Development and psychometric evaluation of the Chinese version of the Participation and Environment Measure for Children and Youth

Chien, Chun-Ru; Li-Tsang, Cecilia W. P.; Cheung, Pui Pui Phoebe; Leung, Kwok Wa; Lin, Chung‐Ying

doi:10.1080/09638288.2018.1553210

Cited by 18 publications

(18 citation statements)

References 64 publications

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“…An additional limitation is that due to our inclusion criteria, some of the results may not be relevant for parents of children without disabilities. Similar research with parents of children without disability did not nd problems in answering the environmental sections [24]. It could be that parents of children with disabilities, who face more environmental barriers compared to parents of children without disabilities [23,49,50], display more di culties in answering questions in the environment section.…”

Section: Discussionsupporting

confidence: 54%

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Krieger

Schulze

Boyd

et al. 2020

Preprint

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Background: Concepts such as participation and environment may differ across cultures. Consequently, to use a measure like the Participation and Environment Measure for Children and Youth (PEM-CY) in other than the original English-speaking contexts, cultural adaptation needs to be assured. The aim of this study was to cross-culturally translate and adapt the PEM-CY into German as it is used in Germany, Austria and Switzerland.Methods: Fifteen parents of children and adolescents with disabilities from three German speaking countries participated in three rounds of think-aloud interviews. We followed the procedure of cultural equivalence guidelines including two additional steps. Data was analyzed by content analysis using semantic, idiomatic, experiential and conceptual equivalence.Results: Results show adaptations mainly focused on experiential and conceptual equivalence, with conceptual equivalence being the most challenging to reach. Examples of experiential equivalence included adapting the examples of activities in the PEM-CY to reflect those typical in German speaking countries. Conceptual equivalence mainly addressed aspects of “involvement” and “environment” of children and adolescents and was reached through adaptations such as enhanced instructions and structures, and additional definitions.Conclusion: This study presents a cross-cultural translation and adaptation process to develop a German version of the PEM-CY that is suitable for Germany, Austria and Switzerland. Using a modified cultural adaptation process, a culturally adapted version of PEM-CY (German) is now available for research, practice and further validation.

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Section: Discussionsupporting

confidence: 54%

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Krieger

Schulze

Boyd

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…The Chinese version of YC-PEM [36] was used in this study to capture children's participation specifically in Hong Kong. This Chinese version was translated from the original YC-PEM and adapted into the local context by following the guidelines provided by the YC-PEM's authors and other researchers [37,38]. Internal consistency of the Chinese YC-PEM was acceptable for the frequency dimension (Cronbach's alpha = 0.42-0.70) and for the involvement dimension (0.73-0.77), which was comparable to the original YC-PEM [34].…”

Section: Participation Measurementioning

confidence: 80%

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Lam

Tsang

et al. 2020

IJERPH

Self Cite

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Children with autism spectrum disorder (ASD) are reported to participate less in everyday activities, and their parents face stigma on account of having a child with ASD, which they often internalize as affiliate stigma. Studies have examined the impact of affiliate stigma on parents’ psychological well-being and social behaviors, but little is known about how affiliate stigma impacts their children’s activity participation. This study aimed to investigate the relationship between parents’ affiliate stigma and activity participation of their children with ASD. Sixty-three parents of children with ASD (aged 2–6 years) were recruited. They completed questionnaires, which captured affiliate stigma, their child’s participation (frequency and involvement) in home, preschool, and community activities, and demographic characteristics. Results indicated that these parents had a moderate level of affiliate stigma, which did not correlate with the frequency of their children’s participation in activities. However, the parents’ affiliate stigma was found to have negative impacts on their children’s involvement in overall community participation and participation in one particular activity at home. The findings highlight the importance of destigmatization of parents of children with ASD in order to promote their children’s participation in community activities.

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“…The future studies to look into psychometric properties of the Thai PedsQL NMM is crucial. Future studies could look into testing of construct validity using either exploratory factor analysis or confirmatory factor analysis [ 33 ], to examine the criterion-related validity of PedsQL with other validated questionnaire (administered both Thai PedsQL generic questionnaire [ 9 ] and Thai PedsQL NMM in the same (children with NMD) population, and to use other type of testing theory (e.g. Rasch model) to provide other psychometric information for the Thai PedsQL NMM [ 34 ].…”

Section: Discussionmentioning

confidence: 99%

Reliability and validity of the Thai pediatric quality of life inventory™ 3.0 neuromuscular module

Thongsing

Suksangkarn

Sanmaneechai

2020

Health Qual Life Outcomes

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Background Neuromuscular disorders (NMDs) are chronic illnesses that adversely impact the lives of patients and their families. The Pediatric Quality of Life™ 3.0 Neuromuscular Module (PedsQL™ 3.0 NMM) was designed to assess health-related quality of life (HRQoL) among children with NMDs. The objective of this cross-sectional study is to evaluate the reliability and validity of the PedsQL™ 3.0 NMM Thai version. Methods Formal permission to translate the PedsQL™ 3.0 NMM into Thai language was granted by the inventor, and the translation process followed linguistic translation guidelines. The PedsQL™ 3.0 NMM Thai version was administered to children with NMD and their parents/caregivers at the Division of Neurology, Department of Pediatrics, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand. Re-test was performed within 2–4 weeks after the initial test. Results One hundred and three children with NMD and their parents or caregivers were enrolled. Internal reliability as measured by Cronbach’s alpha was > 0.7 (total score: child α = 0.88, parent α = 0.91). Test-retest reliability showed good agreement with an intraclass correlation coefficient (ICC) of 0.69 and 0.82 for the total score of the child report and the parent report, respectively. The mean (SD) quality of life total score for the child self-report was 74.9 (13.9) among ambulatory patients, and 60.7 (15.2) among non-ambulatory patients (maximum quality of life score is 100). The mean total quality of life score for the parent proxy-report was 70 ( 14.5) among ambulatory patients, and 55.2 (18.3) among non-ambulatory patients. The child total score was in good agreement with the parent/caregiver total score. Conclusions PedsQL™ 3.0 NMM Thai version is a reliable and valid measure of HRQoL in Thai children with NMDs.

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Development and psychometric evaluation of the Chinese version of the Participation and Environment Measure for Children and Youth

Cited by 18 publications

References 64 publications

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Reliability and validity of the Thai pediatric quality of life inventory™ 3.0 neuromuscular module

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