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BackgroundTransitions from the intensive care unit (ICU) to the general ward cause great impairment of physical and psychosocial functioning in children and their parents. Better understanding of parental experiences during children's ICU‐to‐ward transitions is required to inform the development of ICU transitional care.AimTo examine the parental experiences during their children's ICU‐to‐ward transitions through the synthesis of original qualitative studies.DesignThis study follows the preferred reporting items for systematic reviews and meta‐analyses (PRISMA) and the enhancing transparency in reporting the synthesis of qualitative research (ENTREQ) statements, uses Thomas and Harden's thematic synthesis framework rooted in a critical realist philosophy to present qualitative meta‐synthesis.Data SourcesWe conducted a systematic review in June 2024 and searched nine electronic databases including Pubmed, Embase, CINAHL, PsycINFO, Cochrane Library, Sinomed, CNKI, Wanfang and VIP. Eligible studies contained parents quotes about their children's ICU‐to‐ward transitions and published in either English or Chinese since 2005.MethodsSystematic searches yielded 2825 identified studies. Two reviewers screened titles, abstracts and full text and reached consensus through critical discussion with a third reviewer. Eighteen studies were finally agreed for inclusion. Data were extracted into a Microsoft Excel spreadsheet and synthesised through line‐by‐line coding of relevant quotes with the help of NVivo.ResultsThe qualitative synthesis resulted in four descriptive themes followed later by two analytical themes. Specifically, these were (1) the nature of the parental experience during ICU‐to‐ward transition (challenging but responded proactively) and (2) factors involved in the ICU‐to‐ward transition (both facilitators and barriers).ConclusionsThis study indicates the nature of parental experiences and factors involved during the critically ill child's ICU‐to‐ward transition. Healthcare providers serve as the primary support network for parents and should collaborate closely with them to facilitate a smooth transition by providing tailored support.No Patient or Public ContributionThis is a meta‐synthesis of previously published qualitative studies.Trial RegistrationWe have registered in the PROSPERO and the number is CRD42023422055
BackgroundTransitions from the intensive care unit (ICU) to the general ward cause great impairment of physical and psychosocial functioning in children and their parents. Better understanding of parental experiences during children's ICU‐to‐ward transitions is required to inform the development of ICU transitional care.AimTo examine the parental experiences during their children's ICU‐to‐ward transitions through the synthesis of original qualitative studies.DesignThis study follows the preferred reporting items for systematic reviews and meta‐analyses (PRISMA) and the enhancing transparency in reporting the synthesis of qualitative research (ENTREQ) statements, uses Thomas and Harden's thematic synthesis framework rooted in a critical realist philosophy to present qualitative meta‐synthesis.Data SourcesWe conducted a systematic review in June 2024 and searched nine electronic databases including Pubmed, Embase, CINAHL, PsycINFO, Cochrane Library, Sinomed, CNKI, Wanfang and VIP. Eligible studies contained parents quotes about their children's ICU‐to‐ward transitions and published in either English or Chinese since 2005.MethodsSystematic searches yielded 2825 identified studies. Two reviewers screened titles, abstracts and full text and reached consensus through critical discussion with a third reviewer. Eighteen studies were finally agreed for inclusion. Data were extracted into a Microsoft Excel spreadsheet and synthesised through line‐by‐line coding of relevant quotes with the help of NVivo.ResultsThe qualitative synthesis resulted in four descriptive themes followed later by two analytical themes. Specifically, these were (1) the nature of the parental experience during ICU‐to‐ward transition (challenging but responded proactively) and (2) factors involved in the ICU‐to‐ward transition (both facilitators and barriers).ConclusionsThis study indicates the nature of parental experiences and factors involved during the critically ill child's ICU‐to‐ward transition. Healthcare providers serve as the primary support network for parents and should collaborate closely with them to facilitate a smooth transition by providing tailored support.No Patient or Public ContributionThis is a meta‐synthesis of previously published qualitative studies.Trial RegistrationWe have registered in the PROSPERO and the number is CRD42023422055
Background: Parents of children with hematological cancers such as leukemia and lymphoma need to cope with stress related to their child’s diagnosis. The Coping Self-Efficacy Scale is a widely used and validated tool to measure an individual’s confidence in dealing with stressful situations. Appropriate translation and validation are needed to produce a localized language version suitable for Malaysian contexts. Objective: The study aimed to examine the linguistic and construct validity of the Malay version of the Coping Self-Efficacy Scale (CSES-My) among parents of children with hematological cancer. Methods: The CSES-My was created through a sequential series of steps, starting with the translation of the original English version, followed by cultural adaptation, and then cognitive interviewing. The 26-item CSES-My was self-administered in a sample of parents of children with leukemia and lymphoma from October 2021 until February 2022. They were recruited via online or face-to-face methods. Exploratory factor analysis was performed to examine the construct validity of the CSES-My. Results: A total of 165 complete responses were analyzed. The scale has two factors, including Personal Coping and Social Coping, accounting for 58.3% of the variance. Personal Coping (19 items, Cronbach’s alpha = 0.958) represented the respondents’ self-efficacy for independently executing coping strategies, whether through solving problems or changing the way they think about the situation. Social Coping (6 items, Cronbach’s alpha = 0.867) represented their confidence in executing coping strategies, which involved using social resources such as seeking external support, distraction, and avoiding loneliness. Conclusions: The CSES-My had reliable and valid psychometric properties, providing evidence for its utility in evaluating coping self-efficacy among parents of children with leukemia or lymphoma in Malaysia. The CSES-My is a valuable tool for nurses and other healthcare professionals investigating coping self-efficacy in Malay-speaking populations, and it may also aid in the development of future coping interventions.
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