Developing New Understandings of Independence and Autonomy in the Personalised Relationship

Leece, Janet; Peace, Sheila

doi:10.1093/bjsw/bcp105

Cited by 41 publications

(36 citation statements)

References 11 publications

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“…Susceptibility to other mental health problems including depression and anxiety can also increase with age, while losing independence and autonomy also impacts on older peoples' well-being and self-perceptions (Coudin and Alexopoulos 2010). 'Independence' as a concept varies for individuals and may differ across cultural groups (Gandhi and Bowers, 2008;Moriarty, 2008) but it is fundamental to well being, incorporating aspects of self-determination for example in relation to housing, support (Collopy, 1988;Welford, et al, 2010;Leece and Peace, 2010) and decision-making (Ekdahl et al 2010). For some older people retaining control over their daily lives (Bowers, et al, 2009;Potter, 2009) fosters a continuing sense of self, promoting certainty, security and self-esteem whilst adjusting to changing circumstances.…”

Section: Psychological Well-beingmentioning

confidence: 99%

Hearing the voices of people with high support needs

Katz

Holland

Peace

2013

Journal of Aging Studies

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This article draws on findings from a study commissioned by the British charity, The Joseph Rowntree Foundation, to explore the needs and aspirations of older people who for whatever reason require a high degree of assistance. The study explored the personal aspirations of a small diverse sample (n=26) of hitherto un-researched people living in different parts of the UK. Most were over 85 years of age, with varied ethnicity, health status, social care needs, financial status and lifestyle. Many participants were receiving input from statutory health and social care services and were perceived by others and often themselves to have high support needs. Accessible research methods were used to enable participants to specify those factors for wellbeing most central to their own lives and preferences. The study found commonalities of aspiration in relation to physical, social and psychological aspects of their lives, but also unique descriptions of their individual concerns. In striving to maintain a sense of self worth, participants accepted that some choices were not realistic for them personally. Positive relationships with caregivers were an essential enabler for some. In many cases negotiation has the potential to produce simple and cost-effective ways of addressing individual aspirations and improving quality of life. Hearing the voices of people with high support needs AbstractThe British charity, The Joseph Rowntree Foundation, commissioned a study to explore the needs and aspirations of older people who for whatever reason require a high degree of assistance. The ultimate aim was to develop a model to enable older people to identify and express their needs and aspirations which could be utilized in future research. This article describes how in developing that model, the voices of older people with high support needs were heard, and what they had to say. The study explored the personal aspirations of a small sample of hitherto un-researched people living in different parts of the UK. The twenty-three participants aged over 60, eleven of whom were aged over 85, varied in terms of ethnicity, health status, social care needs, financial status and lifestyle. Many were receiving input from statutory health and social care services and all were perceived to have high support needs. Accessible research methods were used to enable participants to specify those factors for well-being most central to their own lives and preferences. Results included commonalities of aspiration in relation to physical, social and psychological aspects of participants' lives, but also unique descriptions of their individual concerns. In striving to maintain a sense of self worth, participants accepted that some choices were not realistic for them personally. Positive relationships with care-givers were an essential enabler for some. Often negotiation can produce simple and cost-effective ways of addressing individual aspirations and improving quality of life.

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Section: Psychological Well-beingmentioning

confidence: 99%

Hearing the voices of people with high support needs

Katz

Holland

Peace

2013

Journal of Aging Studies

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“…Those involved in UK disability politics are likely to be familiar with this view of independent living and recent policy changes supporting personalisation also promote similar understandings of independence (Carr 2010). Elsewhere however, 'meanings of the concept of independence are often confused and contradictory' with the understandings of those providing personal assistance differing sometimes from those who are in receipt of such assistance (Leece andPeace 2010, 1848).…”

Section: Independent Livingmentioning

confidence: 99%

Living a ‘normal life’? Formal and informal supports in the lives of adults with cystic fibrosis

Edwards

Boxall

2013

Scandinavian Journal of Disability Research

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“…Health-care programs suggest ICT-based home care as a cost-effective alternative to traditional institutionalized care (OECD, 2010, EU Health plans, 2011, Leece and Peace, 2010 and aim to increase independence, mobility, safety, social interaction and e-inclusion (Magjarevic, 2007). An underlying assumption is that individuals in general prefer independence and the possibility of receiving care at home rather than in any institutionalized form (Kenner, 2008).…”

Section: Care "Many Remote Home Health Care Systems Allow Individualmentioning

confidence: 99%

“…Within social care, independence is typically defined in relation to disabled individuals´ capacity to perform self-care tasks (Leece and Peace, 2010 (Cavoukian et al, 2010).…”

Section: Independence As Used By Policy Makers Care Providers and Tementioning

confidence: 99%

“…technological monitoring of-and intervention in bodily functions, is increasingly used as tools for health-care management (Lyon, 2003, Monahan and Wall, 2007, Kenner, 2008. Assistive technology is used within social care (Leece and Peace, 2010) to promote home-based care and reduce the need for institutionalized (Cavoukian et al, 2010). Frail elderly and other fragile medical populations are increasingly set up with in-home sensors and other devices that can monitor their daily living activities and notify care professionals or kinpersons when in need of intervention (Kenner, 2008, Cavoukian, 2010, Palm, 2010.…”

Section: Introductionmentioning

confidence: 99%

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