Developing narrative research in supportive and palliative care: the focus on illness narratives

Bingley, Amanda; Thomas, Carol; Brown, Janice; Reeve, Joanne; Payne, Sheila

doi:10.1177/0269216308089842

Cited by 78 publications

(78 citation statements)

References 33 publications

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“…Narrative research involving palliative care offers deep insights into the many, often invisible, aspects of this work, including the conflicts and difficulties (Wittenberg-Lyles, Greene and Sanchez-Reilly 2007). The literature highlights that narrative in palliative care can be of value when used as a vehicle to improve education, practice and patient care (Bingley et al 2008). …”

Section: Data Collection Processmentioning

confidence: 99%

Reflections on Palliative Care, Transformative Education and Mezirow's Transformative Learning Theory

Campbell¹,

Brysiewicz²

2018

AJNM

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In transformative education, learners are supported to look beyond their own frame of reference to accommodate an alternative. Mezirow's Transformative Learning Theory (MTLT) proposes that transformative education occurs following an emotional event-a disorientating dilemma. This study aimed to review whether palliative care could be useful in fostering transformative education, and reflected on two questions, a) do shifts in frames of reference occur after disorientating dilemmas, and b) is it useful to see multiple frames of reference? Participants were three nurses and a doctor who were selected as an information-rich data source. A narrative method was employed in which participants were requested in interviews to describe their work in palliative care. Interviews were analysed inductively around the study questions. Participants described usefulness in seeing the perspectives of their patients and shifts in their frame of reference that occurred following disorientating dilemmas. The disorientating dilemmas were around caring for the dying and around changing roles from curative to palliative. However, data revealed 2 Campbell and Brysiewicz Palliative Care, Transformative Education and Learning Theory complexities around MTLT in that a disorientating dilemma did not always result in a shift of frame of reference and seeing differing frames of reference could lead to complications in care. It is recommended that further study be carried out into MTLT and in particular into associations between disorientating dilemmas and shifts in frames of reference in palliative care practice. Studying palliative care education and training alongside palliative care practice would also enrich knowledge of transformative education.

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Section: Data Collection Processmentioning

confidence: 99%

Reflections on Palliative Care, Transformative Education and Mezirow's Transformative Learning Theory

Campbell¹,

Brysiewicz²

2018

AJNM

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“…Through stories people construct a sense of self and portray the meaning of their experiences (McAdams 1993;Lieblich et al 1998). It has been argued that there is a human desire to re-order the chaotic or inexplicable into something which is tangible, useable and meaningful, often as a way to come to terms with a changed life (Frank 1995;Charmaz 1999;Bingley et al 2008). A key element of narrative is the temporality of experience and the sense of self that connects past experience with the present and the future (Chase 2005): 'Narratives, in significant measure, constitute human realities and our mode of being.…”

Section: Narrative Theorymentioning

confidence: 99%

“…What they refer to is textually based material that is broken up into pieces and treated separately from the surrounding discourse (Riessman 1993). However, approaches to narrative inquiry are specific research strategies that consider how the re-telling of events and experiences can reveal more than simply identifying a factual account (Mishler 1995;Bingley et al 2008;Carter 2008). Narrative's rise in popularity has made it a frequent addition within the research literature alongside case study, ethnography, grounded theory and phenomenology (Creswell 2007;Holloway & Freshwater 2007).…”

Section: Introductionmentioning

confidence: 99%

Challenges and solutions during analysis in a longitudinal narrative case study

et al. 2014

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Aim: To describe the challenges associated with the analysis phase of a narrative study and offer solutions for those embarking on the process of complex qualitative analysis.Background: Qualitative research requires rigorous analysis. However, novice researchers often struggle to identify appropriately robust analytical procedures that will move them from their transcripts to their final findings. Further adding to this problem is the lack of clear and detailed accounts within the literature that detail the process of narrative analysis and how to address some of the common challenges researchers face. Data sources:A longitudinal narrative case study exploring the personal and family changes reported by non-injured family members during the first year of a family member's traumatic brain injury. Review methods: This is a methodological paperDiscussion: Challenges of analysis included: conceptualising the whole analytical process and demonstrating the relationship between the different analytical layers and the final research findings; interpreting the data in a way that reflected the priorities of a narrative approach and managing large quantities of data. Solutions explored were the use of a mapping technique to map out analytic intentions; aligning analysis and interpretation with the conceptual framework and the use of matrices to store and manage quotes, codes and reflections. Conclusion:It is hoped that the solutions offered in this paper will help novice researchers to manage and work with their data, assisting them to develop the confidence to be more intuitive and creative in their research.

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“…These relationships are founded on trust and friendship that will have built through discussions and stories as patients and carers describe the experiences of entering end of life care. Over the past 25 years there has been an increase in published stories of both carers and patients facing the prospect and the stage of being within palliative care (Bingley et al, 2008). As identified earlier, the palliative experience is difficult to explore and analyse first hand, resulting in research that may be quantitative and statistics based.…”

Section: The Use Of Narratives In Analysing Experiencementioning

confidence: 99%

“…Bingley et al (2008) identify key narrative analysis methods that can be implemented for the review of research.…”

Section: The Use Of Narratives In Analysing Experiencementioning

confidence: 99%

Designing for the Experience of Pain

Lewis¹

2012

Contemporary and Innovative Practice in Palliative Care

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Developing narrative research in supportive and palliative care: the focus on illness narratives

Cited by 78 publications

References 33 publications

Reflections on Palliative Care, Transformative Education and Mezirow's Transformative Learning Theory

Reflections on Palliative Care, Transformative Education and Mezirow's Transformative Learning Theory

Challenges and solutions during analysis in a longitudinal narrative case study

Designing for the Experience of Pain

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