Development and Qualitative Evaluation of a Self-Management Workshop for Testicular Cancer Survivor-Initiated Follow-Up

Martin, Faith; Turner, Andy; Bourne, Claire; Batehup, Lynn

doi:10.1188/13.onf.e14-e23

Cited by 24 publications

(69 citation statements)

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“…Participants in group-based interventions valued their supportive and empathic interactions with fellow cancer 1 survivors highly [25,26,[29][30][31][34][35][36][37]. Many experienced feelings of isolation as a result of their illness, and 2 having the opportunity to meet others "in the same boat" [26, p. 27] made them feel less alone [25,26,31,37].…”

Section: Sharing Experiences With Peersmentioning

confidence: 99%

“…Finding out that they faced similar issues -such as pain, fear of recurrence, altered body image [34], anxiety [37], 5 depression, fatigue, or feeling hopeless [25] -was reassuring, as it validated their own experiences of survivorship 6 and helped to normalise what they had been through [25,26,31,34,35,37]. These reciprocal exchanges also 7 allowed participants to learn from each others' experiences [31,[34][35][36][37].…”

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confidence: 99%

“…These reciprocal exchanges also 7 allowed participants to learn from each others' experiences [31,[34][35][36][37]. Hearing about how other people dealt 8 successfully with their cancer, especially those who had more traumatic experiences [35] or were further along in 9 their cancer journey [35,36], provided them with inspiration to overcome the challenges they faced [31, 34, 35, …”

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confidence: 99%

“…Participants were keen to share their stories with each other and compare their experiences [25,26,31,[34][35][36][37].…”

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confidence: 99%

“…Facilitators were an important source of emotional and informational support for participants in both one-on-one 20 [27,28] and group-based [26,29,31,[34][35][36][37] interventions. Their knowledge of cancer survivorship and 21 understanding of the various challenges it poses were positively received by participants [27,28,31,37], who valued having the opportunity to ask questions about their illness and its consequences [26,35,37] and appreciated 23 their ability to convey information in everyday language [35,37].…”

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confidence: 99%

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Cancer survivors’ perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis

et al. 2016

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General rightsThis document is made available in accordance with publisher policies. Please cite only the published version using the reference above. Full terms of use are available: http://www.bristol.ac.uk/pure/about/ebr-terms AbstractPurpose Self-management interventions improve patient outcomes across a range of long-term conditions, but are often limited by low uptake and completion rates. The aim of this paper was to conduct a meta-synthesis of qualitative studies exploring cancer survivors' views and experiences of engaging with adjustment-focused selfmanagement interventions in order to inform the development of future interventions targeting this population.Methods Four electronic databases were systematically searched. Studies that used qualitative methods to explore cancer survivors' views and experiences of engaging with adjustment-focused self-management interventions were included. A meta-ethnographic approach was used to synthesize the findings.Results Thirteen studies met the inclusion criteria. Engaging with adjustment-focused self-management interventions enabled cancer survivors to gain emotional and informational support from peers and/or facilitators in an open, non-judgemental environment, become empowered through enhancing knowledge and skills and regaining confidence and control, and move beyond cancer by accepting illness experiences, reprioritising goals and adopting a positive outlook. However, the extent to which they engaged with, and benefited from, such interventions was mitigated by diverse preferences regarding intervention design, content and delivery. Personal obstacles to engagement included low perceived need, reticence to discuss cancer-related experiences and various practical issues.Conclusions Cancer survivors derive a range of benefits from participating in adjustment-focused selfmanagement interventions; potential barriers to engagement should be addressed more comprehensively in intervention marketing, design and delivery.Implications for cancer survivors The findings suggest some key considerations for the development and implementation of future adjustment-focused self-management interventions that may help to optimize their appeal and effectiveness among cancer survivors.

