Development of cancer support services for patients and their close ones from the Cancer Society of Finland’s perspective

Tiirola, Heli; Poutanen, Veli-Matti; Vornanen, Riitta; Pylkkänen, Liisa

doi:10.1080/17482631.2021.1915737

Cited by 4 publications

(4 citation statements)

References 45 publications

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“…Although the YAC who participated in our workshop recognized that various healthcare and community services were available to them, they rarely used them because of lack of tailoring to their needs and lifestyle. A recent Finnish study raises similar points about the underutilization of services due to lack of awareness and a lack of recognition that community organizations have qualified professionals (Tiirola et al, 2021). As these authors pointed out, community organizations can respond to the need for information, professional listening, and peer networking in a timely and efficient manner.…”

Section: Discussionmentioning

confidence: 91%

Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Bilodeau¹,

Hartono²,

Lee³

et al. 2022

CONJ

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Background and objectives: Despite the availability of healthcare and community services dedicated to cancer survivors, these remain underutilized by young adults living with cancer (YAC; aged 18-39). A workshop was organized in Montréal, Canada, to identify the needs of YAC during their post-treatment transition period and explore existing services dedicated to YAC. Methods: We recruited seventeen stakeholders (N = 17), including seven YAC, to participate in a one-day workshop to consult about best approaches and practices to meet the needs of YAC, post-treatment. All discussions were transcribed, and a thematic qualitative analysis was performed. Results: Two main findings were identified: differences and similarities among stakeholders about perceptions of post-treatment needs; and suggestions to meet YAC needs following treatment. Conclusions: Results demonstrate the importance of collaboration among multiple stakeholders, including YAC, when designing services for YAC. Results include suggestions to improve services available through community or healthcare centres. Keywords: patient engagement, community engagement, survivorship, young adult, cancer, healthcare services

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Section: Discussionmentioning

confidence: 91%

Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Bilodeau¹,

Hartono²,

Lee³

et al. 2022

CONJ

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“…Finances are an important issue that clinicians rarely address. Some studies show that SSC enables better access to financial and social resources [ 33 – 35 ].…”

Section: Discussionmentioning

confidence: 99%

Association of social service counseling in breast cancer patients with financial problems, role functioning and employment—results from the prospective multicenter BRENDA II study

Dayan

Leinert

Schnittger

et al. 2022

Arch Gynecol Obstet

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Background This study examined the relationship between social service counseling (SSC) and financial and role functioning problems in primary breast cancer (BC) patients over a 5-year observation period. Methods In the multicenter prospective study, patients were approached before surgery (t1), before initiation of adjuvant treatment (t2), after therapy completion (t3), and 5 years after surgery (t4). We examined the proportion of BC survivors who had financial and role functioning problems and the proportion who were employed at t4. We examined how frequently patients were informed about, offered, or used SSC, and we used multivariate logistic regression analyses to examine the relationship between this and financial and role functioning problem prevalence. Results Of the 456 BC survivors, 33% had financial problems and 22% reported role functioning problems at t4. There was no evidence that women with increased financial problems were informed about SSC more often than those without (OR 1.1, p = 0.84) or that they used SSC more often (OR 1.3, p = 0.25). However, women with role functioning problems were informed about SSC significantly more often (OR 1.7, p = 0.02) and attended counseling significantly more often (OR 1.6, p = 0.03). Among participants aged < 65 years at t4 (n = 255), 70% were employed. Patients who had received SSC were more likely to be employed at t4 than patients who did not (OR 1.9, p = 0.04). Conclusion These findings underline the importance of SSC for BC patients with role functioning issues. They indicate that individuals who use SSC are more likely to be employed later on than individuals who do not.

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“…Les JAC ayant participé à notre atelier reconnaissaient qu'il existait des soins de santé et des services communautaires pour leur situation, mais qu'ils ne les utilisaient que rarement parce qu'ils n'étaient pas adaptés à leurs besoins ni à leur mode de vie. Une récente étude finlandaise a posé des constats similaires : une sous-utilisation des services en raison d'un manque de sensibilisation et de reconnaissance que les organismes communautaires disposent de professionnels qualifiés (Tiirola et al, 2021). Comme ces auteurs l'ont souligné, les organismes communautaires sont en mesure de répondre au besoin d'information, d'écoute professionnelle et de réseautage entre pairs, et cela en temps utile et de façon efficace.…”

Section: Discussion Et Conclusionunclassified

Comment améliorer les services communautaires et les soins de santé aux jeunes adultes atteints du cancer : suggestions présentées au cours d’un atelier multipartite

Bilodeau¹,

Hartono²,

Lee³

et al. 2022

CONJ

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Contexte et objectifs : Bien qu’il existe des soins de santé et des services communautaires aux survivants, ceux-ci sont sous-utilisés par les jeunes adultes atteints du cancer (c’est-à-dire âgés de 18 à 39 ans). Un atelier a été organisé à Montréal (Canada) visant à cerner les besoins des JAC signalés par cette population au cours de la transition post-thérapeutique et à examiner les services qui leur sont offerts actuellement. Méthodologie : Dix-sept intervenants (n = 17) ont été recrutés, dont 7 jeunes adultes ayant eu le cancer (JAC), et nous leur avons demandé de prendre part à un atelier d’une journée visant à examiner les meilleures approches et pratiques qui permettraient de combler les besoins des JAC après le traitement. Toutes les discussions ont été transcrites, puis une analyse qualitative des thèmes a été effectuée. Résultats : Deux grands constats ressortent : les différences et les similitudes entre les parties prenantes concernant les perceptions des besoins post-traitement ; et des suggestions pour répondre aux besoins des JAC, après le traitement. Conclusions : Les résultats montrent l’importance de la collaboration entre les différents intervenants, y compris les JAC, lorsqu’il s’agit de concevoir des services destinés aux JAC. Les résultats comprennent des suggestions visant à améliorer la qualité des services offerts dans la collectivité et les établissements de soins de santé. Mots clés : participation du patient, participation de la collectivité, survie, jeune adulte, cancer, services de soins de santé

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Development of cancer support services for patients and their close ones from the Cancer Society of Finland’s perspective

Cited by 4 publications

References 45 publications

Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Association of social service counseling in breast cancer patients with financial problems, role functioning and employment—results from the prospective multicenter BRENDA II study

Comment améliorer les services communautaires et les soins de santé aux jeunes adultes atteints du cancer : suggestions présentées au cours d’un atelier multipartite

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