Development and Validation of ‘Sure’: A Patient Reported Outcome Measure (Prom) for Recovery From Drug and Alcohol Dependence

Abstract

Highlights‘SURE’ is a new patient reported outcome measure of recovery from drug and alcohol dependence.‘SURE’ has been developed with significant input from people in recovery.‘SURE’ has good face and content validity, acceptability and usability for people in recovery.SURE’ comprises 21 items (5 factors) and is psychometrically valid, quick and easy-to-complete.‘SURE’ can be used by individuals in private or in a therapeutic context

Does outcome measurement of treatment for substance use disorder reflect the personal concerns of patients? A scoping review of measures recommended in Europe

“…Failure to involve patients in the process of outcome measurement raises the possibility that measurement overlooks aspects of relevance for patients and over-optimistic reporting of outcomes (Thurgood et al, 2014). Increasingly, studies are seeking the views of patients about outcome measurement criteria (e.g., Ruefli and Rogers, 2004;Neale et al, 2016;see Table 1). For instance, Ruefli and Rogers (2004) revealed that patients in treatment stated the importance of domains covering: 'making money', 'getting something good to eat', 'being housed', 'relating to family', 'getting needed programs/benefits/services', 'handling health problems', 'handling negative emotions', 'handling legal problems', 'improving oneself' and 'handling drug-use problems'.…”

“…Patients reported that treatment recovery should include improvements in 'substance use', 'material resources', 'outlook on life', 'self-care' and 'relationships'. Another example is the recently developed 'SURE', a standardised outcome measure for treatment of substance use disorders (Neale et al, 2016). In this measure, items were generated in collaboration with former and current drug and alcohol service users (Neale et al, 2016).…”

“…Another example is the recently developed 'SURE', a standardised outcome measure for treatment of substance use disorders (Neale et al, 2016). In this measure, items were generated in collaboration with former and current drug and alcohol service users (Neale et al, 2016). Similarly, our own research group has sought the views of patients with substance use disorders using individualised outcome measures, which enable patients to report their personal concerns at treatment entry (Alves et al, submitted).…”

“…None of the measures included worries about the self (e.g., 'personal development', 'existence', 'outlook on life', 'having time') even though these were frequently reported in individualised measures (Alves et al, submitted). Some of these patient-generated topics, namely, 'selfcare' and 'outlook on life', have recently been incorporated into a new standardised measure, 'SURE', a patient-reported outcome measure for use in substance use (Neale et al, 2016).…”

Development of OSTQOL: A Measure of Quality of Life for Patients in Opioid Substitution Treatment

“…However, these measure HRQOL and not QOL: the Health-Related Quality of Life for Drug Abusers test (HRQoLDA [26]), the Chinese instrument Quality of Life Scale for Patients with Drug Addiction (QOL-DA [27]), and the Patient Reported Outcome Measure for Recovery from Drug and Alcohol Dependence (SURE [28]). No opioid-dependence-specific or addiction-specific QOL instrument is available to date.…”