Development and Results of a Kidney Disease Knowledge Survey Given to Patients With CKD

Wright, Julie; Wallston, Kenneth A.; Elasy, Tom A.; İkizler, T. Alp; Cavanaugh, Kerri L.

doi:10.1053/j.ajkd.2010.09.018

Cited by 179 publications

(267 citation statements)

References 51 publications

Supporting

Mentioning

218

Contrasting

Unclassified

Order By: Relevance

“…9,10 Discordance in our study population ranged from 25% to 50% (depending mostly on patient age), which is consistent with poor recall of treatment details, risks, and benefits conveyed during the informed consent process among patients undergoing medical procedures 11 as well as healthy controls in clinical trials. 12 In addition, our finding that older adults (despite excluding those with dementia) were less likely to report receiving KTPI even when they were informed according to their provider is consistent with the documented age disparity in referral and access to KT.…”

Section: Discussionsupporting

confidence: 72%

Patient- and Provider-Reported Information about Transplantation and Subsequent Waitlisting

Salter

Orandi²,

McAdams‐DeMarco³

et al. 2014

Journal of the American Society of Nephrology

View full text Add to dashboard Cite

Because informed consent requires discussion of alternative treatments, proper consent for dialysis should incorporate discussion about other renal replacement options including kidney transplantation (KT). Accordingly, dialysis providers are required to indicate KT provision of information (KTPI) on CMS Form-2728; however, provider-reported KTPI does not necessarily imply adequate provision of information. Furthermore, the effect of KTPI on pursuit of KT remains unclear. We compared providerreported KTPI (Form-2728) with patient-reported KTPI (in-person survey of whether a nephrologist or dialysis staff had discussed KT) in a prospective ancillary study of 388 hemodialysis initiates. KTPI was reported by both patient and provider for 56.2% of participants, by provider only for 27.8%, by patient only for 8.3%, and by neither for 7.7%. Among participants with provider-reported KTPI, older age was associated with lack of patient-reported KTPI. Linkage with the Scientific Registry for Transplant Recipients showed that 20.9% of participants were subsequently listed for KT. Patient-reported KTPI was independently associated with a 2.95-fold (95% confidence interval [95% CI], 1.54 to 5.66; P=0.001) higher likelihood of KT listing, whereas provider-reported KTPI was not associated with listing (hazard ratio, 1.18; 95% CI, 0.60 to 2.32; P=0.62). Our findings suggest that patient perception of KTPI is more important for KT listing than provider-reported KTPI. Patient-reported and provider-reported KTPI should be collected for quality assessment in dialysis centers because factors associated with discordance between these metrics might inform interventions to improve this process.

show abstract

Section: Discussionsupporting

confidence: 72%

Patient- and Provider-Reported Information about Transplantation and Subsequent Waitlisting

Salter

Orandi²,

McAdams‐DeMarco³

et al. 2014

Journal of the American Society of Nephrology

View full text Add to dashboard Cite

show abstract

“…One recent study among patients attending a nephrology clinic identified areas of poor knowledge, allowing investigators to identify subjects on which further patient education should be focused. 27 It is very likely that the profile of CKD knowledge would be different in a population of patients followed up in primary care and that further detailed study would identify areas to target when designing education programmes best suited for those managed in primary care. …”

Section: Implications For Research and Practicementioning

confidence: 99%

Treatment needs and diagnosis awareness in primary care patients with chronic kidney disease

et al. 2012

View full text Add to dashboard Cite

BackgroundGPs in England are required to keep a register of patients with chronic kidney disease (CKD). National Institute for Health and Clinical Excellence (NICE) guidelines recommend regular follow-up, but patients are perceived to be low risk and not requiring active management. AimTo assess treatment needs of CKD stage 3 patients in primary care, as well as their awareness of CKD. Design and settingA cross-sectional analysis from a longitudinal prospective study in 32 general practices. MethodA total of 1741 participants underwent clinical assessment including urine and blood tests. Participants were asked about awareness of their CKD. Results were reviewed and a letter recommending treatment in line with NICE guidelines was sent to their GP. ResultsThe mean age of participants was 73 ± 9 years; 60% (n = 1052) were female and diabetes was present in 17%; 67% of participants required further intervention. Most required improved control of hypertension (n = 1576; 33.1% of cohort). Other recommendations included advice to investigate anaemia (n = 1142; 8.2%) or stop nephrotoxic drugs (n = 1120; 7.5%). Less than 6% of participants met NICE criteria for referral to nephrology services and 41% were unaware of their CKD diagnosis. Multivariable analysis identified subjects with formal educational qualifications, age <75 years, estimated glomerular filtration rate (eGFR) 30-44 ml/min/1.73 m 2 , and significant albuminuria as more likely to be aware of their diagnosis. ConclusionThe study data show that the majority of patients required at least one intervention to improve the management of their CKD. Most interventions could be delivered in primary care and only a minority required nephrology referral. Many patients were unaware of their CKD diagnosis, and efforts should be made to improve this to facilitate involvement in their care. Keywordsawareness; kidney disease, chronic; primary care; treatment.e227 British Journal of General Practice, April 2012 who had previously had a solid organ transplant or were terminally ill (expected survival <1 year) were excluded. Data collectionThe first study visits were conducted from August 2008 to March 2010. Participants were sent a medical questionnaire and urine specimen bottles and were asked not to eat cooked meat for at least 12 hours prior to the assessment. 5Anthropomorphic and blood pressure measurements were taken. Blood and urine specimens were submitted for analysis. Diabetes was defined in line with World Health Organization (WHO) criteria.10 A previous cardiovascular event (CVE) was defined as subject-reported myocardial infarction, stroke, transient ischaemic attack, revascularisation, amputation due to peripheral vascular disease, or aortic aneurysm. Blood pressure was measured after a minimum of 5 minutes' rest in the sitting position, and calculated as the mean of three readings that were within 10% of each other. Hypertension was defined as systolic blood pressure ≥140 mmHg, diastolic blood pressure ≥90 mmHg, or current antihypertensive medication....

show abstract

“…39 Como pode ser observado na Figura 1, baseado em diversos autores, [39][40][41] os determinantes do LS podem ser agrupados em dois grandes compartimentos que interagem entre si: 1. Os inerentes ao indivíduo; e 2.…”

Section: Determinantes Do Letramento Em Saúdeunclassified

Health Literacy: Importance of assessment in nephrology

Santos¹,

Mansur²,

Paiva³

et al. 2012

Jornal Brasileiro De Nefrologia

View full text Add to dashboard Cite

Development and Results of a Kidney Disease Knowledge Survey Given to Patients With CKD

Cited by 179 publications

References 51 publications

Patient- and Provider-Reported Information about Transplantation and Subsequent Waitlisting

Patient- and Provider-Reported Information about Transplantation and Subsequent Waitlisting

Treatment needs and diagnosis awareness in primary care patients with chronic kidney disease

Health Literacy: Importance of assessment in nephrology

Contact Info

Product

Resources

About