Developing and piloting the QOMID – quality outcome measure for individuals with intellectual disabilities and dementia

Dodd, Karen; Bush, Alick; Livesey, Alexandra

doi:10.1108/amhid-12-2014-0041

Cited by 5 publications

(3 citation statements)

References 27 publications

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“…Non-pharmacological approaches Non-pharmacological approaches have been shown to be useful, versatile, and costeffective in improving outcomes and quality of life among adults with dementia (Olazaran et al, 2010). These approaches should also enhance the quality of life of persons with intellectual disability affected by dementia, and should be used in combination as needed for each person, and be able to demonstrate effectiveness (Dodd et al, 2015;Gitlin, Kales, & Lyketsos, 2012). All approaches and practices should be subject to periodic and regular review as outlined in our model of the components of PDS.…”

Section: Pds Model With Application To Intellectual Disabilitymentioning

confidence: 99%

Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support

Dodd

Watchman

Janicki

et al. 2017

Aging & Mental Health

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Objectives: Post diagnostic support (PDS) has varied definitions within mainstream dementia services and different health and social care organizations, encompassing a range of supports that are offered to adults once diagnosed with dementia until death. Method: An international summit on intellectual disability and dementia held in Glasgow, Scotland in 2016 identified how PDS applies to adults with an intellectual disability and dementia. The Summit proposed a model that encompassed seven focal areas: post-diagnostic counseling; psychological and medical surveillance; periodic reviews and adjustments to the dementia care plan; early identification of behaviour and psychological symptoms; reviews of care practices and supports for advanced dementia and end of life; supports to carers/ support staff; and evaluation of quality of life. It also explored current practices in providing PDS in intellectual disability services. Results: The Summit concluded that although there is limited research evidence for pharmacological or non-pharmacological interventions for people with intellectual disability and dementia, viable resources and guidelines describe practical approaches drawn from clinical practice. Post diagnostic support is essential, and the model components in place for the general population, and proposed here for use within the intellectual disability field, need to be individualized and adapted to the person's needs as dementia progresses. Conclusions: Recommendations for future research include examining the prevalence and nature of behavioral and psychological symptoms (BPSD) in adults with an intellectual disability who develop dementia, the effectiveness of different non-pharmacological interventions, the interaction between pharmacological and non-pharmacological interventions, and the utility of different models of support.

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Section: Pds Model With Application To Intellectual Disabilitymentioning

confidence: 99%

Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support

Dodd

Watchman

Janicki

et al. 2017

Aging & Mental Health

Self Cite

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“…The QOMID is an easy-to-use tool with 17 outcome domains with good reliability and face validity (Dodd et al , 2015). The list of QOMID domains can be seen below (Source: list by authors).…”

Section: Introductionmentioning

confidence: 99%

“…The consensus statement of the international summit on LD and dementia related to post-diagnostic support makes several recommendations including evaluating quality of life and regularly reviewing care and support provided to the person with dementia (Dodd et al , 2018). There are limited evidenced based tools for assessment of dementia in people with LD (Zeilinger et al , 2020; Zeilinger et al , 2022) and even fewer quality outcome measures that can be used in this population (Dodd et al , 2015). The QOMID is freely available to all services and can be accessed online through the British Psychological Society website.…”

Section: Introductionmentioning

confidence: 99%

Outcomes of use of the quality outcome measure for individuals with dementia (QOMID) with people with Down’s syndrome and dementia

Ryan

Dodd

2023

AMHID

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Purpose This paper aims to describe the outcomes of the use of the Quality Outcome Measure for individuals with dementia (QOMID) within a dementia pathway for people with Down’s syndrome (DS). The QOMID is a tool for clinicians to use with 17 outcome domains, each with descriptors for early, mid and late stage dementia, rated on a four point scale from rarely achieved for the person (1) to consistently and completely achieved for the person (4). Design/methodology/approach Data from first time use of the QOMID with 49 people with DS and dementia was analysed to determine if specific outcome domains are more achievable than others, if this differs by stage of dementia and what recommendations are suggested. Findings Results suggest that there were significant differences in achievability across the domains but that achievability did not vary between early and mid-stages of dementia. The themes with most recommendations were: quality of paperwork and documentation; improving communication with the person with DS and dementia; and working together with health and social care professionals. Practical implications Results suggest that outcomes which fall outside of the typical learning disabilities skillset and are dementia specific are being achieved less often. Primarily, recommendations focused on practical solutions such as using visual timetables to communicate with the person and adapting their environment. Further work on integrating the QOMID and stage-related team training for care staff is underway. Originality/value To the best of the authors’ knowledge, this is the first detailed analysis of the use of the QOMID in clinical practice with people with DS and dementia.

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A scoping review of post-diagnostic dementia supports for people with intellectual disability

Dennehy

Allen

McGlinchey

et al. 2022

Aging & Mental Health

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Developing and piloting the QOMID – quality outcome measure for individuals with intellectual disabilities and dementia

Cited by 5 publications

References 27 publications

Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support

Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support

Outcomes of use of the quality outcome measure for individuals with dementia (QOMID) with people with Down’s syndrome and dementia

A scoping review of post-diagnostic dementia supports for people with intellectual disability

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