Development of culturally sensitive Pain Neuroscience Education for first-generation Turkish patients with chronic pain: A modified Delphi study

Orhan, Ceren; Cagnie, Barbara; Favoreel, An; Looveren, Eveline Van; Akel, Umit; Mukhtar, Naziru Bashir; Meulemeester, Kayleigh De; Pas, Roselien; Lenoir, Dorine; Meeus, Mira

doi:10.1016/j.msksp.2018.10.007

Cited by 16 publications

(18 citation statements)

References 30 publications

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“…First, a FG discussion was carried out to generate the preliminary materials that were used during the Delphi rounds [30][31][32], following a similar procedure as described by Orhan et al [21]. Next, a 3-round modified Delphi-study was designed to gather inputs, corrections, and consensus of experts using a series of online questionnaires [21,32,33].…”

Section: Methodsmentioning

confidence: 99%

Development of culturally sensitive pain neuroscience education materials for Hausa-speaking patients with chronic spinal pain: A modified Delphi study

et al. 2021

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This study aimed to develop culturally sensitive pain neuroscience education (PNE) materials for Hausa speaking patients with chronic spinal pain (CSP). PNE is a program of teaching patients about pain that has gained considerable attention in research and is increasingly used during physical therapy for patients with chronic pain. It helps in decreasing pain, disability, fear-avoidance, pain catastrophization, movement restriction, and health care utilization among patients with chronic pain. However, existing PNE materials and their application are limited to few languages and cultural inclinations. Due to the variations in pain perceptions, beliefs, and related outcomes among different population groups, culture-sensitive PNE materials addressing these outcomes are warranted. A focus-group discussion comprising 4 experts was used to adapt and develop preliminary PNE materials. Thereafter, an internet-based 3-round modified Delphi-study involving 22 experts ensued. Experts’ consensus/recommendations concerning the content were used in modifying the PNE materials. Consensus was predefined as ≥75% level of (dis)agreement. Eighteen experts completed the Delphi rounds. Nineteen, 18 and 18 experts participated in rounds 1, 2 and 3 respectively, representing 86%, 94% and 100% participation rate respectively. Consensus agreement was reached in every round and content of the materials, including drawings, examples, figures and metaphors were adapted following the experts’ suggestions. We therefore concluded that, culture-sensitive PNE materials for Hausa speaking patients with CSP were successfully produced. The present study also provides a direction for further research whereby the effects of culturally-sensitive PNE materials can be piloted among Hausa speaking patients with CSP.

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Section: Methodsmentioning

confidence: 99%

Development of culturally sensitive pain neuroscience education materials for Hausa-speaking patients with chronic spinal pain: A modified Delphi study

et al. 2021

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“…The FG resulted in the preliminary PNE teaching and HE materials to use in the first round of the Delphi-study. The following major adaptations to the existing materials [21] were performed: (i) the development of HE materials in form of an oral interview between an expert and a journalist, so that Hausa speaking patients can listen to the interview, since majority of them cannot read [28]; (ii) modification of the pictures in the TM with drawings that depict African/Hausa people; (ii) due to cultural and religious peculiarities, separate PNE TM for male and female patients were developed [21]; (iv) metaphors, examples and stories that were thought to be inappropriate for Hausa speaking patients were changed or modified to fit Hausa contexts.…”

Section: Focus Groupmentioning

confidence: 99%

“…Firstly, all the materials were developed in the English language and then translated into Hausa language by the first author who is fluent in English and a native Hausa speaker. The translated materials, together with the English materials, were sent to 2 Hausa language experts for corrections [21]. This translation procedure was used after each round of the Delphi-rounds.…”

Section: Focus Groupmentioning

confidence: 99%

“…The questionnaire for round 1 consisted of 7-items on demographics and a total of 42 (31 closed-ended and 11 open-ended) PNE materials-related questions that were adapted and modified from a previous study [21].…”

Section: Plos Onementioning

confidence: 99%

“…One of these attempts involved an internet-based method that required internet-access, literacy, and at least a smartphone (for access) among Brazilians [12]. Another study among Turkish-immigrants in Belgium used home education (HE) materials that required literacy to read, and included Turkish-specific pictures and metaphors [21].…”

Section: Introductionmentioning

confidence: 99%

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Treating persistent pain after breast cancer: practice gaps and future directions

et al. 2022

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This paper discusses the growing problem of persisting pain after successful treatment of breast cancer and presents recommendations for improving pain-related outcomes for this group. We discuss the dominant treatment approach for persisting pain post-breast cancer treatment and draw contrasts with contemporary treatment approaches to persistent pain in noncancer-related populations. We discuss modern application of the biopsychosocial model of pain and the notion of variable sensitivity within the pain system, moment by moment and over time. We present the implications of increasing sensitivity over time for treatment selection and implementation. By drawing on transformative changes in treatment approaches to persistent non-cancer-related pain, we describe the potentially powerful role that an intervention called pain science education, which is now recommended in clinical guidelines for musculoskeletal pain, may play in improving pain and disability outcomes after successful breast cancer treatment. Finally, we present several research recommendations that centre around adaptation of the content and delivery models of contemporary pain science education, to the post-breast cancer context.

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Development of culturally sensitive Pain Neuroscience Education for first-generation Turkish patients with chronic pain: A modified Delphi study

Cited by 16 publications

References 30 publications

Development of culturally sensitive pain neuroscience education materials for Hausa-speaking patients with chronic spinal pain: A modified Delphi study

Development of culturally sensitive pain neuroscience education materials for Hausa-speaking patients with chronic spinal pain: A modified Delphi study

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Treating persistent pain after breast cancer: practice gaps and future directions

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