment decisions for an elbow flexion contracture

Cited by 3 publications

References 63 publications

Management of Brachial Plexus Birth Injury: The SickKids Experience

Management of Brachial Plexus Birth Injury: The SickKids Experience

Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making

Obstetric Brachial Plexus Palsy and Functional Implications: Which Joint in the Upper Extremity Is More Closely Associated?

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