Developing CIRCA-BC and Exploring the Role of the Computer as a Third Participant in Conversation

Purves, Barbara; Phinney, Alison; Hulko, Wendy; Puurveen, Gloria; Astell, Arlene

doi:10.1177/1533317514539031

Cited by 33 publications

(55 citation statements)

References 13 publications

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“…One study performed a line‐by‐line descriptive analysis of interaction to identify specific themes related to the content and format of an adapted programme (Purves et al . ). In the remaining two studies, semi‐structured interviews or conversations with participants were thematically coded via a process of consensus building by the researchers (Fried‐Oken et al .…”

Section: Resultsmentioning

confidence: 94%

“…, Purves et al . ). PowerPoint videos with personal and general content (Davis and Shenk ) and a multimedia digital life history consisting of past memories and wearable computing technology (SenseCam) (Crete‐Nishihata et al .…”

Section: Resultsmentioning

confidence: 99%

“…, Ruiz ) or computer‐based multimedia (Purves et al . ) to be culturally, linguistically or socially relevant to persons with dementia who are from Chinese, Hispanic or multicultural backgrounds.…”

Section: Resultsmentioning

confidence: 99%

“…, Purves et al . ), three studies on unaided AAC systems (Ellis and Astell , Hydén , Kindell et al . ), and one study using a combination of AAC systems (Wong et al .…”

Section: Resultsmentioning

confidence: 99%

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Review of AAC interventions in persons with dementia

May

Dada

Murray

2019

Intl J Lang & Comm Disor

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Background: Communication is an important priority in dementia research. Communication strategies and scaffolds, specifically through augmentative and alternative communication (AAC), offer vital compensatory support for persons with dementia in an attempt to maintain the latter's quality of life and well-being through participation with others. To date, no research review has been published that synthesizes the current research of AAC in the field of dementia. Aims: To provide an overview of current AAC strategies and techniques used for supporting communication in dementia by surveying the literature base in a systematic manner, synthesizing the findings and highlighting trends and gaps. Methods & Procedures:A multifaceted search strategy included nine electronic database searches, using specific keywords. Application of predefined selection criteria during screening procedures led to the inclusion of 39 studies. Data were extracted and studies synthesized according to communication partners; description of AAC strategies and techniques; outcome measures; and communication outcomes.Main Contribution: This review shows that the majority of the research to date has focused on supporting the interactions of persons with dementia of the Alzheimer's type (DAT) using non-electronic memory and communication aids. Future research should focus on social participation and person-centred communication to optimize functional communication with AAC. Training programmes targeting dyadic interaction and supporting persons with dementia from diverse ethnic backgrounds are avenues for further research. Conclusions: Research trends and, more importantly, the gaps highlighted in this research review present speechlanguage therapists and researchers with a set of current priorities that are necessary for the advancement of the knowledge base. What this paper addsWhat is already known on the subject Communication strategies and scaffolds, specifically through AAC, are known to offer vital compensatory support for persons with dementia. Studies of AAC in dementia are scattered across previous reviews based on the focus and scope of each enquiry. No current reviews exist that have specifically focused on supporting dementia-related communication with AAC. As such, a more systematic approach to synthesize the current knowledge base is required. What this paper adds to existing knowledgeThis research review is the first to search the literature systematically: first, to locate studies focused on AAC that are used to support communication in persons with dementia; and second, to synthesize the findings obtained. 858Auriel A. May et al. What are the potential or actual clinical implications of this work?This review makes a unique contribution to the field of dementia by presenting researchers with a set of current priorities that are necessary for the advancement of the knowledge base.

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Section: Resultsmentioning

confidence: 94%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…, Purves et al . ), three studies on unaided AAC systems (Ellis and Astell , Hydén , Kindell et al . ), and one study using a combination of AAC systems (Wong et al .…”

Section: Resultsmentioning

confidence: 99%

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Review of AAC interventions in persons with dementia

May

Dada

Murray

2019

Intl J Lang & Comm Disor

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“…In addition, speaking in a calm tone, maintaining eye contact, using physical contact, and eliminating environmental distractions are noted to support communication (Alzheimer's Society, 2016). generating devices, and memory aids such as biographical books or reminiscence boxes (Finke et al, 2008;Murphy et al, 2005;Purves et al, 2015). Storytelling and life story work have also been suggested as useful conversational approaches to help the person express their experiences, retain their sense of self, as well as develop and maintain relationships (McKeown et al, 2015).…”

mentioning

confidence: 99%

What is good communication for people living with dementia? A mixed-methods systematic review

Alsawy

Mansell

McEvoy³

et al. 2017

Int. Psychogeriatr.

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1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 IntroductionDementia involves progressive decline in several cognitive abilities including processing speed, memory, language, and executive functioning (Alzheimer's Association, 2016). Although there are specific differences between the types of dementia which are described in detail elsewhere (Alzheimer's Association, 2000), problems with communication arise across all dementia types. In early stages of dementia, word finding (anomia), writing, and understanding complex language such as analogies become more problematic (Haak, 2002). As dementia progresses to its middle stages, spoken language has reduced meaningful content, words may be inappropriately substituted, written information becomes difficult to understand, and multi-step commands are difficult to follow or conceptualize (Haak, 2002). In later stages, the individual may produce streams of nonsensical language or become mute (Alzheimer's Association, 2016). Given deterioration in language, individuals may be unable to communicate their needs (e.g., pain) and carers might struggle to understand what the person is attempting to communicate (Alzheimer's Society, 2016).Such communication discord could result in the person's needs being unmet, reduce their wellbeing, and heighten their distress (Alzheimer's Society, 2016; Downs and Bowers, 2014).To overcome language production and comprehension difficulties, communication strategies have been recommended (Egan et al., 2010; Downs and Bowers, 2014; Kindell et al., 2016). Verbal strategies include short and simple sentences, verbatim repetition, paraphrasing, and conveying one question or idea at a time (Alzheimer's Society, 2016). In addition, speaking in a calm tone, maintaining eye contact, using physical contact, and eliminating environmental distractions are noted to support communication (Alzheimer's Society, 2016). A range of augmentative and alternative communication (ACC) methods are also used to facilitate communication. These include picture boards, Talking-Mats, personal communication dictionaries, computerized speechgenerating devices, and memory aids such as biographical books or reminiscence boxes (Finke et al., 2008; Murphy et al., 2005; Purves et al., 2015). Storytelling and life story work have also been 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 unclear. Historically, people with dementia have been excluded from research as they were assumed to be incapable of participating due to cognitive declines (Cottrell and Schultz, 1993). However, it is increasingly recognized that this population experience thoughts and feelings and remain capable of expressing their opinions (Benbow and Ki...

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