Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale

Kisala, Pamela A.; Tulsky, David S.; Boulton, Aaron J.; Heinemann, Allen W.; Victorson, David; Sherer, Mark; Sander, Angelle M.; Chiaravalloti, Nancy D.; Carlozzi, Noelle E.; Hanks, Robin A.

doi:10.1016/j.apmr.2019.08.469

Cited by 4 publications

(6 citation statements)

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“…Identificación de posibles usos del concepto -A partir del análisis de los datos, los investigadores identificaron las áreas que abordan el concepto, siendo estas áreas más prácticas, donde existe un contacto directo entre el profesional y el paciente. Entre estas áreas encontramos enfermería (13) , medicina (4,5) , psicología (14,15) , fisioterapia (16) , ciencias farmacéuticas (12,17) , terapia ocupacional (18,19) , ciencias de la salud (20)(21)(22) , educación física (23) y sociología (24,25) . Otras áreas como la ingeniería, a pesar de no trabajar directamente con el paciente, invierten en investigación y en la realización de medios / estrategias adaptativas, capaces de responder a la independencia (26,27) .…”

Section: Resultsunclassified

“…Según los resultados, la independencia se refiere a la capacidad física del paciente para el autocuidado y para realizar las actividades de la vida diaria (12,22) . En enfermería y otras áreas de la salud, el diagnóstico e implementación de acciones focalizadas es de suma importancia y la comprensión de los conceptos es fundamental.…”

Section: Resultsunclassified

“…Se percibe en las distintas áreas del conocimiento, efectivamente, cierta confusión entre los conceptos de autonomía e independencia, sin embargo, la mayoría de los autores definen el concepto de independencia como la capacidad de autocuidado y de realizar las actividades de la vida diaria, sin ayuda de terceros (12,22) . Los autores definen el concepto de autonomía como un concepto multidimensional, que involucra inteligencia física, cognitiva, intelectual, social y emocional (2) .…”

Section: Discussionunclassified

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From the concept of Independence to the questioning of its use in practice: scoping review

Lima¹,

Martins

Ferreira

et al. 2022

Enf Global

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Background: Independence is a widely used concept by the most practical areas of health knowledge, being essential to know its real meaning for subsequent application. Method: Scoping review based on the recommended principles by Joanna Briggs Institute and by the conceptual analysis method from Walker and Avant. Careful research was realized in the databases: Scopus, CINAHL complete, and MEDLINE. Two independent reviewers evaluate the relevance of the articles' understudy, the extraction, and article synthesis.Results: One hundred and two articles were included, after the application of the inclusion criteria. The majority of the authors define independence as the physical capacity for self-care and for the realization of the daily activities. Other authors, confuse independence with autonomy, referring to independence as the cognitive capacity, financial capacity, social capacity, and decision capacity.Conclusions: Independence includes the ability to perform self-care and daily living activities. Introducción: La independencia es un concepto muy utilizado por las áreas más prácticas del conocimiento en salud, siendo fundamental conocer su significado real para su posterior aplicación.Método: Revisión de alcance basada em los princípios recomendados por el Instituto Joanna Briggs y por el método de análisis conceptual de Walker y Avant. Se realizó uma cuidadosa investigación en las bases de datos: Scopus, CINAHL complete y MEDLINE. Dos revisores independientes evalúan la relevancia de los artículos en estudio, la extracción y síntesis del artículo.Resultados: Se incluyeron ciento y dos de los artículos, luego de la aplicación de los criterios de inclusión. La mayoria de los autores definen la independencia como la capacidad física para el autocuidado y para la realización de las actividades diarias. Otros autores confunden independencia com autonomia, refiriéndose a la independencia como capacidad cognitiva, capacidade financiera, capacidad social y capacidad de decisión.Conclusiones: La independencia incluye la capacidad para realizar actividades de autocuidado y de la vida diaria. Antecedentes: Independência é um conceito amplamente utilizado pelas áreas mais práticas do conhecimento em saúde, sendo essencial conhecer o seu real significado para posterior aplicação. Método: Scoping review baseada nos princípios recomendados pela Joanna Briggs Institute e pelo método de análise conceitual de Walker e Avant. Uma pesquisa cuidados foi realizada nas bases de dados: Scopus, CINAHL complete, and MEDLINE. Dois revisores independentes avaliaram a relevância dos artigos em estudo, a extração e síntese dos artigos.Resultados: Cento e dois artigos foram incluídos, após a aplicação dos critérios de inclusão. A maioria dos autores define independência como a capacidade física para o autocuidado e para a realização das atividades de vida diárias. Outros autores confundem independência com autonomia, referindo-se à independência como a capacidade cognitiva, capacidade financeira, capacidade de sociabilizar e capacidade de decisão. Conclusions: Independência inclui a capacidade para o autocuidado e para as atividades de vida diária.

