Developing clinical ethics support for an Australian Health Service: A survey of clinician’s experiences and views

Fuscaldo, Giuliana; Cadwell, M S; Wallis, K.; Fry, Lisa; Rogers, Mark

doi:10.1080/23294515.2019.1576800

Cited by 7 publications

(9 citation statements)

References 26 publications

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“…Facing shifts in sociocultural paradigms, resource pressures and increasing complexities of medical care [1], the role of Clinical Ethics Committees (CEC)s has evolved. Whilst retaining its original role in facilitating "the process and outcomes of patient care by helping to identity, analyze, and resolve" ethical, moral and legal issues in clinical care [2] CECs have come to adopt active roles in education and policy making.…”

Section: Introductionmentioning

confidence: 99%

Evaluating assessment tools of the quality of clinical ethics consultations: a systematic scoping review from 1992 to 2019

et al. 2020

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Background: Amidst expanding roles in education and policy making, questions have been raised about the ability of Clinical Ethics Committees (CEC) s to carry out effective ethics consultations (CECons). However recent reviews of CECs suggest that there is no uniformity to CECons and no effective means of assessing the quality of CECons. To address this gap a systematic scoping review of prevailing tools used to assess CECons was performed to foreground and guide the design of a tool to evaluate the quality of CECons. Methods: Guided by Levac et al's (2010) methodological framework for conducting scoping reviews, the research team performed independent literature reviews of accounts of assessments of CECons published in six databases. The included articles were independently analyzed using content and thematic analysis to enhance the validity of the findings. Results: Nine thousand sixty-six abstracts were identified, 617 full-text articles were reviewed, 104 articles were analyzed and four themes were identifiedthe purpose of the CECons evaluation, the various domains assessed, the methods of assessment used and the long-term impact of these evaluations. Conclusion: This review found prevailing assessments of CECons to be piecemeal due to variable goals, contextual factors and practical limitations. The diversity in domains assessed and tools used foregrounds the lack of minimum standards upheld to ensure baseline efficacy. To advance a contextually appropriate, culturally sensitive, program specific assessment tool to assess CECons, clear structural and competency guidelines must be established in the curation of CECons programs, to evaluate their true efficacy and maintain clinical, legal and ethical standards.

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Section: Introductionmentioning

confidence: 99%

Evaluating assessment tools of the quality of clinical ethics consultations: a systematic scoping review from 1992 to 2019

et al. 2020

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“…Such services range from multidisciplinary committee group discussions to case consultation with a clinical ethics consultant. Clinical ethics services are increasingly recognized as providing critically important support and advice to treating teams grappling with complex ethical scenarios like Aisha's (e.g., Slowther, et al., 2012, Fuscaldo, et al., 2019, Fox, et al., 2021). There is a great advantage in being able to draw on the reflections of others who are not directly involved in the care of the family and have well‐developed understanding of ethical issues and processes in clinical settings and may help the different teams think through their responsibilities and whether there are ways that Aisha's needs and her parent's needs are being overlooked.…”

Section: Case #3 Hospital Inpatientmentioning

confidence: 99%

Ethical dilemmas in infant mental health: Examples from child protection, home visiting, and medical contexts

Zeanah,

Korfmacher,

Lim

et al. 2023

Infant Mental Health Journal

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Infant mental health is explicitly relational and strengths based as a field. Ethical dilemmas in infant mental health have received insufficient attention at the level of infant mental health professionals (IMHP) and other professionals caring for infants who must grapple with questions of when caregivers and infants have conflicting interests. We present composite cases drawn from North American and Australian contexts, using three systems in which such conflicts may commonly manifest: child protection, home visiting, and medical settings. The field of infant and early childhood mental health (IECMH) should begin to discuss such dilemmas and how best to balance the needs of caregivers and infants when they are not well aligned.

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“…Over the last couple of decades, however, bioethicists have gradually recognized the need for a more multi-and interdisciplinary set of methodologies, leading to what is now commonly referred to as 'the empirical turn' in bioethics. 1 This diversification in research approaches has undoubtedly enriched the field, allowing rigorous investigations through theoretical work, as well as empirical work involving quantitative 2,3 and qualitative 4,5 methods. However, the methodology of empirical bioethics has so far relied heavily on established methodology of adjacent fields such as psychology and social sciences: surveys, interviews, case studies and so forth.…”

Section: Designing Bioethics Researchmentioning

confidence: 99%

“…F I G U R E 8 Example of a social media marketing asset As a field, empirical bioethics has remained largely reliant on 'traditional' instruments such as surveys, 2,3 interviews and the occasional panel 4,5 to substantiate claims and investigate ethical dilemmas. With a few exceptions, [14][15][16] It was important that our academic team was multidisciplinary to enable translation of bioethics concepts into empirical methodology and that industry partners had game design expertise, youth marketing experience and technical resources and support.…”

Section: Step 3: Develop Test and Iterate Prototypesmentioning

confidence: 99%

How to build a game for empirical bioethics research: The case of ‘Tracing Tomorrow’

Lyreskog

Pavarini

Lorimer

et al. 2021

Health Expectations

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It is becoming increasingly clear that the field of empirical bioethics requires methodological innovations that can keep up with the scale and pace of contemporary research in health and medicine. With that in mind, we have recently argued for Design Bioethicsthe use of purpose-built, engineered research tools that allow researchers to investigate moral decision-making in ways that are embodied and contextualized. In this paper, we outline the development, testing and implementation of a novel prototype tool in the Design Bioethics Workshop-with each step illustrated with collected data. Titled 'Tracing Tomorrow' (www.tracingtomorrow.org), the tool is a narrative game to investigate young people's values and preferences in the context of digital phenotyping for mental health.The process involved (1) Working with young people to discover, validate and define the morally relevant cases or problems, (2) Building and testing the game concept in collaboration with relevant groups and game developers, (3) Developing prototypes that were tested and iterated in partnership with groups of young people and game developers and (4) Disseminating the game to young people to collect data to investigate research questions. We argue that Design Bioethics yields tools that are relevant, representative and meaningful to target populations and provide improved data for bioethics analysis. Patient or Public Contribution:In planning and conducting this study, we consulted with young people from a diverse range of backgrounds, including the NeurOX Young People's Advisory Group, the What Lies Ahead Junior Researchers Team, Censuswide youth participants and young people from the Livity Youth Network.

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Developing clinical ethics support for an Australian Health Service: A survey of clinician’s experiences and views

Cited by 7 publications

References 26 publications

Evaluating assessment tools of the quality of clinical ethics consultations: a systematic scoping review from 1992 to 2019

Evaluating assessment tools of the quality of clinical ethics consultations: a systematic scoping review from 1992 to 2019

Ethical dilemmas in infant mental health: Examples from child protection, home visiting, and medical contexts

How to build a game for empirical bioethics research: The case of ‘Tracing Tomorrow’

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