Developing the social distress scale for head and neck cancer outpatients in Japan

Deno, Minako; Tashiro, Mie; Asakage, Takahiro; Takahashi, Koji; Saito, Kenich; Busujima, Yasunobu; Mori, Yoshiyuki; Saito, Hiroto; Ichikawa, Yuji

doi:10.1017/s1478951511000034

Cited by 5 publications

(3 citation statements)

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“…Cancer patients are often reluctant to discuss these issues with their healthcare team, so more effective screening scales [ 22 , 23 ], information, education [ 24 ] and care are needed [ 11 ]. Previous studies showed that social support and self-efficacy mediate the relationship between social distress and emotional distress in head and neck cancer patients with disfigurements [ 25 , 26 ].…”

Section: Discussionmentioning

confidence: 99%

Gender differences in cancer-related distress in Japan: a retrospective observation study

Koyama

Matsuoka

Ohtake

et al. 2016

BioPsychoSocial Med

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BackgroundCancer care is currently the most important medical issue in Japan. Total pain of cancer patients consists of a combination of four factors: physical, psychological, social distress, and spiritual pain. Previous studies showed female cancer patients ask for more psychological support and seem to suffer different types of distress compared with male patients, for example, appearance-related symptoms. However, other factors of cancer distress related to gender have not been defined comprehensively. The aim of this study is to clarify the gender differences in cancer distress types in order to elucidate the measures that should be taken in Japan to improve the quality of whole cancer care based on gender-based medicine.MethodsThe data of new patients who had visited the psycho-oncology outpatient service of Kinki University Hospital during the period of May 2013 to October 2015 were collected. Demographic factors and all assessed items were extracted from the patients’ medical charts retrospectively. Based on an inquiry of cancer patients in 2010, each item representing the four factors of “total pain” of cancer patients was chosen, i.e., physical distress (pain, changes in appearance), psychological distress (anxiety, depression), social distress (family problems, job-related problems), and spiritual pain; together with sexuality issues, and answers were analyzed. Hospital Anxiety Depression Scale (HADS) was used for the assessment of psychological distress. Chi-square test and Fisher’s exact test were performed for gender differences in the cancer distress types. Pearson’s analysis and multiple logistic regression analysis were performed for the association of gender with each item.ResultsThe data of 101 cancer patients were analyzed and there were more female patients than male patients (female: male ratio = 71:30). Female cancer patients were more likely to suffer from psycho-social issues such as changes in appearance, family problems and sexuality issues than male patients, and male patients were more likely to have spiritual pain.ConclusionsThere were gender differences in the distress types of cancer patients. In order to improve the quality of whole cancer care, more intensive intervention by medical professionals and social support is needed from the viewpoint of gender-based medicine and psycho-oncology.

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Section: Discussionmentioning

confidence: 99%

Gender differences in cancer-related distress in Japan: a retrospective observation study

Koyama

Matsuoka

Ohtake

et al. 2016

BioPsychoSocial Med

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“…43 One of the vital concern reported by HNC patients is dis gurement. 44 The leading di culties lie within the area of social interaction, with people being subjected to unwanted intrusions such as staring or comments. 45 Phlegm, dry mouth, halitosis, need to spit and clear the throat are often associated with HNC.…”

Section: Discussionmentioning

confidence: 99%

Oral Health Related Quality Of Life In Head And Neck Cancer Patients Visiting A Tertiary Center In Central Nepal

Koirala,

shrestha,

bhagat

et al. 2023

Preprint

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Background: Head and Neck Cancer (HNC) cases are rising every year. It is associated with various manifestations in oral cavity and leads to a compromise in Oral Health Related Quality of Life of the pateints. Objectives: This study was conducted to assess Oral Health Related Quality of Life (OHRQoL) in Head and Neck cancer patients and compare it with their apparently normal counterparts. Methods: A comparative cross–sectional study was conducted among 65 cases of HNC and their apparently normal counterparts visiting a tertiary cancer center in central Nepal. Diagnosed cases of HNC who were 18 years or more, providing consent and willing to participate in the study were taken as cases and 65 apparently healthy attendants after matching of age, sex and socio-economic status were taken as controls. Terminally ill, pregnant and those not providing consent were excluded from the study. Translated and validated OHIP-14 questionnaire was used to assess the Oral Health Related Quality of Life. Stage of cancer, site of cancer and time since diagnosed was assessed from the patient’s record file. Response to OHIP-14 items were recorded on a likert scale and the mean score was calculated. The results were statistically analysed using Mann-Whitney U test and Kruskal Wallis test. Results: Majority of the participants belonged to upper lower socio-economic class. Mean OHIP -14 score in case group and control group were 23.91±9.71 and 6.54±4.86 respectively and the difference was statistically significant (p<0.001). The highest affected domain in case group was psychological discomfort (6.10±1.49) and that in control group was physical pain (2.50±1.70). In salivary gland tumor, the highest affected domain was handicap. In all other tumors, psychological discomfort was the highest affected domain and the values were not statistically significant. Conclusion: There is an impairment of the OHRQoL in HNC patients which is higher than their normal counterparts.

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“…Attitudinal items might be more likely to be somewhat affected by a patient's mood when questions were asked. Further, participants who underwent surgery were more likely to feel social distress, whereas neither the experience of chemotherapy nor radiotherapy was significantly associated with social distress (Deno et al, 2011). In other words, there may be some effect from differences in treatment.…”

Section: Discussionmentioning

confidence: 99%

Reliability and validity of the Head and Neck Cancer Inventory (HNCI) in Japanese patients

et al. 2015

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Developing the social distress scale for head and neck cancer outpatients in Japan

Abstract: Results demonstrated preliminary reliability and validity of the social distress scale. This scale may extend social adjustment research by revealing its determinants and effects for head and neck cancer with facial disfigurement in Japan.

Cited by 5 publications

References 25 publications

Gender differences in cancer-related distress in Japan: a retrospective observation study

Gender differences in cancer-related distress in Japan: a retrospective observation study

Oral Health Related Quality Of Life In Head And Neck Cancer Patients Visiting A Tertiary Center In Central Nepal

Reliability and validity of the Head and Neck Cancer Inventory (HNCI) in Japanese patients

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