Developing person‐centred care competencies for the healthcare workforce to support family caregivers: Caregiver centred care

Parmar, Jasneet; Anderson, Sharon; Duggleby, Wendy; Holroyd‐Leduc, Jayna; Pollard, Cheryl; Brémault‐Phillips, Suzette

doi:10.1111/hsc.13173

Cited by 26 publications

(28 citation statements)

References 56 publications

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“…Family caregivers (FCGs) provide 70–90% of the care for Canadians living with complex conditions, frailty, and impairments. ( 10 ) Within LTC, FCGs account for up to 30% of care including feeding, washing, toileting, social, emotional and memory support, and mobilization. ( 11 ) They are often unseen as they are not the “patient” in a system predicated on the needs of the care recipient, yet they are key partners in LTC, relied upon to provide care, but inconsistently included as part of the circle of care and care planning.…”

Section: Introductionmentioning

confidence: 99%

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Family Presence in Long-Term Care During the COVID-19 Pandemic: Call to Action for Policy, Practice, and Research

2020

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Family presence in long-term care (LTC) homes is crucial for meeting the health, psychosocial, and practical needs of residents. Initially during the COVID-19 pandemic, visitation restrictions essentially locked-out families as public health orders prioritized prevention of harm from spread of infection. Although telephone and technology-assisted communication with families was encouraged, many residents were unable to participate. The outcry from families on the injustice of disruption of family units and emerging reports of harms arising from prolonged restrictions highlight the need for provincial and organizational policies to recognize the impact of resident and family separation on well-being. In this commentary we describe family caregiving, review the impact of visitation restrictions on residents, families, and LTC staff, and provide a resident- and family-oriented perspective on policy implications that challenge the outdated notion that extreme restrictions to family presence protect resident health.

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Section: Introductionmentioning

confidence: 99%

“…Figure 1 provides a multilevel interdisciplinary stakeholder co-designed definition of competency domains for caregiver-centred care. ( 10 )…”

Section: Introductionmentioning

confidence: 99%

Family Presence in Long-Term Care During the COVID-19 Pandemic: Call to Action for Policy, Practice, and Research

2020

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“…Historically, this fragmentation was designed in order to diagnose and treat acute conditions, not reflecting the needs of ageing populations (WHO, 2015). Consequently, there is evidence that current healthcare and social support systems do not meet family caregivers' needs (Parmar et al, 2020). Thus, leading to potentially adverse effects regarding their own well-being, quality of life, social relationships and economic security as well as caregiving (Schulz et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…This can result from maintaining a personal and working life aside the family caregiving (Hopps et al, 2017). Beside personal circumstances, there is evidence that family caregivers feel not adequately addressed and underserved in the healthcare systems (Parmar et al, 2020). The associated burden may affect physical and mental health as well as economic productivity of the family caregivers and the quality of provided care (Hopps et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

Experiences of family caregivers regarding a community‐based care‐ and case‐management intervention. A qualitative study

Warkentin

Wilfling

Laag

et al. 2021

Health Soc Care Community

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Family caregivers play an essential role in healthcare for elderly people in primary care settings. The complexity of geriatric patients as well as the fragmentation of healthcare systems can lead to a burden for family caregivers, which can affect their physical and psychological health as well as social relationships, economic productivity and quality of caregiving. Care-and case-management offers a possibility to support, empower and navigate family caregivers through healthcare systems in order to reduce their own burden. The project RubiN (Continuous care in a regional network) was developed to provide regional care-and case-management for outpatient care of the elderly (age >70 years) in a primary care setting in Germany. The aim of this qualitative study was to explore experiences and attitudes of family caregivers of geriatric patients regarding the community-based care-and case-management intervention RubiN. Telephone interviews with a purposeful sample of 21 family caregivers enlisted in all RubiN networks were conducted between March and May 2020 and were followed by qualitative content analysis. The main categories, which emerged were namely: (1) current healthcare situation and (2) experiences with RubiN. Main findings suggest that participants in this study valued the provided support and experienced a sense of relief. However, some participants were disappointed with RubiN and the included support by care-and case-managers. A care-and case-management affected caregiving per se as well as the patient's and family caregiver's well-being. Important aspects contributing to these findings were a continuous relationship, training and expertise of the care-and case-managers. Establishing networks between the patients, family caregivers, care-and case-managers and healthcare providers were key components as well as a good explanation about RubiN itself for family caregivers.Therefore, a community-based care-and case-management can play an important role in detecting, facilitating and preventing family caregiver burden.

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“…Intervention programs, such as skills training for family caregivers [34], are mainly aimed for the caregivers. We suggest, as Parmar and colleagues have developed [35], that such training should complement with courses for physicians and other primary care professionals to support the caregivers, enhance their wellbeing, enrich possible resources, and reduce the burden and costs for the healthcare services and for society.…”

Section: Discussionmentioning

confidence: 99%

Care for caregivers- a mission for primary care

et al. 2021

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Background The number of elderly people living in the community who are limited in daily activities is increasing worldwide. This generates prolonged care, which usually falls on one family member, the family caregiver. Caregivers are prone to develop psychosocial and physical symptoms. As a result, the World Health Organization (WHO) issued a clear directive to assess and support these caregivers. The main goals of this study were to assess primary care physicians’ (PCP) awareness to caregivers’ health risks and the extent that they recommended preventive measures to maintain the health of the caregivers. As no suitable instrument existed, a secondary goal was to develop a scale to measure physicians’ awareness to caregivers’ health and preventive treatment and test it’s psychometric properties. Methods Data were collected from a convenience sample of 201 PCP interviewed with structured questionnaires. Results The participants’ mean age was 48.5 ± 11.2 years and 53.5% were female. Only 48.5% were Israel medical graduates and 72% were board-certified family physicians. Nearly 34% had been primary caregivers of family members. Most physicians (83.6%) were aware of the primary caregiver’s high-risk for morbidity and mortality, and recommended preventive care. On a multivariate regression, PCP's higher level of risk awareness, their country of medical school and board certification were significant for explaining recommendations for preventive care. However, being a primary caregiver for a sick family member neither contributed significantly to the physicians’ awareness to caregiving risks nor to their preventive care. Conclusion Although a high percentage of physicians were aware and concerned about caregivers’ health, their preventive care activities were relatively passive. PCPs should take a more active and preventive role for maintaining caregivers’ health.

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Developing person‐centred care competencies for the healthcare workforce to support family caregivers: Caregiver centred care

Cited by 26 publications

References 56 publications

Family Presence in Long-Term Care During the COVID-19 Pandemic: Call to Action for Policy, Practice, and Research

Family Presence in Long-Term Care During the COVID-19 Pandemic: Call to Action for Policy, Practice, and Research

Experiences of family caregivers regarding a community‐based care‐ and case‐management intervention. A qualitative study

Care for caregivers- a mission for primary care

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