Development of a Quality of Life Scale for Vitiligo

Background: Vitiligo can negatively affect a patient's quality of life (QoL). A specific questionnaire has been developed and validated in the English language: the vitiligo-specific quality-of-life instrument (VitiQoL). The instrument was translated, culturally adapted and validated into Brazilian Portuguese (VitiQoL-PB). Objective: The aim of this study was to assess the QoL in adult patients through the VitiQoL and Dermatology Life Quality Index (DLQI) and in pediatric patients through the Children's Dermatology Life Quality Index (CDLQI) in a sample of patients with vitiligo. Methods: Subjects were selected from a dermatological outpatient clinic and from a private practice in Porto Alegre. The QoL of pediatric patients was evaluated using the CDLQI questionnaire. In adult patients we used the VitiQoL-PB and the DLQI. Results: A strong correlation between the scores of the total VitiQoL and DLQI was observed (r = 0.81; p < 0.001). The factor that most contributed to the final score of VitiQoL was stigma. In our sample, women had higher scores than men (p < 0.05). Psychiatric problems were associated with lower QoL. In the pediatric population, the median score of the CDLQI was 3 (interquartile range 1.3-7.3). There was a statistically significant correlation between the child's age and the CDLQI score (r_s = 0.41, p = 0.044). Conclusion: This study confirms that the VitiQoL is easy to administer and adds important information about the impact of vitiligo on a South American population. Stigmatization is very present in the disease. There are groups of patients that are more vulnerable, like women, patients with psychiatric diseases and adolescents.

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“…Similarly, other specific questionnaires for vitiligo had shown a correlation with the DLQI [25,27,28] .…”

Section: Discussionmentioning

confidence: 80%

Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

et al. 2016

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“…(Parsad et al, 2003b) Despite this, there is limited research the investigate the efficacy of psychological interventions in patients with vitiligo although some authors provide insights into the interest possibility of cognitive behaviour and other psychological therapies in limiting disease progression. (Papadopoulos et al, 1999) A few vitiligo specific QOL instruments have been recently developed (Gupta et al, 2014;Lilly et al, 2013;Senol et al, 2013) but these are not completely satisfactory scales because they do not address some aspects of the global burden of the disease which remain unexplored. Our VIPs questionnaire, when used in conjunction with vitiligo specific QoL measures, has the advantage of covering all aspects of the burden of vitiligo in daily life.…”

Section: Discussionmentioning

confidence: 99%

“…Recently, a few specific vitiligo QoL questionnaires have been developed. (Gupta et al, 2014;Lilly et al, 2013;Senol et al, 2013) The concept of "burden" has played an increasingly important role in evaluating the care of chronic diseases, and more specifically skin diseases. (Chren and Weinstock, 2004) The notion of global burden was introduced by the WHO and is useful in quantifying the health of a population and determining priorities of action in the public health domain.…”

Section: Introductionmentioning

confidence: 99%

The Vitiligo Impact Patient Scale (VIPs): Development and Validation of a Vitiligo Burden Assessment Tool

Salzes

Abadie²,

Sénéschal³

et al. 2016

Journal of Investigative Dermatology

102

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Vitiligo has a major impact on health-related quality of life (QOL). Although a few vitiligo specific QOL instruments exist, there is no specific vitiligo burden tool. We developed and validated a specific vitiligo burden tool according to skin phototype. In total, 301patients completed 35-item of the Vitiligo Impact Patient scale (VIPs) of who 235 were of skin phototype I to III and 66 of phototype IV to VI. The dimensionality of the items was evaluated using factor analyses with results suggesting 3 factors in fair and dark skinned patients ("Psychological effects on daily life", "Relationships and Sexuality", and "Economic constraints, Care & Management of Disease"). Unidimensionality was confirmed by higher order factor analysis. Cronbach's α were high and intra-dimensional coherences all demonstrated good reliability (α>0.8). The final instrument consists of 29 items (19 items common to all patients, 3 specific to fair skin and 7 to dark skin. The test-retest reliability demonstrated very good reproducibility. Intra Class Correlation of each dimension was >0.90 for each population. External validity was confirmed by the correlation coefficients and Bland and Altman plots of the VIPs-FS and VIPs-DS versus the SF-12, PVC Metra, BISS and DLQI assessment tools.Journal of Investigative Dermatology accepted article preview online, 08 October 2015. doi:10.1038/jid.2015.398.

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“…Different tools were created for measuring QoL focusing on different conditions and diseases. [7][8][9][10][11] The purpose of this study is to evaluate the burden of Vitiligo on the quality of life of Vitiligo patients using Vitiligo specific life quality questionnaire developed by Senol et al…”

Section: Introductionmentioning

confidence: 99%

Assessment of quality of life in Indian patients with vitiligo, an observational study

Trivedi¹,

Rana²,

Thakkar³

et al. 2017

Int J Basic Clin Pharmacol

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INTRODUCTIONVitiligo is a common depigmenting skin disorder characterized by acquired, idiopathic, progressive, circumscribed hypomelanosis of the skin and hair. It occurs worldwide, with an incidence of 0.5% to 2.0%. 1 Vitiligo is disfiguring in all races but particularly more so in dark skinned people because of strong contrast.2 Vitiligo may entail significant psychosocial consequences. Vitiligo is a social stigma and is associated with a decreased quality of life, especially when lesions are located over the face; thus, it may affect the quality of social and personal life depending on the patient's perception. 3In India and perhaps elsewhere also men, women and children with vitiligo face severe psychological and social problems. Many vitiligo patients felt distressed and . Vitiligo patients presented with symptoms of pain, irritation and itching (P<0.0001). Vitiligo patients when assessed for feeling domain were significantly embarrassed for their overall look and appearance. (P < 0.0001). When Personal relationship domain was analysed physical contact was a major concern (P <0.002). Patients suffering from Vitiligo were significantly worried about spread of vitiligo and occurrence of cancer (P<0.0001). Therapy for Vitiligo was time consuming time and was a work place challenge for the patients (P <0.0001). The reliability of VQLQ in our study was Cronbach's α coefficient was 0.876. Conclusions: QoL impairment was relatively high in vitiligo patients. Medical intervention and counselling should focus to improve feelings, personal relationship, anxiety, school/work, leisure and symptom domains.

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Development of a Quality of Life Scale for Vitiligo

Cited by 33 publications

References 14 publications

Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

The Vitiligo Impact Patient Scale (VIPs): Development and Validation of a Vitiligo Burden Assessment Tool

Assessment of quality of life in Indian patients with vitiligo, an observational study

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