Development and validation of an individualized survivorship care plan (ISCP) for women with endometrial cancer during the transition of the end of active treatment to the cancer survivorship

Hébert, Johanne; Fillion, Lise

doi:10.5737/236880762713342

Cited by 2 publications

(2 citation statements)

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“… 22 Many barriers to making the survivorship care plan an integral part of existing practice have been reported, including low “buy-in” from primary care professionals 23 and the lack of dedicated resources. 24 , 25 There are grounds for believing that similar issues could be raised in the development and implementation of an intervention designed to promote RTW in primary care. For this reason, it is necessary to contextualize the intervention to locate levers and barriers, assign priorities, and attempt to understand their synergy.…”

Section: Introductionmentioning

confidence: 99%

Exploration of the contexts surrounding the implementation of an intervention supporting return-to-work after breast cancer in a primary care setting: starting point for an intervention development

Bilodeau¹,

Tremblay²,

Durand³

2018

JMDH

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BackgroundMany recommendations have been made regarding survivorship care provided by teams of primary care professionals. However, the nature of that follow-up, including support for return-to-work (RTW) after cancer, remains largely undefined. As implementation problems are frequently context-related, a pilot study was conducted to describe the contexts, according to Grol and Wensing, in which a new intervention is to be implemented. This pilot study is the first of three steps in intervention development planning.MethodIn-depth semi-structured interviews (n=6) were carried out with stakeholders selected for their knowledgeable perspective of various settings, such as hospitals, primary care, employers, and community-based organizations. Interviews focused on participants’ perceptions of key contextual facilitators and barriers to consider for the deployment of an RTW intervention in a primary care setting. Data from interviews were transcribed and analyzed. A content analysis was performed based on an iterative process.ResultsAn intervention supporting the process of RTW in primary care makes sense for participants. Results suggest that important levers are present in organizational, professional, and social settings. However, many barriers, mainly related to organizational settings, have been identified, eg, distribution of tasks for survivor follow-up, continuity of information, and coordination of care between specialized oncology care and general primary care.ConclusionTo develop and deploy the intervention, recommendations that emerged from this pilot study for overcoming barriers were identified, eg, training (professionals, survivors, and employers), the use of communication tools, and adopting a practice guide for survivor care. The results were also helpful in focusing on the relevance of an intervention supporting the RTW process as a component of primary care for survivors.

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Section: Introductionmentioning

confidence: 99%

Exploration of the contexts surrounding the implementation of an intervention supporting return-to-work after breast cancer in a primary care setting: starting point for an intervention development

Bilodeau¹,

Tremblay²,

Durand³

2018

JMDH

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“…Described as a mismatch between what individuals perceive as necessary to optimize their health and the care and International research has documented the myriad of challenges experienced, often unexpectedly, in the aftermath of initial cancer treatment [22,23]. These include feeling unprepared [24][25][26][27], experiencing uncertainty [24,26,28], fear of recurrence [24,26,28,29] and being insufficiently informed about late treatment effects [24,26], self-management strategies and local support services [24]. However, for people affected by haematological cancers, this distinct point in the illness trajectory is still poorly understood, for it remains relatively unexplored.…”

Section: Introductionmentioning

confidence: 99%

Still lost in transition: a qualitative descriptive study of people’s experiences following treatment completion for haematological cancer in Wales, UK

Watts

Bower

2019

ecancer

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The aim of this study was to explore Welsh adults' experiences of the transition into survivorship from initial active systemic anti-cancer treatments for haematological cancers. An exploratory, qualitative descriptive study consisting of in-depth, face-to-face interviews was designed. A convenience sample of adults in Wales, UK, who had completed their initial systemic anti-cancer treatment for haematological cancer was recruited from one University Health Board. Data were generated in digitally recorded, individual, face-to-face interviews during 2017. Interviews were fully transcribed and analysed using a qualitative thematic approach. Seven people participated in interviews. Thematic analysis revealed three themes: encountering ambiguity, the pursuit of normality and navigating treatment completion. The transition from patient to survivor was characterised by trepidation and uncertainty. While participants sought to resume a sense of normality in their lives, they were beset by enduring treatment effects. They felt insufficiently prepared for these effects and were uncertain about the availability of the ongoing supportive care which met their individual needs. Participants articulated that they desired much more from haematology providers in preparing them for life beyond initial SACT.

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Development and validation of an individualized survivorship care plan (ISCP) for women with endometrial cancer during the transition of the end of active treatment to the cancer survivorship

Abstract: ABSTRACT

Cited by 2 publications

References 46 publications

Exploration of the contexts surrounding the implementation of an intervention supporting return-to-work after breast cancer in a primary care setting: starting point for an intervention development

Exploration of the contexts surrounding the implementation of an intervention supporting return-to-work after breast cancer in a primary care setting: starting point for an intervention development

Still lost in transition: a qualitative descriptive study of people’s experiences following treatment completion for haematological cancer in Wales, UK

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