Development of child-centered disease-specific questionnaires for living with asthma.

Christie, Margaret J.; French, Davina; Sowden, Amanda; West, Amy E.

doi:10.1097/00006842-199311000-00010

Cited by 147 publications

(98 citation statements)

References 11 publications

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“…Previous research on asthma [1][2][3] and other conditions 4 -7 demonstrates that parent and child reports differ and suggests that children may be more valid reporters than their caregivers. 8,9 However, for the most part, clinicians and researchers rely on the parent report and/or pulmonary function tests to evaluate the impact of asthma experienced by the child. Discordance in symptom reports may reflect differences between the parent and child in awareness of the child's asthma symptoms and/or psychosocial experience with the illness.…”

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confidence: 99%

Differences Between Child and Parent Reports of Symptoms Among Latino Children With Asthma

et al. 1998

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ABSTRACT. Objectives. To determine, in a population of predominantly Latino children with asthma 6 to 18 years old, whether parent and child reports of asthma symptoms with exercise differ and to evaluate the validity of child and parent reports of symptoms.Design. Data obtained from child and parent interviews; pulmonary function tests (forced vital capacity, forced expiratory volume in 1 second, forced expiratory flow , peak expiratory flow), and observation of symptoms after exercise.Setting. Three summer camps for minority children with asthma in Los Angeles County.Participants. A total of 97 children with asthma (78% Latino, 12% non-Latino White, 9% Other; 6 to 18 years of age) and their parents.Intervention(s). None. Primary Outcome Measures. Child and parent reports of cough and wheezing with exercise and pulmonary function tests before and after exercise. While at camp, children underwent spirometry after completing the selfadministered survey. The pulmonary function tests were conducted and interpreted according to the pediatric specifications for spirometry, and results >80% of predicted, adjusted for gender, age, height, and race, were considered normal. Six peak expiratory flow rates (PEFR) by peak flow meter also were recorded by trained research assistants immediately before spirometry, and values >80% of predicted based on height were considered normal. To observe child symptoms with exercise, children participated in a relay running race of 200 feet followed by a swimming race of 300 feet. Research assistants measured heart rate and 6 PEFRs using ASSESS portable peak flow meters immediately before and after each exercise. A positive exercise challenge was defined as a 15% reduction in mean PEFR and/or observed asthma symptoms (cough, wheezing, chest pain, asthma attack).Results. Of the children, 18% reported never having a cough when they exercised, 46% reported having it occasionally when they exercised, and 36% reported having it quite often or always when they exercised. For wheezing, 20% of children reported never having wheezing when they exercised, 35% having it occasionally when they exercised, and 45% having it quite often or always when they exercised. Parents reported fewer symptoms than did their children. Of the parents, 34% reported that their children did not have cough with exercise, 37% reported few to some days, and 29% reported most days or every day. Forty-seven percent of parents reported that their child did not wheeze with exercise in the last 2 months, 35% reported wheezing on a few days to some days, and 17% reported wheezing most days to every day.Parent and child reports of cough or wheezing after exercise correlated mildly with each other (parent/child cough r ‫؍‬ 0.23; ‫؍‬ 0.03; parent/child wheezing r ‫؍‬ 0.21; ‫؍‬ 0.14). Children were more likely to report cough: 59 of 71 (83%) of children versus 44 of 71 (62%) of parents. The 22 children who reported cough when their parents did not account for most of the disagreement between parents and children. Children were mo...

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Differences Between Child and Parent Reports of Symptoms Among Latino Children With Asthma

et al. 1998

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“…In this age the children are more exposed to allergic materials. 10 Among this study the prevalence of asthma was higher in lower primary (5.17%) when compare to the other educational status patients. and most of the patients are affecting mild persistent asthma and the most patients low class family.…”

Section: Discussionmentioning

confidence: 48%

Assessment of health-related quality of life in paediatric asthma patients

Noushadali

Mohandas

Kp³

2018

Int J Contemp Pediatr

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Background: Bronchial Asthma is one of the important chronic disease in children. This disease can affect the children mentally and physically in various aspects. Health related quality of life (HRQoL) has become an increasing important issue in the management of Asthma and it is how often used to evaluate the effectiveness of antiasthma drugs. The objectives of the study are to assess the health-related quality of life in Pediatric patients by using Pediatric Asthma quality of life questionnaire and also to assess the impact of parent education in health-related quality life of Asthma patient. The other intention of the study is to determine the anti-asthma drugs utilisation pattern in Pediatric patients.Methods: This study was conducted in in-patient and out-patient department of tertiary care Hospital for a period of 1 year. 145 pediatric patients were participated in this study. A comparative study was conducted to describe the HRQoL in asthma and the pediatric asthma quality of life questionnaire is used to determine the HRQoL of the subjects. Statistical analysis was performed using the instant prism ANOVA test and the Bartlett’s test. P <0.05 was considered statistically significant.Results: This study shows that asthma is more common in male compared to female and most common type was Mild Persistent (47.85). Most of the patient are treated with bronchodilator (71%) followed by steroid (49%) and Leukotrien Antagonist (30.43%). Also revealed that most of the patients are taking multiple drug therapy compared to mono therapy. Quality of life having significant difference in all domains by comparing first visits score. Those suffering from the intermittent type of asthma showed higher mean quality of life score in all domains by comparing first visit score vs second visit score vs third visit score.Conclusions: The health-related quality of life having improvement in all domain and overall quality of life by comparing the initial visit to the follow up visits. The patient education plays major role in improving the quality of life of pediatric population and the quality of life score having relationship with gender, age educational status, severity of asthma and the drug utilization improving health related quality of life.

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“…OHRQoL is a multidimensional paradigm that involves a subjective assessment of the individual's oral health, functional well-being, emotional well-being, expectations and satisfaction with care, and sense of self. Further researches needed in this domain to improve the quality of data that can enable researchers to draw solid conclusions [40][41][42][43][44][45][46][47][48][49][50][51][52][53][54][55].…”

Section: Resultsmentioning

confidence: 99%

Oral Health Related Quality of Life Impact in Dentistry

Alzoubi¹

2017

JDHODT

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In spite of its recent emergence over the past 30 years, oral health-related quality of life (OHRQoL) has important impact on the clinical practice of dentistry and dental research. OHRQoL is a multidimensional paradigm that involves a subjective evaluation of the individual's oral health, functional well-being, emotional wellbeing, expectations and satisfaction with care, and sense of self. It has been beneficial in relation to clinical research and health policies regulation.

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Development of child-centered disease-specific questionnaires for living with asthma.

Cited by 147 publications

References 11 publications

Differences Between Child and Parent Reports of Symptoms Among Latino Children With Asthma

Differences Between Child and Parent Reports of Symptoms Among Latino Children With Asthma

Assessment of health-related quality of life in paediatric asthma patients

Oral Health Related Quality of Life Impact in Dentistry

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