Development of Culturally Tailored Educational Brochures on HPV and Pap Tests for American Indian Women

Sharpe, Patricia A.; Brandt, Heather M.; McCree, Donna Hubbard; Owl-Myers, Elizabeth; Taylor, Betty; Mullins, Glenda

doi:10.1177/1043659613481676

Cited by 10 publications

(12 citation statements)

References 16 publications

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“…The GIN toolkit suggests that the translation of the English lay version in different languages should be done by patient organisations, using a heterogeneous group of patients with different disease status and educational levels [ 38 ]. Other authors [ 39 ] suggest to use a participatory (action) research (PAR) in order to involve patients in the development of guidelines/lay versions. Using such a PAR design may, according to the authors, result in culturally appropriate brochures for patients [ 39 ].…”

Section: Resultsmentioning

confidence: 99%

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Strategies for disseminating recommendations or guidelines to patients: a systematic review

et al. 2015

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BackgroundThe aim of this systematic literature review was to assess what dissemination strategies are feasible to inform and educate patients about recommendations (also known as guidelines).MethodsThe search was performed in February 2016 in PubMed, Ebsco/PsycINFO, Ebsco/CINAHL and Embase. Studies evaluating dissemination strategies, involving patients and/or reaching patients, were included. A hand search and a search in the grey literature, also done in February 2016, were added. Searches were not restricted by language or publication type.Publications that referred to (1) guideline(s) or recommendation(s), (2) dissemination, (3) dissemination with patients/patient organisations and (4) dissemination to patients/patient organisations were included in this article. Criteria 1 AND 2 were mandatory together with criteria 3 OR 4.ResultsThe initial search revealed 3753 unique publications. Forty-seven articles met the inclusion criteria and were selected for detailed review. The hand search and grey literature resulted in four relevant articles. After reading the full text of the 47 articles, 21 were relevant for answering our research question. Most publications had low levels of evidence, 3 or 4 of the Oxford levels of evidence. One article had a level of evidence of 2(b).This article gives an overview of tools and strategies to disseminate recommendations to patients. Key factors of success were a dissemination plan, written at the start of the recommendation development process, involvement of patients in this development process and the use of a combination of traditional and innovative dissemination tools. The lack of strong evidence calls for more research of the effectiveness of different dissemination strategies as well as the barriers for implementing a strategic approach of dissemination.ConclusionOur findings provide the first systematic overview of tools and strategies to disseminate recommendations to patients and patient organisations. Participation of patients in the whole process is one of the most important findings. These findings are relevant to develop, implement and evaluate more (effective) dissemination strategies which can improve health care.Electronic supplementary materialThe online version of this article (doi:10.1186/s13012-016-0447-x) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

“…Other authors [ 39 ] suggest to use a participatory (action) research (PAR) in order to involve patients in the development of guidelines/lay versions. Using such a PAR design may, according to the authors, result in culturally appropriate brochures for patients [ 39 ].…”

Section: Resultsmentioning

confidence: 99%

Strategies for disseminating recommendations or guidelines to patients: a systematic review

et al. 2015

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“…A study identified literacy and culture as indispensable factors for HPV educational material. 45 This provides additional challenges related to language and information in the HPV pamphlet for both, educated as well as less educated respondents. The pamphlet was tested for readability and translated to only one language, Bahasa Malaysia, as the study was conducted in Malaysia dominated by the translated literacy.…”

Section: Discussionmentioning

confidence: 99%

“…Previous studies reported most young adults have a poor HPV knowledge. 25,45,[50][51][52] Educational pamphlet developed for this study may be useful for providers to guide patients in clinical setting as well as stake holders in community setting. The possible approaches based on provider and patient for HPV education include the use of pamphlets/brochures or leaflets to reach the large population, providing answers to frequently asked questions.…”

Section: Discussionmentioning

confidence: 99%

Development and Validation of ‘Educational Pamphlet’ in Prevention of Human Papilloma Virus (HPV) Infection among Age Eligible Adults for HPV Vaccination in Kedah State, Malaysia

Ali

Ping

Prajapati

et al. 2017

MOJBB

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Human Papilloma Virus (HPV) infection is highly contagious and affects all males and females at least once in their sexually active lifetime. Though it is spontaneously cured, certain HPV types are responsible for HPV related cancers. This study aimed to develop and evaluate the effectiveness of educational pamphlet in creating awareness regarding HPV infection and vaccination. Main outcome measures include pre-post test assessment of adult's knowledge regarding HPV infection and HPV vaccination, using pre-validated, 16-item knowledge based questionnaire. The pamphlet development, validation and translation was done potential adults aged 18-26 years who were age eligible for HPV vaccination in urban and rural areas of Kedah state, Malaysia. The research findings showed a significant increase in knowledge gain from 63% to 89% [N=121, Mdn=10 (IQR=4) to Mdn=14 (IQR=3), p<.001] and reveals moderate knowledge and benchmark information before HPV infection and vaccination. At the two-week follow-up, a statistically significant increase in correct responses at prepost-tests were observed at 90%, [N=92, Mdn=11 (IQR=4) to Mdn=14.5 (IQR=3), p< .001]. The educational pamphlet significantly increased knowledge regardless of sociodemographic characteristics and was found to be good. Effective, well-structured and informative pamphlets with repeated booster campaigns can help in increasing awareness of HPV infection and awareness among sexually active young adults.

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“…Studies have linked literacy as an indicator of positive health outcomes. Sharpe et al 46 identified literacy and culture as essential components for HPV educational material in women of color. They concurred that American Indian women like other women of color required accurate, up to date information tailored to the need of the target population.…”

Section: Discussionmentioning

confidence: 99%

Validation of Educational Tools for Use in a Human Papillomavirus Intervention Study

Hurst¹,

Hagensee²,

Ahmed³

et al. 2015

cor

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The aim of this study is to report the process used to validate an educational Human Papillomavirus (HPV) pamphlet and a HPV video to use in a HPV intervention study for women of color to increase HPV knowledge, health beliefs, health behaviors and intention to use the HPV vaccine for themselves or members of the family. Methods: Fifteen women enrolled in a two part, two hour methodological pilot study to validate the appearance, content and readability of the educational pamphlet and video. Quantitative data was determined women completing two 4-pont Likert type questionnaires consisting of 10 items each. The qualitative data was retrieved with the use of a semi-structure interview. Results: Greater than 86% of the participants indicated that both educational tools were acceptable in appearance, content and readability/ understanding. Participants' responses suggested a change in the pamphlet color and use of more colored illustrations as well as condensing the video narrative with bulleted summary pages after each scene. Conclusion: The tools were well received by the participants. Next steps were identified toward revision. A HPV pamphlet and an HPV video were validated for use in a future intervention study. Future Considerations: More educational pamphlets identifying validation process for use in intervention studies for targeted high risk populations.

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Development of Culturally Tailored Educational Brochures on HPV and Pap Tests for American Indian Women

Abstract: This article provides specific steps for creating culturally tailored patient education materials.

Cited by 10 publications

References 16 publications

Strategies for disseminating recommendations or guidelines to patients: a systematic review

Strategies for disseminating recommendations or guidelines to patients: a systematic review

Development and Validation of ‘Educational Pamphlet’ in Prevention of Human Papilloma Virus (HPV) Infection among Age Eligible Adults for HPV Vaccination in Kedah State, Malaysia

Validation of Educational Tools for Use in a Human Papillomavirus Intervention Study

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