Development and exploration of a Japanese version of the cerebral palsy          quality of life for children questionnaire for primary caregivers: a pilot          study

Mutoh, Tomoko; Mutoh, Tatsushi; Kurosaki, Hiromi; Sasaki, Hideo; Taki, Yasuyuki

doi:10.1589/jpts.31.724

Cited by 3 publications

(4 citation statements)

References 14 publications

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“…While for the nonsurgical group (Group B), the statistical analysis showed that they had a substantially (P=0.012) increased quality of life at post-treatment (1) in comparison with pre-treatment, with an improvement of 21.40%. These results are confirmed by Mutoh et al [18] , who demonstrated that physical therapy rehabilitation for CP children improved their physical, psychological, self-independence, and self-confidence states, so the child's satisfactory score improved after physical therapy sessions.…”

Section: Discussionsupporting

confidence: 69%

“…In this study, we measured just two domains, namely, the physical domain (19 items) and the psychological domain (16 items). We used the parent-proxy version (for parents of children aged 4-12 years) [18] . The items' values in each domain were summed, and the final summation of two domains was divided by the number of items in the two domains (35 items).…”

Section: Egyptian Quality Of Life Questionnaire For Cerebral Palsy (A...mentioning

confidence: 99%

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Balance and Quality of Life Variations Post Achilles Tenotomy versus Conventional Physical Therapy

Saleh¹,

Abdul-Rahman²,

M³

et al. 2023

The Egyptian Journal of Hospital Medicine

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Background: The lives of children with cerebral palsy were worsened by the development of deformities, which impacted their lifestyle negatively. One of the major concerns was the equinus deformity in hemiparetic children. Different treatment procedures were used to remedy such deformities, including physical therapy training, or surgical correction through different types of Achilles tenotomies. Objective: To evaluate the effect of conventional physical therapy training versus Achilles tenotomy on balance as well as quality of life in hemiparetic children. Patients and Methods: Thirty-four hemiparetic children from both sexes, whose ages ranged from 6 to 10 years, were recruited equally into 2 groups. Group A underwent an Achilles tenotomy and received conventional physical therapy training for one month after removing the immobilizing plaster cast, while Group B received continuous physical therapy training over 3 months without any surgical procedures. Evaluation was done at three intervals, using the Humac Balance System and Quality of Life Questionnaire. Results:The stability scores for Group A showed a significant decline at post-treatment (1) in comparison with pretreatment. Whereas in Group B there was a significantly higher stability score at post-treatment (1) in comparison with pre-treatment. The overall limit of stability and quality of life measurements showed a decline in their scores posttreatment in Group A, while higher scores post-treatment were seen in Group B. Conclusion:The findings of the study support the impact of physical therapy, given the emergence of complications after Achilles tenotomy, which affect the balance and quality of a child's life.

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Section: Discussionsupporting

confidence: 69%

Section: Egyptian Quality Of Life Questionnaire For Cerebral Palsy (A...mentioning

confidence: 99%

Balance and Quality of Life Variations Post Achilles Tenotomy versus Conventional Physical Therapy

Saleh¹,

Abdul-Rahman²,

M³

et al. 2023

The Egyptian Journal of Hospital Medicine

View full text Add to dashboard Cite

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“…Caregivers completed questionnaires during their visit to our healthcare facilities on the same day their children's GMFM-E scores were assessed. The Japanese version of the CP-QOL questionnaire for primary caregivers [19] was administered to primary caregivers (parents or legal guardians). It contained 66 items that comprised nine categories (family and friends, communication, health, participation, access to services, special equipment, pain and bother, and some final questions regarding your child and your health) for the evaluation of the health-related QOL and well-being of both the children with CP and their caregivers.…”

Section: Qol Evaluation Of the Caregiversmentioning

confidence: 99%

“…We hypothesized that if more appropriate methods could be employed, including participants and evaluation instruments specifically designed for CP, further positive effects of hippotherapy on caregivers' QOL could be obtained. Therefore, we conducted a pilot study to evaluate the effectiveness of hippotherapy on the health-related QOL and well-being of Japanese-speaking parents of children with CP using the Japanesetranslated version of the CP QOL-Child questionnaire for primary caregivers [19]. We also examined the relationship of the parents' QOL domains with functional improvements in their children as identified by the dimension of gross-motor activities related to daily motor activities.…”