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Section: Sharing Experiences With Peersmentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

“…Participants were keen to share their stories with each other and compare their experiences [25,26,31,[34][35][36][37].…”

mentioning

confidence: 99%

mentioning

confidence: 99%

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Cancer survivors’ perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis

et al. 2016

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A web-based intervention (RESTORE) to support self-management of cancer-related fatigue following primary cancer treatment: a multi-centre proof of concept randomised controlled trial

Foster

Grimmett

May

et al. 2015

Support Care Cancer

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PurposeCancer-related fatigue (CRF) is a frequent and distressing symptom experienced after cancer treatment. RESTORE is the first web-based resource designed to enhance self-efficacy to manage CRF following curative-intent treatment. The aim of this study is to test the proof of concept and inform the design of an effectiveness trial.MethodsA multi-centre parallel-group two-armed (1:1) exploratory randomised controlled trial (RCT) with qualitative process evaluation was employed in the study. Participants (≥18 years; ≤5 years post treatment with moderate to severe fatigue) were recruited and randomly assigned to RESTORE or a leaflet. Feasibility and acceptability were measured by recruitment, attrition, intervention adherence, completion of outcome measures and process evaluation. Change in self-efficacy to manage CRF was also explored. Outcome measures were completed at baseline (T0), 6 weeks (T1) and 12 weeks (T2). Data were analysed using mixed-effects linear regression and directed content analysis.ResultsOne hundred and sixty-three people participated in the trial and 19 in the process evaluation. The intervention was feasible (39 % of eligible patients consented) and acceptable (attrition rate 36 %). There was evidence of higher fatigue self-efficacy at T1 in the intervention group vs comparator (mean difference 0.51 [−0.08 to 1.11]), though the difference in groups decreased by 12 weeks. Time since diagnosis influenced perceived usefulness of the intervention. Modifications were suggested.ConclusionProof of concept was achieved. The RESTORE intervention should be subject to a definitive trial with some adjustments. Provision of an effective supportive resource would empower cancer survivors to manage CRF after treatment completion.Trial registrationISRCTN67521059

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Follow-up after curative treatment for colorectal cancer: longitudinal evaluation of patient initiated follow-up in the first 12 months

Batehup

Porter

Gage

et al. 2017

Support Care Cancer

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PurposeTo compare patient-triggered follow-up (PTFU) for curatively treated colorectal cancer against traditional outpatient follow-up (OPFU). MethodsQuestionnaires were mailed at four time points over one-year post-treatment to two prospectively-recruited cohorts: A, patients entering follow-up and receiving OPFU pre-implementation of PTFU; B, patients entering follow-up (FU) and receiving either OPFU (B1) or PTFU (B2) post-implementation of PTFU. Bi-variate tests were used to compare patient characteristics and outcomes eight months after entering follow-up (generic and cancer-specific quality of life (QoL), satisfaction). Regression analysis explored associations between follow-up model and outcomes. Resource implications and costs of models were compared.ResultsPatients in Cohort B1 were significantly more likely to have received chemotherapy (p < 0.001), radiotherapy (p < 0.05), and reported poorer QoL (p = 0.001). Having a longstanding co-morbid condition was the most important determinant of QoL (p < 0.001); model of care was not significant. Patients were satisfied with their follow-up care regardless of model. Health service costs were higher in PTFU over the first yearConclusionsPTFU is acceptable to patients with colorectal cancer and can be considered to be a realistic alternative to OPFU for clinically suitable patients. The initial costs are higher due to provision of a self-management (SM) programme and remote surveillance. Further research is needed to establish long-term outcomes and costs.Electronic supplementary materialThe online version of this article (doi:10.1007/s00520-017-3595-x) contains supplementary material, which is available to authorized users.

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Development and Qualitative Evaluation of a Self-Management Workshop for Testicular Cancer Survivor-Initiated Follow-Up

Cited by 24 publications

References 56 publications

Cancer survivors’ perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis

Cancer survivors’ perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis

A web-based intervention (RESTORE) to support self-management of cancer-related fatigue following primary cancer treatment: a multi-centre proof of concept randomised controlled trial

Follow-up after curative treatment for colorectal cancer: longitudinal evaluation of patient initiated follow-up in the first 12 months

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