Development and validation of a theory-based questionnaire examining barriers and facilitators to discontinuing long-term benzodiazepine receptor agonist use

Lynch, Tom; Ryan, Cristín; Presseau, Justin; Foster, D.E.; Huff, Christy; Bennett, Kathleen; Cadogan, Cathal

doi:10.1016/j.sapharm.2023.10.015

Cited by 2 publications

(4 citation statements)

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“…The development and validation of the TDF‐based questionnaire, as well as its reporting, were based on the methods used in previous research 12 and are reported separately. 11 Briefly, a TDF‐based questionnaire to examine mediators of behaviour change relating to the discontinuation of long‐term BZRA use was developed based on previous studies. 12 , 13 The initial questionnaire was developed using the 14 domains of TDF version 2 10 : ‘Knowledge’, ‘Skills’, ‘Social/Professional Role and Identity’, ‘Beliefs about Capabilities’, ‘Optimism’, ‘Beliefs about Consequences’, ‘Reinforcement’, ‘Intentions’, ‘Goals’, ‘Memory, Attention and Decision Processes’, ‘Environmental Context and Resources’, ‘Social Influences’, ‘Emotions’ and ‘Behavioural Regulation’.…”

Section: Methodsmentioning

confidence: 99%

“…The development and validation of the TDF-based questionnaire, as well as its reporting, were based on the methods used in previous research 12 and are reported separately. 11 Briefly, a TDF-based questionnaire to examine mediators of behaviour change relating to the discontinuation of long-term BZRA use was developed based on previous studies. 12,13 The initial questionnaire was developed using…”

Section: Questionnaire Development and Validationmentioning

confidence: 99%

“…To address this, a TDF‐based questionnaire was developed to examine mediators of behaviour change relating to the discontinuation of long‐term BZRA use. The questionnaire was distributed to members of the online BZRA community (i.e., online support groups for individuals experiencing BZRA‐related withdrawal and/or other adverse effects) as part of a validation exercise that is reported separately 11 . Four free‐text questions were included in the questionnaire.…”

Section: Introductionmentioning

confidence: 99%

“…The questionnaire was distributed to members of the online BZRA community (i.e., online support groups for individuals experiencing BZRA‐related withdrawal and/or other adverse effects) as part of a validation exercise that is reported separately. 11 Four free‐text questions were included in the questionnaire. The aim of this component of the questionnaire study was to conduct a content analysis of respondents' views and experiences of discontinuing long‐term BZRA use as documented in the free‐text responses.…”

Section: Introductionmentioning

confidence: 99%

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‘We need more support and doctors that understand the process of tapering …’: A content analysis of free‐text responses to a questionnaire on discontinuing long‐term benzodiazepine receptor agonist use

Lynch,

Ryan,

Huff

et al. 2024

Health Expectations

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BackgroundMany individuals worldwide continue to take benzodiazepine receptor agonists (BZRAs) long term (≥3 months). The aim of this study was to conduct a content analysis of the views and experiences of discontinuing long‐term BZRA use as documented in the free‐text responses of respondents to an online questionnaire examining mediators of behaviour change relating to the discontinuation of long‐term BZRA use.DesignThe questionnaire was disseminated via online BZRA support groups to community‐based adults with either current or previous experience of long‐term BZRA use. The four free‐text questions focused on (1) barriers and (2) facilitators to discontinuing BZRA use; (3) additional supports required to discontinue BZRA use; and (4) additional comments regarding BZRA use. Response data were analysed using summative content analysis.ResultsThe most commonly reported barrier to BZRA discontinuation related to the consequences of stopping the medication, including withdrawal symptoms and the possibility of return of the original symptoms. The most common facilitator that respondents reported would help them in discontinuing BZRA use was support, primarily from medical professionals. Many respondents reported having been harmed or negatively affected in some way because of BZRA use. Several respondents expressed regret over ever taking BZRAs and/or reported that, with the benefit of hindsight, they should never have taken BZRAs in the first instance.ConclusionThe findings highlight the range of barriers faced by those attempting BZRA discontinuation and the importance of additional supports. Holistic and person‐centred approaches are needed to support discontinuation of long‐term BZRA use that considers an individual's personal circumstances and wider social context.Patient or Public Contribution‘Experts by experience’ with previous experience of long‐term BZRA use were involved in developing the questionnaire and writing the manuscript as collaborators. Individuals with lived experience of taking BZRAs completed the questionnaire.

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Section: Methodsmentioning

confidence: 99%

Section: Questionnaire Development and Validationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

‘We need more support and doctors that understand the process of tapering …’: A content analysis of free‐text responses to a questionnaire on discontinuing long‐term benzodiazepine receptor agonist use

Lynch,

Ryan,

Huff

et al. 2024

Health Expectations

Self Cite

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Behavioral Determinants of Older Adults’ and Caregivers' Willingness to Deprescribe: A Systematic Review

Alves Jorge,

Van den Broucke,

Koumba Maguena

et al. 2024

Public Health Nursing

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BackgroundDeprescribing is a strategy to optimize medication use and to prevent medication harm. Despite the fact that behavioral theories have been shown to be useful in explaining health behaviors, the literature on deprescribing relies almost exclusively on attitudes as an explanatory factor for deprescribing behavior. This study systematically reviews the literature that made explicit use of the constructs included in health behavior theories (HBTs) to explain older adults’ and informal caregivers’ deprescribing behavior and outcomes.MethodsStudies were screened from five electronic databases by two reviewers. Quantitative interventional and non‐interventional studies applying at least one HBTs or construct from these theories to older adults' or informal caregiver' intention or behavior to deprescribe, were included. Studies that used the patients’ attitudes toward deprescribing (PATD) questionnaire or its revised version were excluded.ResultsA total of 11 non‐interventional studies and 11 interventional studies were identified, seven of which applied HBTs, and the other 15 used constructs from the HBTs. Health literacy and locus of control were identified as moderator variables. Only two studies targeted informal caregivers’ deprescribing intentions or behavior.ConclusionsHBTs are not systematically used. However, combining the main HBT constructs reported in the literature offers a better explanation of the (intention to) engage in deprescribing.Trail RegistrationThe study protocol (ID: CRD42022378157) was published on PROSPERO.

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Development and validation of a theory-based questionnaire examining barriers and facilitators to discontinuing long-term benzodiazepine receptor agonist use

Cited by 2 publications

References 22 publications

‘We need more support and doctors that understand the process of tapering …’: A content analysis of free‐text responses to a questionnaire on discontinuing long‐term benzodiazepine receptor agonist use

‘We need more support and doctors that understand the process of tapering …’: A content analysis of free‐text responses to a questionnaire on discontinuing long‐term benzodiazepine receptor agonist use

Behavioral Determinants of Older Adults’ and Caregivers' Willingness to Deprescribe: A Systematic Review

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