Developing Life Skills in Haemodialysis Using the Guided Self‐determination Method: A Qualitative Study

Finderup, Jeanette; Bjerre, Tina; Soendergaard, Aase; Nielsen, Mette Elisabeth; Zoffmann, Vibeke

doi:10.1111/jorc.12146

Cited by 10 publications

(18 citation statements)

References 28 publications

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“…Guided Self‐Determination supports reflection, collaboration and changes in the patients’ lives facilitated by the development of life skills in dealing with the disease 18,25. Life skills are a comprehensive concept defined as: ‘Those personal, social, cognitive and physical skills that enable a person to control and direct their lives and develop the capacity to live with and produce change in their environment’ 32.…”

Section: Methodsmentioning

confidence: 99%

“…It includes patient reflection sheets and conversations with healthcare professionals (HCPs). It has successfully been transferred to other patient groups including parents to premature children 17, patients in dialysis 18 and patients with schizophrenia 19,20 and cancer 21,22. In diabetes, GSD improved glycemic control 23 and has reduced disease‐related distress 24.…”

Section: Introductionmentioning

confidence: 99%

“…In diabetes, GSD improved glycemic control 23 and has reduced disease‐related distress 24. Qualitative evaluations in the diabetes and dialysis settings have shown GSD to be a useful person‐centred problem‐solving tool that facilitates the development of life skills 18,25. In a nurse‐led stepped‐care intervention, GSD improved physical QOL 22 and the development of relational competencies and problem‐solving skills in gynaecological cancer survivors 26.…”

Section: Introductionmentioning

confidence: 99%

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About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

Simonsen

Strømberg

Zoffmann

et al. 2019

Scandinavian Caring Sciences

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About me as a person not only the diseasepiloting Guided Self-Determination in an outpatient endometriosis setting Introduction: Endometriosis is a chronic disease affecting 5-10% of women in the reproductive age. Despite surgical and medical treatment, many women struggle with pain, infertility, sexual dysfunction, depression, distress and reduced workability, affecting their overall quality of life. The usual follow-up procedures may not support the women's self-management of this condition. Therefore, person-centred empowerment-based approaches are needed. Aim: To assess if the implementation of the Guided Self-Determination method targeted women with complex endometriosis appeared feasible and supported selfmanagement. Methods: Guided Self-Determination was offered to 10 outpatients with complex endometriosis. Each of the women had five conversations based on prefilled diseasespecific reflection sheets. A qualitative evaluation was conducted in 2016-2017 covering semi-structured, telephone interviews and focus group interviews, which were analysed using thematic analysis. Additionally, we assessed if the women changed the self-reported questionnaires, Endometriosis Health Profile 30 and the Patient Activation Measure from before and after the conversations. Results: We identified four themes: feeling alone with the disease; establishing a meaningful relationship with healthcare professionals in a traditional hospital setting; person-specific knowledge facilitated new behaviours and; accepting a chronic conditionthe beginning of a process. All dimensions of the Endometriosis Health Profile 30 and the Patient Activation Measure appeared to improve at two weeks and so did almost all the dimensions of Endometriosis Health Profile 30 after 1 year. Conclusions: The implementation of the Guided Self-Determination method appeared feasible and the women developed self-management skills in relation to endometriosis and its symptoms. This was achieved by increasing insight into their needs and behaviours and gaining new knowledge about the disease itself. The before-and-after assessment suggested benefit of the intervention, but this should be further tested in a randomised trial.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

