Developing Instruments for Cross-Cultural Psychiatric Research

Flaherty, Joseph A.; Gaviria, F. Moises; Pathak, Dev S.; Mitchell, Timothy; Wintrob, Ronald M.; Richman, Judith A.; Birz, Susan

doi:10.1097/00005053-198805000-00001

Cited by 639 publications

(647 citation statements)

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“…The translation process may have resulted in variations in meaning and interpretation of the questionnaire and there may also be a loss of culturally specific meanings. 37 …”

Section: Study Limitationsmentioning

confidence: 99%

Preferences for prenatal tests for Down syndrome: an international comparison of the views of pregnant women and health professionals

et al. 2015

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Non-invasive prenatal testing is increasingly available worldwide and stakeholder viewpoints are essential to guide implementation. Here we compare the preferences of women and health professionals from nine different countries towards attributes of non-invasive and invasive prenatal tests for Down syndrome. A discrete choice experiment was used to obtain participants' stated preference for prenatal tests that varied according to four attributes: accuracy, time of test, risk of miscarriage, and type of information. Pregnant women and health professionals were recruited from Canada, Denmark, Iceland, Israel, Italy, the Netherlands, Portugal, Singapore, and the United Kingdom. A total of 2666 women's and 1245 health professionals' questionnaires were included in the analysis. Differences in preferences were seen between women and health professionals within and between countries. Overall, women placed greater emphasis on test safety and comprehensive information than health professionals, who emphasised accuracy and early testing. Differences between women's and health professionals' preferences are marked between countries. Varied approaches to implementation and service delivery are therefore needed and individual countries should develop guidelines appropriate for their own social and screening contexts. INTRODUCTIONMany countries have established prenatal screening programmes for Down syndrome (DS), where an initial screening test is followed by the offer of an invasive diagnostic test for women with a 'high risk' result to allow definitive diagnosis. Non-invasive prenatal testing (NIPT), which analyses cell-free DNA in maternal plasma, is rapidly transforming prenatal testing for DS worldwide. 1 NIPT can be used from 10 weeks in pregnancy to screen for DS with high sensitivity (99.3%) and specificity (99.8%) and can detect other common chromosomal aneuploidies (Trisomy 18, Trisomy 13, and Monosomy X). 2,3 NIPT allows screening for these conditions with much greater specificity than traditional DS screening (DSS) 4 and thereby significantly reduces the need for invasive testing (chorionic villus sampling or amniocentesis) with the associated small miscarriage risk. 5

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“…The translation process may have resulted in variations in meaning and interpretation of the questionnaire and there may also be a loss of culturally specific meanings. 37 …”

Section: Study Limitationsmentioning

confidence: 99%

Preferences for prenatal tests for Down syndrome: an international comparison of the views of pregnant women and health professionals

et al. 2015

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“…In literature it is described that there are differences in health-related quality of life measures between different cultures. In 1988 Flaherty et al [17] already described that researchers should give particular attention to cross-cultural validity when an instrument designed in one culture is used in a second culture. Consequently, in 1993 Guillemin et al [1] described their guidelines for cross-cultural adaptation of health-related quality-of-life measures based on a systematic review of translated questionnaires.…”

Section: Statistical Analysis and Considerationsmentioning

confidence: 99%

Cross-cultural Adaptation and Validation of the Dutch Version of SWAL-QoL

et al. 2008

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The aim of this work was to translate the 44-item SWAL-QoL into Dutch (SWAL-QoL-NL) and compare the validity of this questionnaire against Euroqol in a Dutch population with dysphagia. SWAL-QoL was translated according to international guidelines. SWAL-QoL-NL and Euroqol were completed by 152 patients in seven diagnosis groups. Internal consistency and correlations were calculated. Scores for nine subscales (General burden, Food selection, Eating duration, Fear of eating, Sleep, Fatigue, Mental health, Social functioning and a symptom score) ranged between 0.80 and 0.92 (Cronbach's a). Two subscales (Eating desire and Communication scored 0.67 and 0.60, respectively, and were removed from the questionnaire. The 14-item battery on clinical symptoms showed an internal consistency of 0.80, allowing the use of a sum score on group level in clinical research. Correlation of SWALQoL-NL subscales with the Euroqol was negligible to low (Pearson's correlations range = 0.09-0.36). The 39-item SWAL-QoL-NL proved to be a reliable tool to examine the impact of dysphagia on quality of life in a Dutch population. Internal consistency allows the use of nine subscales of SWAL-QoL-NL for comparisons on a group level (0.80 \ a \ 0.92) only. Also a Symptom score can be derived from the raw data.

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“…12 Once the at-risk individuals are identified by a screening tool, the subsequent step is a psychiatric interview. 2,9,11 In this second stage, physicians and researchers can obtain a thorough comprehensive diagnosis. Assessment instruments must be developed or adapted to different cultural circumstances.…”

Section: Introductionmentioning

confidence: 99%

Psychometric properties of the Brazilian version of the Personal Experience Screening Questionnaire

Fidalgo

Silveira

Winters

et al. 2016

Rev. Assoc. Med. Bras.

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Summary Introduction: The Personal Experience Screening Questionnaire (PESQ) is an instrument devised for assessing the magnitude of drug misuse among adolescents. However, its psychometric properties have not been evaluated in adolescent samples outside the United States. Objective: To assess the internal reliability and validity of the Brazilian version of the PESQ. Method: A cross-sectional study was carried out with 84 adolescents from a clinical sample and a community-based sample. All of them answered the PESQ. Results: Among adolescents from the community, the PESQ problem severity index, which can vary from 18 to 72, was 26.48±9.28, whereas the clinical sample scored 42.89±10.02 (p<0.001). Cronbach's alpha was 0.91. Factor analysis resulted in a four-factor solution. Furthermore, both samples also had different mean scores for the other distinct content areas measured by the instrument. Conclusion: Evidence to support the reliability and validity of the Brazilian version of the Personal Experience Questionnaire was found.

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Developing Instruments for Cross-Cultural Psychiatric Research

Cited by 639 publications

References 0 publications

Preferences for prenatal tests for Down syndrome: an international comparison of the views of pregnant women and health professionals

Preferences for prenatal tests for Down syndrome: an international comparison of the views of pregnant women and health professionals

Cross-cultural Adaptation and Validation of the Dutch Version of SWAL-QoL

Psychometric properties of the Brazilian version of the Personal Experience Screening Questionnaire

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