Section: Introductionmentioning

confidence: 99%

Effects of Hippotherapy on Health-Related Quality of Life in Caregivers of Children with Cerebral Palsy: A Pilot Quasi-Experimental Study in Japan

Mutoh,

Kurosaki

et al. 2023

Healthcare

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Background: Despite accumulating data regarding the beneficial effects of hippotherapy on gait and balance skills in children with cerebral palsy (CP), its effects on caregivers’ quality of life (QOL) are limited, presumably due to a lack of reliable and valid measurement tools. This study aims to evaluate the impact of hippotherapy on the health-related QOL of primary caregivers using the Japanese version of the Cerebral Palsy Quality of Life for Children (CP QOL) questionnaire. Methods: A quasi-experimental design embedded within our existing cohort was utilized. A total of 29 children with CP (range 4–12 years) and their caregivers participated in either a weekly hippotherapy or recreation (usual care) program for 1 year. In addition to gait-related measurements (Gross Motor Function Measure [GMFM]-E) of children, CP QOL-evidenced determinants of the caregivers’ health-related QOL and well-being were compared before and after the intervention. Results: In addition to improvements in children’s GMFM-E scores, hippotherapy improved CP QOL domains related to participation and physical health, children’s emotional well-being, and parents’ overall health (p < 0.05). Linear regression analysis showed a positive relationship between the children’s GMFM-E scores and their caregivers’ health domains in participants who received hippotherapy (r2 = 0.404; p = 0.011). Conclusions: Hippotherapy has a beneficial effect on the physical and mental well-being and satisfaction of Japanese parents caring for children with CP.

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Translation and Validation of the Arabic Version of the Cerebral Palsy-Quality of Life Child Self-Reported Questionnaire Among Children in the Saudi Arabian Population

Alsebeai,

Youssef,

Alzubaidi

et al. 2024

Cureus

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Objectives: This study aimed to assess the psychometric properties of the Cerebral Palsy-Quality of Life Child Self-Reported (CP-QoL Child Self-Report) questionnaire after it was translated and culturally adapted into Arabic. Methods: This is a cross-sectional study that was conducted during the period from February 2021 to June 2023 in Sultan Bin Abdulaziz Humanitarian City (SBAHC) and the Children with Disability Association in Riyadh, Saudi Arabia, on children with cerebral palsy (CP) between the ages of nine to 12 years. After translation and cross-cultural adaptation, the questionnaire was administered to 65 children. The reliability and internal consistency of the tool were assessed using the intraclass correlation coefficient (ICC) and Cronbach’s alpha. The validity was analyzed through the association between the CP-QoL Child Self-Report questionnaire and the Arabic version of the Pediatric Quality of Life Inventory (PedsQL) 3.0-CP module (Mapi Research Trust, Lyon, France) using Pearson’s correlation coefficient. Results: The overall internal consistency was 0.870, where it ranged from 0.616 for the pain and impact of disability domain to 0.748 for the social well-being and acceptance domain. The interobserver (test-retest) reliability ranged from 0.540 to 0.779. There was a weak correlation between the domains of the CP-QoL Child Self-Report questionnaire and different domains of PedsQL-CP module. The overall quality of life (QoL) score of the children with CP who participated in the current study was 57.86±4.97. Conclusions: The result of the current study suggests that the English version of the CP-QoL Child Self-Report questionnaire was effectively translated into Arabic and had good psychometric properties in evaluating the QoL of Saudi children with CP aged between nine and 12 years.

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Development and exploration of a Japanese version of the cerebral palsy quality of life for children questionnaire for primary caregivers: a pilot study

Cited by 3 publications

References 14 publications

Balance and Quality of Life Variations Post Achilles Tenotomy versus Conventional Physical Therapy

Balance and Quality of Life Variations Post Achilles Tenotomy versus Conventional Physical Therapy

Effects of Hippotherapy on Health-Related Quality of Life in Caregivers of Children with Cerebral Palsy: A Pilot Quasi-Experimental Study in Japan

Translation and Validation of the Arabic Version of the Cerebral Palsy-Quality of Life Child Self-Reported Questionnaire Among Children in the Saudi Arabian Population

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