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Section: Resultsunclassified

Section: Discussionunclassified

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From the concept of Independence to the questioning of its use in practice: scoping review

Lima¹,

Martins

Ferreira

et al. 2022

Enf Global

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“…The TBI-QOL includes 20 item banks across physical, emotional, social, and cognitive domains . All TBI-QOL item banks have been calibrated using item response theory (IRT) and are available as computer adaptive tests (CATs) that can rapidly evaluate and monitor individuals following TBI (Tulsky et al, 2016bCapo-Lugo et al, 2019;Carlozzi et al, 2019Carlozzi et al, , 2020Cohen et al, 2019;Kisala et al, 2019Kisala et al, , 2020Heinemann et al, 2020;Sherer et al, 2020). Composite scores for each of the four domains and for global QOL are also available (Tyner et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury

Tyner

Kisala

Boulton

et al. 2022

Front. Hum. Neurosci.

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Patient report of functioning is one component of the neurocognitive exam following traumatic brain injury, and standardized patient-reported outcomes measures are useful to track outcomes during rehabilitation. The Traumatic Brain Injury Quality of Life measurement system (TBI-QOL) is a TBI-specific extension of the PROMIS and Neuro-QoL measurement systems that includes 20 item banks across physical, emotional, social, and cognitive domains. Previous research has evaluated the responsiveness of the TBI-QOL measures in community-dwelling individuals and found clinically important change over a 6-month assessment interval in a sample of individuals who were on average 5 years post-injury. In the present study, we report on the responsiveness of the TBI-QOL Cognition–General Concerns and Executive Function item bank scores and the Cognitive Health Composite scores in a recently injured sample over a 1-year study period. Data from 128 participants with complicated mild, moderate, or severe TBI within the previous 6 months were evaluated. The majority of the sample was male, white, and non-Hispanic. The participants were 18–92 years of age and were first evaluated from 0 to 5 months post-injury. Eighty participants completed the 1-year follow-up assessment. Results show acceptable standard response mean values (0.47–0.51) for all measures and minimal detectable change values ranging from 8.2 to 8.8 T-score points for Cognition–General Concerns and Executive Functioning measures. Anchor rating analysis revealed that changes in scores on the Executive Function item bank and the Cognitive Health Composite were meaningfully associated with participant-reported changes in the areas of attention, multitasking, and memory. Evaluation of change score differences by a variety of clinical indicators demonstrated a small but significant difference in the three TBI-QOL change scores by TBI injury severity grouping. These results support the responsiveness of the TBI-QOL cognition measures in newly injured individuals and provides information on the minimal important differences for the TBI-QOL cognition measures, which can be used for score interpretation by clinicians and researchers seeking patient-reported outcome measures of self-reported cognitive QOL after TBI.

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“…As the science of behavioral measurement has matured, the reliability and precision of individual items has been further enhanced by meticulous item selection through literature search, interviews with content experts and persons served, and cognitive interviewing. Articles by Heinemann, 6 Kisala, 7 and Carlozzi 8 and associates on the development of TBI-QOL scales for independence, social participation, and pain interference describe these techniques. TBI-QOL development also included short forms and computer adaptive tests.…”

mentioning

confidence: 99%

Editorial: An End to Ordinal Misrule?

Malec

2020

Archives of Physical Medicine and Rehabilitation

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Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale

Cited by 4 publications

References 47 publications

From the concept of Independence to the questioning of its use in practice: scoping review

From the concept of Independence to the questioning of its use in practice: scoping review

Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury

Editorial: An End to Ordinal Misrule?

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