Developing a mobile epilepsy management application integrated with an electronic health record for effective seizure management

Yoo, Sooyoung; Lim, Kahyun; Baek, Hyunyoung; Jang, Sae Kyun; Hwang, Ga young; Kim, Hunmin

doi:10.1016/j.ijmedinf.2019.104051

Cited by 34 publications

(19 citation statements)

References 19 publications

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“…This lack of available information on patient‐centered outcome measures at the level of hospital and health care systems represents a substantial barrier to quality improvement 4 . Several international efforts have attempted to facilitate quality improvement efforts using electronic patient records, demonstrating that an EMR‐based approach can facilitate both data collection and generation of patient‐facing tools that inform treatment decisions 5–8 …”

Section: Introductionmentioning

confidence: 99%

Assessing seizure burden in pediatric epilepsy using an electronic medical record–based tool through a common data element approach

et al. 2021

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Objective: Improvement in epilepsy care requires standardized methods to assess disease severity. We report the results of implementing common data elements (CDEs) to document epilepsy history data in the electronic medical record (EMR) after 12 months of clinical use in outpatient encounters. Methods: Data regarding seizure frequency were collected during routine clinical encounters using a CDE-based form within our EMR. We extracted CDE data from the EMR and developed measurements for seizure severity and seizure improvement scores. Seizure burden and improvement was evaluated by patient demographic and encounter variables for in-person and telemedicine encounters. Results: We assessed a total of 1696 encounters in 1038 individuals with childhood epilepsies between September 6, 2019 and September 11, 2020 contributed by 32 distinct providers. Childhood absence epilepsy (n = 121), Lennox-Gastaut syndrome (n = 86), and Dravet syndrome (n = 42) were the most common epilepsy syndromes.Overall, 43% (737/1696) of individuals had at least monthly seizures, 17% (296/1696) had a least daily seizures, and 18% (311/1696) were seizure-free for >12 months.Quantification of absolute seizure burden and changes in seizure burden over time differed between epilepsy syndromes, including high and persistent seizure burden in patients with Lennox-Gastaut syndrome. Individuals seen via telemedicine or in-person encounters had comparable seizure frequencies. Individuals identifying as Hispanic/Latino, particularly from postal codes with lower median household incomes, were more likely to have ongoing seizures that worsened over time.

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Section: Introductionmentioning

confidence: 99%

Assessing seizure burden in pediatric epilepsy using an electronic medical record–based tool through a common data element approach

et al. 2021

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“…Many studies focused on creating and evaluating mobile apps, typically aimed at addressing the needs of patients and consumers. These mobile apps focused on a variety of chronic diseases such as diabetes and hypertension [ 63 , 122 ], cardiovascular health [ 30 , 58 , 121 ], cancer care [ 58 , 127 ], mental health [ 13 , 23 , 25 , 57 , 110 ], seizure management [ 57 ], bladder monitoring [ 56 ], tuberculosis treatment [ 15 ], and parental education [ 40 , 41 ]. A small number of studies focused on telehealth [ 10 , 14 , 140 ] and personal health records or patient portals [ 38 , 109 , 141 ].…”

Section: Resultsmentioning

confidence: 99%

“…Mobile apps [105,113] [17,29,69,70,81,87,91,99,118,119,126,129,33,130,132,142, 34,36,37,49,50,53,67] [ 10,11,92,96,98,[123][124][125][50][51][52]55,61,66,72,84] [ 13,15,47,54,[56][57][58]63,75,85,108,110,23,[115][116][117]121,122,127,131,[25][26][27]30,35,40,41] Fig. 2 Relative weighting of HF/E outcomes by domain [1].…”

Section: Customized Data Displaysmentioning

confidence: 99%

Human Factors and Organizational Issues in Health Informatics: Innovations and Opportunities

Marquard

2021

Yearb Med Inform

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Objective: Human factors and ergonomics (HF/E) frameworks and methods are becoming embedded in the health informatics community. There is now broad recognition that health informatics tools must account for the diverse needs, characteristics, and abilities of end users, as well as their context of use. The objective of this review is to synthesize the current nature and scope of HF/E integration into the health informatics community. Methods: Because the focus of this synthesis is on understanding the current integration of the HF/E and health informatics research communities, we manually reviewed all manuscripts published in primary HF/E and health informatics journals during 2020. Results: HF/E-focused health informatics studies included in this synthesis focused heavily on EHR customizations, specifically clinical decision support customizations and customized data displays, and on mobile health innovations. While HF/E methods aimed to jointly improve end user safety, performance, and satisfaction, most HF/E-focused health informatics studies measured only end user satisfaction. Conclusion: HF/E-focused health informatics researchers need to identify and communicate methodological standards specific to health informatics, to better synthesize findings across resource intensive HF/E-focused health informatics studies. Important gaps in the HF/E design and evaluation process should be addressed in future work, including support for technology development platforms and training programs so that health informatics designers are as diverse as end users.

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“…Online links [22] and mobile applications also have been used for ASAPs. As an example, a more detailed and longer management application may include a seizure diary, medication diary, education, emotion management, test results, and a survey [47]. A smartphone application may allow for automatic functions (e.g., notifying a designated person or physician or displaying the ASAP).…”

Section: Format Of Asapmentioning

confidence: 99%

Recommendations for development of acute seizure action plans (ASAPs) from an expert panel

Penovich¹,

Glauser²,

Becker³

et al. 2021

Epilepsy & Behavior

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Purpose of review: Disease-related treatment action plans for acute exacerbations providing information that may be helpful for self-management for patients and caregivers are commonly used for chronic conditions such as asthma and diabetes. However, among patients with epilepsy, a review of the literature suggested that the majority did not have an action plan in place for acute seizure treatment. Recent findings: Currently, there is a lack of unified guidance on seizure action plans (SAPs) in the literature. In the authors' opinion, available formats have limitations for practical use and may not be easily customizable to individual patients, and they are not often designed to provide simple-to-follow steps for rapid immediate steps to determine and initiate appropriate treatment of seizure emergencies. Our group reviewed current examples of SAPs and provided guidance on the development of acute seizure action plans (ASAPs) designed to facilitate rapid, appropriate acute care in the community and to be as useful as possible for a wide range of care partners, including those with limited experience. Summary: This paper provides agreed upon expert opinion recommendations and considerations for goals, development process, types of content, and format for an ASAP.

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Developing a mobile epilepsy management application integrated with an electronic health record for effective seizure management

Cited by 34 publications

References 19 publications

Assessing seizure burden in pediatric epilepsy using an electronic medical record–based tool through a common data element approach

Assessing seizure burden in pediatric epilepsy using an electronic medical record–based tool through a common data element approach

Human Factors and Organizational Issues in Health Informatics: Innovations and Opportunities

Recommendations for development of acute seizure action plans (ASAPs) from an expert panel

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