2018
DOI: 10.1007/s10067-018-4172-5
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Development and application of a questionnaire to assess patient beliefs in rheumatoid arthritis and axial spondyloarthritis

Abstract: Misinterpretation of patient beliefs may complicate shared decision-making in rheumatoid arthritis (RA) or axial spondyloarthritis (axSpA). The objective of this study was to develop a questionnaire to assess patients’ beliefs about their disease and its treatment, and to identify patient characteristics associated with these beliefs. All beliefs reported by > 5% of 50 patients in a previous study were reformulated with a partnering patient organization into statements with which participants could rate their … Show more

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Cited by 18 publications
(12 citation statements)
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“…Maintenance of healthy levels of physical activity over time is challenging for patients with an established disease. The patient is not always aware of the positive and harmless effects of moderate or vigorous physical activity [34,35]. Many patients struggle to find a balance in life; to regain a more normal life and adhere to a healthy lifestyle may be of great value, but also have a negative effect on a person's quality of life [34].…”
Section: Discussionmentioning
confidence: 99%
“…Maintenance of healthy levels of physical activity over time is challenging for patients with an established disease. The patient is not always aware of the positive and harmless effects of moderate or vigorous physical activity [34,35]. Many patients struggle to find a balance in life; to regain a more normal life and adhere to a healthy lifestyle may be of great value, but also have a negative effect on a person's quality of life [34].…”
Section: Discussionmentioning
confidence: 99%
“…Evidence from focus groups suggests patient views on what constitutes an “ideal device” can vary, with patients valuing alternative features differently 8. Differences in preferences may be driven by a number of factors, for example, the impact of disease on joint mobility, patient lifestyle, chronic disease longevity and management, and fears and beliefs around disease 9,10. Discrete-choice experiments (DCE) are routinely used to elicit individuals’ preferences and can be used when comparing health care technologies 11,12.…”
Section: Introductionmentioning
confidence: 99%
“…The SQUASH and IPAQ-LS questionnaires assess different forms of physical activity, such as sports and domestic activities, through patients recalling the duration/level of activity [31]. The 21-item QuAD includes four items on physical activity [32]. Patient beliefs regarding their disease were wide ranging.…”
Section: Resultsmentioning
confidence: 99%
“…The belief that physical activity had a negative impact on the disease was associated with anxiety and helplessness about the disease, and poor patient education. However, patients with axSpA were less likely to believe that their disease was caused by smoking, and more likely to believe that physical activity could improve their disease status [32]. FOM/R(I) (TSK-11) was shown to be a promising tool to explain fearful beliefs about activity limitations relative to disease activity and spinal mobility in axSpA [33].…”
Section: Resultsmentioning
confidence: 99%