Background/Objectives
Self-neglect is a complex, poorly understood public health problem associated with high morbidity and mortality. Previous qualitative research is limited to small samples and second-hand accounts, with a dearth of self-reported, comprehensive narratives in the geriatric population. Our goal was to identify patterns of personal experience or behavior in self-neglect by exploring narratives of cognitively intact older adults.
Design/Setting/Participants
We used qualitative data from a larger parent study of self-neglect characteristics. For our analysis, we evaluated interviews with 69 cognitively intact, self-neglecting older adults referred from 11 community-based senior services agencies.
Measurements
Interviews included a comprehensive psychiatric assessment using the Structured Clinical Interview for DSM-IV Axis-I and II Disorders (SCID-I and II), and an unstructured interview that allowed subjects to describe important elements of their life stories. We used content analysis to identify key personal experiences and behavior patterns within each subject's narrative.
Results
We identified 4 traumatic personal experiences and 5 behavior patterns in the life stories. Traumatic personal experiences included: psychologically traumatic loss, separation or abandonment (29%), violent victimization, physical trauma or sexual abuse (19%), exposure to war or political violence (9%) and prolonged mourning (7%). Maladaptive behavior patterns included: significant financial instability (23%), severe lifelong mental illness (16%), mistrust of people or paranoia (13%), distrust and avoidance of the medical establishment (13%), and substance abuse or dependence (13%).
Conclusion
Patterns of traumatic personal experiences and maladaptive behaviors frequently reported among self-neglecters were identified. Experiences, perceptions, and behaviors developed over a lifetime may contribute to elder self-neglect. Further exploration and improved understanding of these patterns may identify potential risk factors and areas for future targeted screening, intervention, and prevention.