Simonsen

Strømberg

Zoffmann

et al. 2019

Scandinavian Caring Sciences

Self Cite

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“…A few studies have looked at one or a few symptoms in Danish patients with ESKD from the perspective of patients, relatives or health care professionals (HCPs; Baek, Poulsen, Agerskov, & Pedersen, 2011; Grove, Schougaard, Hjollund, & Ivarsen, 2018; Prescott, Eidemak, Harrison, & Molsted, 2014; Soendergaard & Juul, 2010; Tarp, Bonde‐Petersen, & Finderup, 2017). Other studies described patients' or relatives' experiences of the palliative care needs of Danish patients receiving HD (Agnholt, Galsgaard, Schlosser, Lahoz, & Leschly, 2008; Blindbaek, Thorring, & Ehlers, 2014; Finderup, Bjerre, Soendergaard, Nielsen, & Zoffmann, 2016; Knudsen, Eidemak, & Molsted, 2016; Lee, Gudex, Povlsen, Bonnevie, & Nielsen, 2008; Molsted, Aadahl, Schou, & Eidemak, 2004; Molsted, Prescott, Heaf, & Eidemak, 2007; The Kidney Association, 2009), patients receiving PD (Agnholt et al, 2008; Blindbaek et al, 2014; Frandsen, 2009; Lee et al, 2008; The Kidney Association, 2009), or of patients on a CKM pathway (Agnholt, Kristiansen, & Pedersen, 2017; Blindbaek et al, 2014; Lee et al, 2008; The Kidney Association, 2009), respectively. We identified no studies that described the total burden of palliative care needs from the HCP perspective.…”

Section: Introductionmentioning

confidence: 99%

Palliative care needs experienced by Danish patients with end‐stage kidney disease

Boje

Madsen

Finderup

2020

Journal of Renal Care

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Background Patients with end‐stage kidney disease (ESKD) may have palliative care needs. A tool validated in a Danish context to identify such needs is lacking. The Integrated Palliative Outcome Scale—Renal (IPOS‐Renal) aims to identify patients' palliative care needs. The current study is the first phase of a research project translating and validating the IPOS‐Renal into Danish. Objectives To investigate palliative care needs among Danish patients with ESKD. Design A literature review was conducted using meta‐ethnography inspired by Noblit and Hare. A focus group with health care professionals (HCPs) and semi‐structured individual patient interviews were conducted and analysed using Malterud's principles of systematic text condensation. Results A synthesis of 15 studies, a focus group with 13 HCPs, and interviews with nine patients were conducted. We found that patients with ESKD experienced several symptoms related to physical, social, mental and existential and practical needs. The most prominent findings were fatigue, reduced physical functioning, dizziness, impaired memory, dependency on relatives or HCPs, social isolation and loss of identity. Conclusion The palliative care needs identified in the Danish patient population are substantiated by the IPOS‐Renal questionnaire. However, some Danish patients also appear to struggle with dizziness and impaired memory. These symptoms do not appear specifically in the IPOS‐Renal questionnaire but may have to be included in a Danish version.

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“…For patients, living with dialysis causes many limitations in daily life and a need to accept an uncertain future (Petersson & Lennerling ). Due to the complexity of dialysis treatment and care, patients may experience problems with safety, but their experiences can be underpinned with empowering interventions (Finderup et al ).…”

Section: Introductionmentioning

confidence: 99%

Experiences of safety among patients receiving home dialysis therapies

Virtanen

Tuominen

Kiukainen

et al. 2019

Journal of Renal Care

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SUMMARY Background Dialysis patients' experience of safety can be seen positively connected with their wellbeing and successful outcomes of their treatment and care. Therefore, it is necessary to identify the factors promoting and weakening the safety experiences and create a basis for empowering interventions. Objectives Analyse patients' experiences of safety with dialysis and the factors promoting and weakening their safety. Methods A descriptive study design was used. This study analysed Finnish patients' (n = 70) experiences of safety with dialysis and the factors promoting and weakening patients' safety. Data were collected using a questionnaire including one structured question and two open questions. Findings The patients experienced their care as safe. Thematic analysis provided three factors promoting patients' safety: certainty of patient's own competence in dialysis self‐management, competence of personnel in dialysis treatment and care, continuity of ensuring patients' state of health, as well as three factors weakening safety: patients' uncertainty of living with chronic kidney disease, insufficient patient education and uncertain realisation of dialysis treatment and care. Conclusion This study provided new insight into understanding patients' experiences of safety with dialysis. We show that the factors connected with patients' safety were related to the successful realisation of self‐management, support for the self‐management, and delivery of dialysis treatment and care anticipating high‐level outcomes. In light of this study, there are development needs in dialysis treatment and care as a whole in order to ensure patients' safety.

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Developing Life Skills in Haemodialysis Using the Guided Self‐determination Method: A Qualitative Study

Abstract: The positive changes identified in this qualitative evaluation are promising and indicate that GSD-HD has a potential worthwhile to be tested further among patients with ESRD.

Cited by 10 publications

References 28 publications

About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

Palliative care needs experienced by Danish patients with end‐stage kidney disease

Experiences of safety among patients receiving home dialysis therapies

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