Development of a resource for parents with advanced cancer: What do 
parents want?

Turner, Jane; Clavarino, Alexandra; Yates, Patsy; Hargraves, Maryanne; Connors, Veronica; Hausmann, Sue

doi:10.1017/s1478951507070204

Cited by 80 publications

(182 citation statements)

References 15 publications

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“…Mothers need to be supported and instructed on how to talk to their children at a time where they themselves struggle to get enough information, make decisions, and integrate the disease into their daily lives [26][27][28]. This communication needs to maintain hope while also being honest with the children [28].…”

Section: Reproductive Concernsmentioning

confidence: 99%

Evaluation of Reproductive Concerns and Biographical Impact of Breast Cancer in Young Patients

Burgmann¹,

Hermelink²,

Farr

et al. 2018

Breast Care

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Background: This study evaluates interventions offered to young breast cancer (BC) patients, including fertility preservation, genetic testing, and counseling for parenthood concerns, and analyzes the effect of BC on biographical issues. Methods: Women who were diagnosed with BC at the age of 18-40 years and who underwent treatment at the Breast Center, Ludwig-Maximilian University (LMU) in Munich between 2006 and 2013, were eligible for this study. Patients received a self-developed questionnaire which covered the following topics: fertility preservation, family planning, genetic testing, parenthood concerns and children's needs, partnership status, and employment situation. Results: Re-evaluating their initial decision on fertility preservation, 76.4% of patients reported satisfaction with their decision. After BC diagnosis, 45.8% reported to have maternal desire, but only 21.7% actually planned to have children. 41.7% of patients missed sufficient counseling regarding parenthood concerns. Analysis of individual employment situations showed that the time period until the return to work was longer in patients who received chemotherapy. The majority of patients (71.6%) did not report changes in their partnership status. Conclusion: Young BC survivors report a lack of communication related to parenthood concerns and future conception, but are satisfied with counseling regarding fertility preservation and genetics.

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Section: Reproductive Concernsmentioning

confidence: 99%

Evaluation of Reproductive Concerns and Biographical Impact of Breast Cancer in Young Patients

Burgmann¹,

Hermelink²,

Farr

et al. 2018

Breast Care

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“…Whilst the responsibility for opening up conversations with young people is generally attributed to parents, it is acknowledged that some parents may require or appreciate the support of healthcare professionals in raising this sensitive subject (Asbury et al, 2014;Turner et al, 2007). Healthcare professionals (HCPs) are advised to adopt a strategy of open communication with young people and to offer clear, thorough and detailed information (Alvariza et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Young people's perspectives on open communication between family members when a parent is dying

Turner

2017

Pall Supp Care

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“…Literatür ebeveynlerin bu konuda hemşireler tarafından desteklenmeleri gerektiğini belirtirken, 37,38,50,51 çoğu hemşire bu konuda eği-timlerinin yetersiz olması nedeniyle bu rehberliği sağlamada çekinik davranmaktadır. 39,42,43,49,51 Hemşireler ve ebeveynler, yas yaşayan çocukla iletişimde şunlara dikkat etmelidir: 1) Hasta kardeşin hastalığı ile ilgili bilgiler erken dönemde açık ve dürüst bir şekilde açıklanmalı-dır. 2) Kelimelerin yaratacağı etki unutulmamalı, bu nedenle kanser ve ölüm gibi kelimeler seçilirken dikkatli olunmalıdır.…”

unclassified

Kayıp ve Yas Sürecinde Kardeşler

Yıldız¹,

Balcı²

2016

HSP

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ÖZET Çocuklar için ölüm, kavranması ve kabullenilmesi zor bir durumdur. Bu nedenle çocukların ölüme verdikleri yas tepkisi, yaş gruplarına ve içinde bulundukları kültüre göre farklı şekillerde yaşanabilir. Kardeşin ölümü ise yaşayan kardeş üzerinde derin bir etki bırakabilir ve çocuğun yaşamını geri dönüşsüz bir şekilde değiştirebilir. Kardeşin ölümü nedeniyle yaşanan yas tepkileri sıklıkla uzun bir zaman sürecinde yaşanan büyük üzüntüyü ve depresyonu içerebilir. Bu deneyimi yaşayan çocuklar, özellikle hastalığın oluştuğu ve ölümün beklendiği süreçte ebeveynlerin de kendi yas süreçlerine odaklanmalarından dolayı, aileden sınırlı destek alabilir, daha az iletişim kurabilirler ya da ihmale uğrayabilir ve görünmez olduklarını hissedebilirler. Bu durum onların korku, öfke, anksiyete ya da depresyon yaşamalarına neden olabilir. Hemşireler, hastalık sürecinin her aşamasında aile, hasta çocuk ve kardeşle iletişim halinde olmaları nedeniyle kardeşlerinin ölümünü yaşayan çocukları desteklemede, sağlık personelleri arasında önemli bir role sahiptir. Hemşire, yas sürecindeki ebeveynlere ve kardeşlere vereceği eğitim ve uygun yaklaşımla yas sürecini uyumlu bir şekilde yaşayabilmelerine destek olabilir ve uyumsuz yas süreci yaşayan ebeveynleri ve çocukları erken dönemde fark edip, girişimlerini buna göre planlamalıdır. Anahtar Kelimeler: Yas süreci, kardeş, hemşire ABSTRACT Death is a hard situation to understand and accept for children. Therefore the grieving reaction of children in death situation may be different regarding to age group or cultural back ground of children. Death of a sibling may make a profound impact to the living sibling and may make irreversible changes in the living sibling's life. Grieving reactions which are caused by the death of siblings can commonly cause major sorrow and depression. Children who experienced this situation can get less support from their parents because of parents' own grief or they can communicate less and may feel neglected and invisible. This situation may cause them to feel frightened, angry, anxious and depressed. Nurses have an important role among the other health care professionals to support the children who experienced sibling's death because nurses are always in touch with parents, sick children and their siblings at every stages of disease process. Nurse can support parents and siblings to live their grief process in a harmonius way by appropriate approach and education or nurses may notice earlier parents and siblings who are living the grief process inappropriately and should plan the nursing interventions according to them. Keywords: Process of grieving, sibling, nurse. GirişKayıp, birey için önemli ve değerli nesnelerin (kişi, organ, işlev, obje, hayvan vb.) yitirilmesi ya da ölüm sonucu kişinin hayatından uzaklaşması anlamına gelmektedir. Ölüm, evrensel bir olgudur ve aslında doğmak kadar yaşamın bir parçası ve doğal bir süreçtir. Ancak kayıp yaşayan kişiye acı ve keder duyguları yaşatır ve birey yas süre-cine girer.

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Development of a resource for parents with advanced cancer: What do parents want?

Abstract: This article expands on the themes highlighted by women as important to assist parents with advanced cancer, including the final resource that was developed.

Cited by 80 publications

References 15 publications

Evaluation of Reproductive Concerns and Biographical Impact of Breast Cancer in Young Patients

Evaluation of Reproductive Concerns and Biographical Impact of Breast Cancer in Young Patients

Young people's perspectives on open communication between family members when a parent is dying

Kayıp ve Yas Sürecinde Kardeşler

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