Developing a smartphone application to support social connectedness and wellbeing in young people with cystic fibrosis

Francis, Jacinta; Cross, Donna; Schultz, André; Armstrong, David; Nguyen, Rebecca; Branch-Smith, Cindy

doi:10.1016/j.jcf.2019.12.011

Cited by 22 publications

(22 citation statements)

References 18 publications

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“…Individual participants were interviewed by telephone with responses elicited using a semi-structured framework (Table 1). Interviews were conducted by author RN who worked as a Digital Health Research Officer on this project, utilising her 3 years of experience as a Youth Consumer Advocate [with the Consumer and Community Health Research Network (Telethon Kids Institute), the Commissioner for Children and Youth People, and Department of Health (Western Australia)] and expertise gained conducting interviews with young people that also have used Design Thinking frameworks (e.g., for the Cystic Fibrosis app [10]). RN has relevant qualifications from Stanford University (General Assembly, Design Thinking course), Echos-Innovations Lab (Design Thinking course) and Curtin University [Bachelor of Commerce (Information Technology)].…”

Section: Semi-structured Interviewsmentioning

confidence: 99%

Sun-health behaviours and attitudes towards sun safety amongst Australian teenagers: a qualitative update

et al. 2021

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Objective This study aimed to explore current attitudes towards sun protection, and sun-seeking behaviour among young Australian adolescents. It was done as part of a larger project aiming to develop a digital resource to support young people in making informed sun-health decisions. Results Ten (4 male, 6 female) adolescents (12–13 years of age) living in Perth (Western Australia) were recruited through a social media-based strategy. Each participant engaged in a semi-structured telephone interview which explored their sun-health decision-making, with interview transcripts assessed qualitatively using NVivo. Three major themes (and eight sub-themes) were identified: (1) ‘personal sun health considerations’; (2) ‘attitudes towards sun protection’; and (3) ‘recommendations’. The importance of sun protection was appreciated by participants. However, females were more diligent in the use of sun protection while males were indifferent. Behaviours were influenced by parental input, the school environment and engagement in sport. Adolescents had limited knowledge of the UV Index and its implications for sun protection, and the health importance of sun-derived vitamin D. Overall, the importance of sun protection was acknowledged but did not consistently translate into sun protective behaviours.

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Section: Semi-structured Interviewsmentioning

confidence: 99%

Sun-health behaviours and attitudes towards sun safety amongst Australian teenagers: a qualitative update

et al. 2021

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“…• Actividades de índole religioso o espiritual de acuerdo con la creencia del paciente y familiares. • Desarrollo de aplicaciones vía Smartphone 172 que contribuyan a aliviar la depresión y aislamiento social en pacientes jóvenes con enfermedad avanzada.…”

Section: Intervenciones De Manejo No Farmacológicasunclassified

“…la necesidad del aporte de oxígeno no se correlaciona con la severidad de la disnea en el paciente con disnea refractaria. la oxigenoterapia es un elemento más en el CP de estos pacientes y su indicación forma parte de las buenas prácticas 172 15. Salud mental de mucha importancia es que los centros que controlan pacientes con FQ cuenten con psicólogo clínico que aborde distintos aspectos que tienen repercusión psicológica y que formen equipo con psiquiatras que deben manejar patología más severa.…”

Section: Oxígeno Paliativounclassified

Consenso chileno para la atención integral de niños y adultos con fibrosis quística

Boza

Melo

Barja

et al. 2020

Rev. chil. enferm. respir.

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Chilean consensus for the integral care of children and adults with cystic fibrosisCystic Fibrosis (CF) is the most frequent hereditary disease in whites, with a reserved prognosis. Since 2003, Chile began a comprehensive National Cystic Fibrosis Program, directed by the Respiratory Health Unit of the Ministry of Health. To date, the main results of the Program record a significantly longer survival (average 27 years) and a significant reduction in the age of diagnosis of patients admitted from 2006 onwards. Access to Chilean Explicit Health Guarantees, the implementation of neonatal screening in some regions of the country, the organization and setting up of CF-trained teams of various specialties, has contributed to improving results. Although the main manifestations are of the respiratory and digestive system, the multisystemic nature of CF makes it necessary to know the different aspects involved in its management, in order to optimize the results of the treatment and the resources invested, both in the public and private sectors. This document is a review and an update on the main aspects of the diagnosis, monitoring and treatment of the respiratory and non-respiratory manifestations of CF.

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“…La oxigenoterapia es un elemento más en el CP de estos pacientes y su indicación forma parte de las buenas prácticas. (172)…”

Section: Oxígeno Paliativounclassified

Consenso Chileno Para La Atención Integral De Niños Y Adultos Con Fibrosis Quística

C¹,

T.²,

Y³

et al. 2020

Neumol Pediatr

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La Fibrosis Quística (FQ) es la enfermedad hereditaria de pronóstico reservado más frecuente en raza blanca. Desde el año 2003, Chile inicia un Programa Nacional de Fibrosis Quística, de carácter integral, dirigido por la Unidad de Salud Respiratoria del Ministerio de Salud. Hasta la fecha, los principales resultados del Programa registran una significativa mayor sobrevida (promedio 27 años) y una significativa reducción en la edad de diagnóstico de los pacientes ingresados desde 2006 en adelante. El acceso a la canasta GES (Garantías Explícitas en Salud), la implementación del tamizaje neonatal en algunas regiones del país, la organización y la constitución de equipos entrenados en FQ de diversas especialidades, ha contribuido a mejorar los resultados. Si bien las principales manifestaciones son del aparato respiratorio y digestivo, el carácter multisistémico de la FQ obliga a conocer los distintos aspectos involucrados en su manejo, a fin de optimizar los resultados del tratamiento y los recursos invertidos, tanto en el sector público como privado. Este documento es una revisión y actualización sobre los principales aspectos del diagnóstico, seguimiento y tratamiento de las manifestaciones respiratorias y no respiratorias de la FQ.

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Developing a smartphone application to support social connectedness and wellbeing in young people with cystic fibrosis

Cited by 22 publications

References 18 publications

Sun-health behaviours and attitudes towards sun safety amongst Australian teenagers: a qualitative update

Sun-health behaviours and attitudes towards sun safety amongst Australian teenagers: a qualitative update

Consenso chileno para la atención integral de niños y adultos con fibrosis quística

Consenso Chileno Para La Atención Integral De Niños Y Adultos Con Fibrosis Quística

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